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Where can I read how other women responded when they were diagnosed as having breast and ovarian cancer?
This exchange was posted on the Q&A section of bmj.com. If you want to respond to the question, or ask a new question of your own, follow the link above or go to http://bmj.com/q&a
ACOR (Association of Cancer On Line Resources) is an excellent online group at www.acor.org. It is primarily comprised of survivors and care givers, but medical professionals also contribute. It lists over 100 disease sites, and I would recommend the Ovarian Cancer Problems Discussion Group as there are several women with dual primaries or genetically predisposed because of BRCA1 or BRCA2.
I strongly recommend the DIPEx website which (according to the home page) “was created by Dr Ann McPherson CBE and Dr Andrew Herxheimer after their own experiences of illness. Ann had been diagnosed with breast cancer and although she knew all the medical information, couldn't find anyone else to talk to about what it was really like to have the disease.” It's a fascinating collection of narratives.
There's no section on ovarian cancer yet, but a large section about breast cancer at www.dipex.org/Issues/?ILLNESS=bca
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