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. Author manuscript; available in PMC: 2020 Jan 1.
Published in final edited form as: Pediatrics. 2019 Jan;143(1):e20173562. doi: 10.1542/peds.2017-3562

Table 2:

Study Population: Family Characteristics

Family Characteristics N %

 Primary Insurer
  Medicaid Fee for Service 153 74%
  Medicaid Managed Care 21 10%
  Commercial 26 13%
  Self-Pay 5 2%
  missing 3 1%
 Household Income (%FPL)
  <100% 47 23%
  100-150% 32 15%
  151-250% 4 2%
  >250% 53 25%
  missing 72 35%
 Social Stressors
  Receive food assistance 65 31%
  PIPP/HEAP 53 25%
  Single parent household 46 22%
  Rely on public transportation 17 8%
  Receive housing assistance 16 8%
 Residence
  Miles from center-median(range) 208 20.9(0-135)
Median(range)
child-months
 Status in Program as of 10/1/2015
  Active 163 16.5(4.4-34.6)
  Discharged 29 6(0-32)
  Deceased 10 4.2(1.4-19.3)
  Missing 5
  Overall 208 14.8(0-34.6)

ADLs-activities of daily living, FPL-Federal Poverty Level, PIPP/HEAP-Percentage of Income/Home Energy Assistance Plan

a

Respiratory support device: ventilator, CPAP or BiPAP

b

Other technology: central line, urinary catheter, intrathecal baclofen pump, vagal nerve stimulator, or other

c

Gross Motor Function Classification: Palisano et al. (1997) Dev Med Child Neurol 39:214-23