Abstract
Several decades of caregiving research has produced a rich knowledge base on the processes and consequences of caregiving, particularly as relevant to primary, geographically proximate caregivers. However, in our increasingly mobile society, long-distance caregiving (LDC) is a growing phenomenon. As many as 11% of family caregivers in the US live more than two hours distance from the care receiver (CR), half of whom are primary caregivers, and little is known about their unique experiences. This symposium presents initial findings from the Fordham Long-Distance Caregiving Study funded by NIA (R21AG050018). The study goal was to better understand how long-distance caregivers (LDCs) deal with the structural constraint of distance and identify subgroup differences based on characteristics of care receivers and LDCs. We analyzed data of 286 LDCs, collected data via tape-recorded telephone interviews, and apply a mixed-method design with open and structured parts of the interview. Horowitz presents the study background, characteristics of the sample, and the many challenges of sample recruitment. Cimarolli discusses data on mental health consequences of LDC and variation by key characteristics of LDCs. Hicks presents our qualitative data on the specific challenges of LDC related to distance (e.g., the physical and financial toll of traveling). Last, Minahan examines service use and service needs and findings highlight discrepancies between service use and needs among LDCs. Pruchno brings her extensive experience in caregiving research to discuss study findings. The symposium provides insights into a study field effort involving LDCs and the unique experiences of LDCs.