Abstract
Introduction
Poor prognosis and limited access to clinical trials can result in a poor hospital experience for patients diagnosed with Glioblastoma. The role of the clinical nurse specialist (CNS) is pivotal to improving patient experience. TTF (Tumour treating fields) is a novel, non-invasive technique using electrical fields to disrupt cell division, and requires monthly review. Utilisation of a nurse led clinic co-ordinating the TTF patient pathway was examined.
METHOD
All patients in the North West of England on TTF required monthly compliance data collection and assessment by an Optune team member, and three monthly clinical and radiological review as well as ongoing oncological review. A nurse led clinic for patients meeting the criteria for the study was developed, providing co-ordination, holistic needs assessment, support, advice and signposting for patients and carers. Data collection includes EORTC quality of life measures, patient and carer satisfaction surveys and device compliance data.
RESULTS
4 patients have been having treatment for up to 8 months. Clinical visits occur monthly, with imaging and clinical review when required, occurring at the same time as Optune team member review. Device compliance is >80%. There has been a 0% DNA rate, and patients report a positive experience in the clinic setting. The clinic has allowed a buddy system to be developed for patients and carers.
CONCLUSION
Novo TTF remains prohibitively expensive and is a labour intensive device for both patient and healthcare professional. Using a nurse led clinic for clinical review and to coordinate appointments and investigations has reduced patient outpatient attendance, and improved patient experience. Further reduction in cost may be possible by compliance data being collected by the specialist nurse obviating the need for direct on site company support.