TABLE 1.
Demographics
| Characteristic | Parents/ Surrogates, 56 | Patients, 18 | At Home Siblings, 35 | Total, 109 |
|---|---|---|---|---|
| n (%) | n (%) | n (%) | n (%) | |
| Sex | ||||
| Male | 25 (45) | 10 (56) | 20 (57) | 55 (50) |
| Female | 31 (55) | 8 (44) | 15 (43) | 54 (50) |
| Race/ethnicity | ||||
| White | 38 (68) | 12 (67) | 19 (54) | 69 (63) |
| African-American | 16(29) | 5 (28) | 12(34) | 33(30) |
| Hispanic | 2(3) | 0 | 0 | 2(2) |
| White/Hispanic mix | 0 | 1(5) | 4(11) | 5(5) |
| Age | ||||
| Median age (y) | 42 | 16 | 16 | — |
| Age range (y) | 29–64 | 11–18 | 9–22 | — |
| Education | ||||
| Level | 56 (%) | — | — | — |
| ≥ College degree | 19 (34) | — | — | — |
| < College degree | 27(48) | — | — | — |
| Missing | 10 (18) | — | — | — |
—, no data.