Abstract
Peer support is recommended by the World Health Organization for the initiation and continuation of breastfeeding, and this recommendation is included in United Kingdom (U.K.) guidance. There is a lack of information about how, when, and where breastfeeding peer support was provided in the U.K. We aimed to generate an overview of how peer support is delivered in the U.K. and to gain an understanding of challenges for implementation. We surveyed all U.K. infant feeding coordinators (n = 696) who were part of U.K.‐based National Infant Feeding Networks, covering 177 National Health Service (NHS) organisations. We received 136 responses (individual response rate 19.5%), covering 102 U.K. NHS organisations (organisational response rate 58%). We also searched NHS organisation websites to obtain data on the presence of breastfeeding peer support. Breastfeeding peer support was available in 56% of areas. However, coverage within areas was variable. The provision of training and ongoing supervision, and peer‐supporter roles, varied significantly between services. Around one third of respondents felt that breastfeeding peer‐support services were not well integrated with NHS health services. Financial issues were commonly reported to have a negative impact on service provision. One quarter of respondents stated that breastfeeding peer support was not accessed by mothers from poorer social backgrounds. Overall, there was marked variation in the provision of peer‐support services for breastfeeding in the U.K. A more robust evidence base is urgently needed to inform guidance on the structure and provision of breastfeeding peer‐support services.
Keywords: breastfeeding, breastfeeding support, breastfeeding training, health professional, infant feeding, survey methods
1. INTRODUCTION
The World Health Organization recommends that infants should be exclusively breastfed for the first 6 months of life, with breastfeeding continuing alongside complementary foods until at least 2 years of age (World Health Organization, 2014). One way in which it is recommended that breastfeeding is supported is through the use of peer counsellors in the community (World Health Organization, 2015). Peer support is one model of peer counselling, developed by the La Leche League in the 1950s. It has been defined as “support offered by women who have received appropriate training and either have themselves breast fed or have the same socioeconomic background, ethnicity, or locality as the women they are supporting” (Jolly et al., 2012, p. 2). A systematic review and meta‐analysis of randomised controlled trials of breastfeeding peer support has highlighted heterogeneity within peer‐support models (Jolly et al., 2012). To date, there is a dearth of peer‐reviewed literature reporting how peer support is provided in routine practice. Within the U.S. Special Supplemental Nutrition Program for Women, Infants and Children (WIC) programme, which is available to mothers on a low income, a standardised training programme (Loving Support©) was provided. However, there was variation in service delivery including the availability of peer support, ongoing support provided, and intended schedule of contacts with mothers (United States Department of Agriculture Food and Nutrition Service, 2015). The authors, however, note that programmes delivered across the United States have become more homogenous over time, showing the potential for breastfeeding peer support to become more standardised.
Within the U.K., breastfeeding rates are particularly low: Less than 1% of mothers exclusively breastfeed for 6 months, and this is lower among mothers who are younger, less affluent, and of White British ethnicity (McAndrew et al., 2012). The U.K. body, which recommends health treatments to commissioners in England, the National Institute for Health and Clinical Excellence (NICE), recommends the provision of a peer‐support service as part of the strategy to increase breastfeeding rates in the U.K. However, it does not specify a model of service provision (NICE, 2008). Little is currently known about how peer support is provided, or the content and reach of such services in the U.K. An understanding of current practice is required to assess what can feasibly be delivered, the challenges for implementation, and to inform service development.
The U.K. is divided into four nations (England, Scotland, Wales, and Northern Ireland), each of which has devolved power to deliver health care. To date, there have been three studies that investigated how peer support was provided in the U.K. (Britten, Hoddinott, & McInnes, 2006; Dykes, 2005; Tedstone, 2013). These were (a) a synthesis of evaluations of process and acceptability from a range of heterogeneous projects in England that had received government funding in order to increase breastfeeding, including 26 breastfeeding peer support projects (Dykes, 2005), (b) a “multiple case study” comprising all nine breastfeeding peer support projects operating in Scotland in 2002 (Britten et al., 2006), and (c) a survey of all National Health Service (NHS) Health Boards focusing on breastfeeding peer support and breastfeeding groups in Wales in 2013 (Tedstone, 2013). These reports highlighted heterogeneity within and between U.K. nations, including approaches to recruiting peer supporters, marketing, and delivery of services and a lack of standardised record keeping. There was significant variation in how peer support was provided, to whom and in what circumstances, and in the relationship between peer supporters and health professionals. Reductions in funding as a result of public health being moved outside of the NHS in England and austerity measures (Iacobucci, 2016) may have affected English and Scottish services because these evaluations were completed over a decade ago. Currently, only Welsh and Scottish services have been comprehensively mapped, and there has been no comparable mapping of services provided in England or Northern Ireland.
Our research aimed to describe the coverage of breastfeeding peer‐support services and breastfeeding support groups, models of provision, and facilitators and barriers to implementation.
Key messages.
Breastfeeding peer supporters were available in 56% of NHS organisation areas and breastfeeding support groups in 89% of NHS organisation areas. However, areas were often large, and thus within these areas, women may still face issues accessing peer supporters or breastfeeding support groups.
There was considerable variation in the content and service delivery of peer‐support services for breastfeeding across the U.K.
Infant feeding coordinators reported that integration between peer‐support services and NHS health professionals was increased by clear roles and responsibilities, and visibility to health professionals, including through shared working.
Many services aimed to meet the needs of poorer mothers but did not attract them as service users.
Breastfeeding support groups and peer‐support services were not routinely keeping records of service use.
2. METHODS
2.1. Participants
Our sample comprised infant feeding coordinators who were members of one of four national infant feeding coordinator networks: (a) the National Infant Feeding Network (serving England), (b) the Scottish Infant Feeding Adviser Network, (c) the All Wales Infant Feeding Coordinators Forum, and (d) the Northern Ireland Breastfeeding Coordinators Forum (total n = 696 individuals) within 177 NHS organisations, which provided maternity or community maternity services. We believe that the Networks included all individuals who undertook an infant feeding coordinator role in the U.K. but also included some other health professionals and academics with an interest in infant feeding.
We raised awareness of this survey to potential respondents at a plenary address at the annual UNICEF U.K. Baby Friendly Initiative conference (November 27, 2014), which was attended by the majority of U.K. infant feeding coordinators. An invitation, which asked infant‐feeding coordinators to complete the survey or to pass the link to a colleague if they did not have the appropriate knowledge to answer, was sent to members of the sample via the four Network email distribution lists in December 2014. Follow‐up emails, thanking those who had already responded and reminding nonresponders to take part, were sent to all of those originally contacted 1 week and 12 days after the original invite.
2.2. Design and instrument
A cross‐sectional online survey was supplemented by searches of all NHS organisation websites. We adapted a pre‐existing survey instrument that was developed for an evaluation of breastfeeding peer support in Wales (Tedstone, 2013). We invited three infant feeding coordinators from the U.K. to complete a pilot of the online questionnaire and provide feedback to us on the process and content of questions; all three took part. In response to the findings of this pilot, we amended our participant information to clarify that respondents may need access to service level data in order to complete the survey. As all questions remained the same, data obtained in the pilot phase were included in the main analysis.
Respondents completed a questionnaire consisting of a combination of closed‐ and open‐text questions. Questions examined how breastfeeding peer support was organised in the geographical area for which respondents had responsibility, with a focus on breastfeeding peer support and breastfeeding support groups (see Table 1). The chair of the Wales Research Ethics Committee 3 stated that this survey constituted an audit of current service provision and did not require ethical approval.
Table 1.
Overview of survey questions
| Theme | Subquestion topics |
|---|---|
| Demographics | Nation; NHS trust; number of births in area; staff roles; respondent role descriptiona |
| Breastfeeding support groups | Number of groups; who organises groups; presence of records on attendance, support provided, problems with feeding, referrals, and other recordsa; other thoughts on support groupsa; funding for non‐NHS breastfeeding groupsa |
| Training peer supporters | Number of trained peers; what training is provided; who delivers traininga, additional training for peer supportersa |
| Peer support | Recruitment of new peers; supervision of peers; activities peer supporters are engaged in integration of peer support with NHS servicesa; accessibility of peer support for mothers from poorer backgroundsa; other thoughts on peer supporta |
| Other non‐NHS support for breastfeeding | Details of support available; provider of support; third sector activities; presence of active breastfeeding counsellors |
Note. NHS = National Health Service.
Open‐text question was asked, either alongside a closed question or following a question on a related topic.
2.3. Data collection
Survey data were collected online only, using a purpose built survey hosted on a secure server at the South East Wales Trials Unit, Cardiff University. Respondents viewed an information sheet and consented to take part in the survey via the online platform prior to taking part in the study. In addition, we searched all 177 NHS organisation websites during July 2016 to obtain data on the presence of breastfeeding support groups and breastfeeding peer supporters to provide data where we did not receive a response to the survey, and to validate survey data.
2.4. Data analysis
Descriptive statistics (frequencies, percentages, and medians, where appropriate) summarising responses were generated from closed questions using IBM SPSS 20. Open‐text responses were coded by one researcher thematically facilitated by NVivo 10. Themes were deductively and inductively generated and included key areas of interest already identified by questions (e.g., training peer supporters) and new themes, such as staffing levels and financial issues.
2.5. Spatial data
The map of U.K. health service providers was derived from multiple sources. The data for Wales (Local Health Boards, 2015) and England (Primary Care Organisations, 2011) were downloaded from the Office for National Statistics geoportal (Office for National Statistics, 2017). Data for Scotland (Health boards) were downloaded from the Scottish Spatial Data Infrastructure Metadata Catalogue. Data for Northern Ireland (Health and Social Care Boards) were created from boundary data downloaded from the Ordnance Survey Northern Ireland. Data were downloaded as shapefiles and combined using QGIS Essen 2.14.3 (QGIS Development Team, 2016).
3. Results
The findings are structured in four sections: (a) a description of respondents, (b) the management and delivery of breastfeeding peer‐support services, (c) management and delivery of breastfeeding support groups, and (d) the impact of resources on service delivery.
3.1. Respondents
A total of 136 responses with usable data were received (response rate 19.5%), representing 58% of NHS organisations (see Table 2). Forty‐seven respondents stated that they were infant feeding coordinator, a further 10 were breastfeeding coordinators, and the majority of other respondents had job titles that focused on infant feeding; no responses were received from those reporting to be academics. Within the 136 responses, there were 34 multiple responses within areas, affecting 21 NHS organisations. Seven instances of this were within England where provision was split between the NHS organisation and another provider, such as the local authority. These multiple responses were retained in the dataset as they provided different perspectives in response to open‐text questions. Accordingly, all data presented (counts and percentages) are at individual level rather than NHS organisation area level unless specified.
Table 2.
Sample and response rate
| Nation | England | Scotland | Wales | Northern Ireland | Total |
|---|---|---|---|---|---|
| Individual level | |||||
| Individual invitations | 617 | 40 | 19 | 20 | 696 |
| Individual responses | 113 | 11 | 8 | 4 | 136 |
| NHS trust level a | |||||
| NHS trusts in sample | 151 | 14 | 7 | 5 | 177 |
| NHS trusts responses (% of trusts invited) | 68 (45%) | 9 (64%) | 7 (100%) | 2 (40%) | 86 (49%) |
| Number of additional trusts covered by non‐NHS responses | 16 (11%) | — | — | — | 16 (9%) |
| Total response within NHS trust areas | 84 (56%)a | 9 (64%) | 7 (100%) | 2 (40%) | 102 (58%) |
Note. NHS = National Health Service.
Nine participants from England did not indicate which NHS Trust their response is related to.
The combined findings of the survey and NHS organisation online search showed that breastfeeding peer support was available in 99 (56%) NHS organisation areas and breastfeeding support groups in 157 (89%) NHS organisation areas. Neither breastfeeding peer support nor breastfeeding support groups were available in five areas (3%), although informal provision not recorded on NHS organisation websites may have been offered in these areas. There was a high degree of overlap, with 86 (87%) areas that had breastfeeding peer support also providing breastfeeding support groups. Figure 1 illustrates breastfeeding support (groups, peer support, both groups and peer support, or neither groups nor peer support) provided throughout the U.K., with Figure 2 providing a detailed map of London.
Figure 1.

The presence of breastfeeding support groups and breastfeeding peer supporters in the UK
Figure 2.

The presence of breastfeeding support groups and breastfeeding peer supporters in London, UK
Throughout the rest of this paper, the findings are reported only in relation to survey data and do not include information from the online searches.
3.2. Breastfeeding peer‐support services
Infant feeding coordinators were most often involved in managing peer supporters (see Table 3), although 30 respondents highlighted that responsibility was shared by more than one individual, and sometimes voluntary groups were part of a team delivering the service: “(voluntary organisation 1) and (voluntary organisation 2) are commissioned to deliver peer‐support alongside direction from IFC's” (PID 242). A multistrategy approach, involving a range of health and social care professionals and peer supporters across various locations, was reported in recruiting new peer supporters in 89% of responses. Breastfeeding groups and breastfeeding peer supporters were most often involved in recruiting new peer supporters. The median number of peer supporters who had been trained in each area since the service began was 50 (range 1–250), with a median of 15 provided with initial training over the previous 12‐month period (range 0–64). Respondents were asked to describe who provided training in an open‐text box. The third sector was the most popular provider for initial training of peer supporters (including the Breastfeeding Network and the National Childbirth Trust), with infant feeding coordinator, NHS, and community centre staff also playing a leading role. Some respondents (n = 45; 33%) provided further details regarding initial training. Initial training appeared to vary in relation to content and duration; a minority of respondents stated that their course had been accredited:
(name of awarding body) accredited training provided by (children's centre) staff. This is divided into 3 units covering promoting and supporting breastfeeding and following the principles of the Baby Friendly Initiative. This is Level 1, but peer‐supporters can … continue to Level 2. (PID 387)
However, some respondents noted that training was not currently being provided: “No training provided currently … this was the role of a Specialist Health Visitor who has since left” (PID 258).
Table 3.
Descriptive statistics
| Topic area question | Closed‐text response options | Yes (%) |
|---|---|---|
| Breastfeeding peer‐support services | ||
| Is there a breastfeeding peer‐support service in your area? (n = 118) | — | 109 (92%) |
| Who has responsibility for managing (or supporting) peer supporters? (Tick all that apply; n = 109) | Infant feeding coordinator | 48 (44%) |
| Local health professional | 36 (33%) | |
| Other | 65 (60%) | |
| How are new peer supporters recruited in your area? (Tick all that apply; n = 103) | At breastfeeding groups | 79 (77%) |
| By local midwives | 45 (44%) | |
| By local health visitors | 69 (67%) | |
| By local children's centre staff | 68 (66%) | |
| By local peer supporters | 76 (74%) | |
| Other | 32 (31%) | |
| Do you know who provides training for the peer supporters? (n = 109) | — | 108 (99%) |
| Is there any additional training (beyond initial training) provided for peer supporters? (n = 107) | — | 70 (65%) |
| What way are peer supporters supported? (tick all that apply; n = 106) | Regular local training updates | 69 (65%) |
| Other training updates | 34 (32%) | |
| Attending external conferences | 40 (38%) | |
| Regular one‐to‐one meetings with manager | 45 (42%) | |
| Regular group updates with manager | 51 (48%) | |
| Other | 0 (0%) | |
| None of these | 4 (4%) | |
| Don't know | 8 (8%) | |
| What activities are peer supporters in your area engaged in? (Tick all that apply; n = 105) | Attending breastfeeding groups | 97 (92%) |
| Organising breastfeeding groups | 45 (43%) | |
| Home visits to support mothers | 43 (41%) | |
| Hospital visits to support mothers | 56 (53%) | |
| Antenatal clinic visits | 34 (32%) | |
| Attending “preparation for parenthood sessions” | 57 (54%) | |
| Work on the postnatal ward | 71 (68%) | |
| Work in a community setting | 60 (57%) | |
| Other | 15 (14%) | |
| Do you think that breastfeeding peer support provided in your area is well integrated with the breastfeeding support work that health professionals do? (n = 107) | Not at all well integrated | 7 (6%) |
| Not well integrated | 12 (11%) | |
| Somewhat not | 21 (20%) | |
| Somewhat well | 22 (21%) | |
| Well integrated | 29 (27%) | |
| Very well integrated | 16 (15%) | |
| Is the breastfeeding peer support provided in your area accessible to breastfeeding mothers from poorer social backgrounds? (n = 107) | Not accessed | 2 (2%) |
| Moderately not accessed | 6 (6%) | |
| Somewhat not accessed | 17 (16%) | |
| Somewhat accessed | 22 (21%) | |
| Moderately accessed | 17 (16%) | |
| Readily accessed | 43 (40%) | |
| Breastfeeding peer support groups | ||
| Are there any breastfeeding groups in your area? (n = 128) | — | 124 (97%) |
| If you have peer support groups, how many groups are currently running? (n = 121) | 1–3 | 13 (11%) |
| 4–7 | 35 (29%) | |
| 8–10 | 24 (20%) | |
| >10 | 49 (40%) | |
| Are registers of attendees kept at breastfeeding groups in your area? (n = 123) | — | 92 (75%) |
| Are notes on individual mothers who have problems kept at breastfeeding groups in your area? (n = 118) | — | 34 (29%) |
| Are notes on individual mothers who receive support kept at breastfeeding groups in your area? (n = 117) | — | 31 (26%) |
| Are notes on individual mothers who are referred elsewhere for additional support kept at breastfeeding groups in your area? (n = 117) | — | 32 (27%) |
| Other | ||
| Has there been a review, evaluation, or report of the breastfeeding support service in your area in the past 5 years? (n = 107) | — | 66 (62%) |
| Are there lay/voluntary breastfeeding groups in your area that are not funded by the NHS or local authority? (n = 115) | — | 62 (54%) |
| Are there breastfeeding counsellors that regularly receive referrals from health professionals in your area? (n = 68) | — | 31 (46%) |
Note. NHS = National Health Service.
In addition to initial training, ongoing training or support was reported to be provided by 70 respondents (65%), although eight respondents (7%) did not know if additional training was provided. In two thirds of responses where ongoing support was provided (44, 63%), more than one type of support, such as regular one‐to‐one meetings with a manager or regular local training updates, was provided. Some participants described the contents of ongoing support or training, including “Regular supervision and ongoing training to maintain the quality of their work. They also undertake a breastfeeding practical skills assessment and complete additional (training) such as safeguarding” (PID 387).
However, many respondents provided more vague responses, including “ongoing training” (PID 270), “monthly updates” (PID 389), “additional courses” (PID 185), and “mandatory training” (PID 315). Although joint training with health professionals was reported to be available in some areas, it appeared to be more accessible in some organisations than others. There were practices of mandatory joint training in some areas, for example, relating to safeguarding and joint seminars with an aim of encouraging shared working in others: “We aim to provide 1 joint seminar (per year) that PSs & HCP's are invited to attend to promote cooperative working” (PID 396). In other areas, permission to attend joint training was given, but training was not mandatory: “can attend joint training with midwives if they want to come” (PID 343).
The main activity that peer supporters were involved in was attending (rather than organising) breastfeeding groups, followed by working on the postnatal ward. In general, delivery seemed to be more focused on group support with one‐to‐one forms of delivery less common. The majority (n = 129, 95%) of respondents reported that more than one activity was undertaken by peer supporters in their area. In some areas, peer supporters saw mothers both antenatally and postnatally (n = 68, 50%), but some saw mothers just postnatally (n = 39, 29%), and one respondent reported only antenatal contact. The comprehensiveness of services was described throughout in open‐text responses, with some areas viewed as having a complete model of service delivery:
The Peer‐support Service is a 7 days service 356 days of the year. Team of 10 members, total 7.5 WTE from 9–5 man a 24 telephone support line. The Service is integrated into (child health care), works alongside Health Visitors, School Nurses, and support staff. The service delivers Health Promotion sessions within Primary schools, They provide bedside support within the three feeder hospitals, Provide support groups with Children's Centre Groups. It is an excellent service provided by a dedicated team. (PID 348)
In contrast, some services were not able to provide a comprehensive service, which was attributed to funding: “I have one breastfeeding support worker who is employed by (the NHS organisation), this isn't enough for a birth rate of 2500. We are currently writing a business case for 10 x paid peer‐support workers …” (PID 275). Although participants were not asked about mothers' views of breastfeeding peer support, 12 respondents noted that the service was valued by mothers:
Those mothers who come into contact with the volunteers have nothing but praise for them and they are wonderful ladies who give a lot of their own time, for free, with no reward, but the joy of helping a new mother breastfeed her baby, they are wonderful, I only wish we could give them something back. (PID 312)
The majority of respondents (n = 67, 63%) felt that peer support was well integrated with other NHS services, such as midwifery and health visiting services. Where respondents provided an explanation for this, the successful integration was most often attributed to clear guidance on roles and responsibilities (n = 15, 11%), shared working practices or locations (n = 14, 10%), and a high degree of trust between health professionals and peer supporters (n = 9, 7%):
We have information sharing protocol and robust pathways in place, peer‐support has become valued due to the length of time it has been in place, staff and mothers value the service case studies etc and evaluation. (PID 267)
The absence of these factors was felt to result in low integration:
Despite countless attempts to explain to (health visiting) staff the roles and responsibilities and limitations of a peer‐supporter and inform them of the groups available in each area, there is still a reluctance to advertise and recommend the service. I think as the peer‐supporters are not health professionals working as (NHS) employees the Health Visitors do not feel confident of their role in the community and understand what peer‐support is about. (PID 231)
Peer support was felt to be accessed by mothers from poorer social backgrounds by (n = 105) 77% of respondents. The majority of these provided an open‐text response as to why they felt their service was accessible, including elements such as support on postnatal wards, location of groups (including links with children's centres and other community organisations), and one‐to‐one home visits: “Groups held in the more hard to reach areas, mothers from poorer backgrounds receive tailored support and home visits work closely with Family Nurse Partnership. We have an excellent breastpump loan scheme” (PID 267). However, the open‐text responses to this question made it clear that respondents considered very different levels of accessibility in their responses. Some participants noted that breastfeeding groups were provided in areas of deprivation and rated this at the highest level of accessibility regardless of numbers attending: “We have made sure the BFPS programmes have been commissioned in the area of greatest need” (PID 289). By contrast, other respondents noted that peer support was offered to all on postnatal wards, or that groups were held in areas of deprivation but offered a lower score:
I think it is difficult for mums from poorer social backgrounds to access any support groups. Maybe due to preconceived ideas of what a breastfeeding support group would be like. I think it also that breastfeeding is less common in poorer social groups so unlikely they would know anyone or have someone to attend the group with. (PID 229)
Barriers to accessibility included lack of attractiveness to women from deprived areas, inadequate numbers of peer supporters, being reactive as opposed to proactive, and not being able to provide home visits. However, elements of good practice in relation to accessibility were often informal and thus difficult to evaluate:
The volunteer peer‐support service is targeted, the volunteers are active in areas of the borough with low initiation and continuation of breastfeeding, from talking to the volunteers the majority of women access them informally (particularly) women from poorer social backgrounds, this may be through, social networking, conversations at the school gate, at the supermarket, at the hairdressers, whilst the volunteers are attending other groups at the local children's centre with their children. This information is difficult to capture. (PID 253)
3.3. Breastfeeding support groups
There was variation in the number of groups occurring within each NHS organisation, which did not appear to be associated with the number of births in the area. Respondents stated that NHS, children's centre staff, and trained peer supporters most commonly organised breastfeeding support groups. Breastfeeding support groups reportedly took place in a broad range of settings including community venues (cafe and garden centre cafe) and children's centres alongside health visitor (weighing) clinics. It was reported 22 times that some groups ran as “baby cafes,” “first friends,” or generic “parenting support groups” with a focus on breastfeeding rather than explicitly as breastfeeding support groups. The comprehensiveness of record keeping at breastfeeding groups varied, and this included reports of variations within NHS organisations, as well as between organisations.
3.4. Financial issues
The main theme interwoven throughout the open‐text responses was the importance of financial support for community breastfeeding services. This was often referred to as problematic, with some services continuing to face a reduction in available funding:
Funding has been restricted the next course that will be provided is being joint funded by the local authority and NHS Trust charitable funds. Funding for the future is not clear and the breastfeeding supporters are looking at running money raising events to fund future courses. (PID 274)
Some respondents from England noted that their services had previously been funded through NHS community budgets and that NHS hospital budgets were not continuing to fund peer‐support services following the move of public health from the NHS to local government in England:
(County) has had an extensive programme of Peer‐support over the last 8+ years. This was facilitated by (voluntary sector organisation) who received core funding from Public Health from 2008–2013 … (County) also had a programme of proactive contact from a Peer‐supporter within 72 hours of giving birth in certain localities, funded by DoH. However, this project was discontinued and funding for (voluntary sector organisation) withdrawn, leading to a situation in 2014 where Peer‐support numbers are dwindling. Enthusiasm remains high with over 50 PS attending a (voluntary sector organisation) conference in October 2014. (PID 185)
The reported shortfall affected finances to train peer supporters, to pay them travel expenses, and the resources available to allow health professionals to supervise peer supporters. In a small number of instances, it was reported that services had been decommissioned. In a minority of areas, respondents reported that peer supporters were paid for their time, but in most services, funds were not available to pay peer supporters. This impacted on the quality of service provision: “It would be wonderful to actually have paid (peer) supporters. We have quite a high turnover because they need to get back to paid employment” (PID 283). Several respondents noted that they were attempting to secure funding from charitable trusts or their own employers by writing business cases, and this was often to provide a basic service (supervisor time and travel expenses for peer supporters), rather than to pay for peer supporters' time. Some respondents noted that peer‐support services were performing highly when compared against the small financial inputs they received:
We have been re‐commissioned by Public Health to train more peer‐supporters early next year and hope to get our training accredited. We work on a VERY small budget (£10K) for each cohort including training, materials and resources and ongoing support. (PID 233)
However, feelings of frustration regarding lack of investment were also apparent:
my feeling is that the peer‐support service could be better funded … the (NHS organisation) has paid infant feeding support workers working on the wards. The children's centre champions provide this service to some degree however with local efficiency savings their time is stretched with competing priorities. We are basically doing the best that we can with the resources that we have. (PID 253)
By contrast, in a minority of areas, it was reported that investment was being made, or remade, in peer‐supporter coordinator roles in areas with no service.
4. DISCUSSION
Peer support for breastfeeding is recommended as part of strategies to increase breastfeeding by the World Health Organization (World Health Organization & UNICEF, 2003), and in the U.K. by NICE (NICE, 2008). However, the guidance is not clear as to what “peer‐support for breastfeeding” should entail. To date, a model of peer support that is effective in improving breastfeeding rates has not been established within the U.K. (Jolly et al., 2012). Unsurprisingly within this context, our U.K.‐wide survey of 136 U.K.‐based infant feeding coordinators supplemented with searching of NHS organisation websites found wide variation in service provision, consistent with previous audits of U.K. service provision (Britten et al., 2006; Dykes, 2005; Tedstone, 2013). We identified that peer supporters were available in 56% of NHS areas, showing that there is a foundation for further development of breastfeeding peer support in over half of U.K. NHS organisation areas. However, our survey was aimed at respondents with knowledge of large NHS organisation areas, and respondents noted variation in service within those areas. As such, it would be inappropriate to define the presence of some peer‐supporter services or breastfeeding groups in an area as the presence of services throughout each locality in that area.
High‐quality breastfeeding peer‐support training can significantly increase knowledge of breastfeeding (Kempenaar & Darwent, 2013). However, respondents reported variability in training peer supporters, including the content of courses and the use of joint training with health professionals in some areas and external training provided by the third sector in others. There did not appear to be a uniform standards for training of peer supporters, or competencies they should attain, across the U.K. This is in contrast to provision across WIC agencies in the United States, where a single model of training has been developed, as part of the Loving Support © programme (United States Department of Agriculture Food and Nutrition Service, 2015), including minimum competencies for peer supporters. However, despite similarities in training package, provision was still variable across the 50 states involved in the WIC programme, showing that further guidance is needed to provide equitable services. Ongoing training and supervision for peer supporters appeared highly variable, and this is likely to have an impact on service quality and delivery.
Our survey provides insight into areas of perceived best practice and also where practice may unhelpfully vary, both of which can therefore inform the development of best practice.
First, regarding integration between peer‐support services and NHS health professionals, clear roles and responsibilities, and visibility to health professionals, including through shared working, were found to enhance cohesion. These factors are generally found to increase compliance to local guidelines in health care, through the generation of shared understandings regarding roles and boundaries (Lipsky, 2010), and thus clear guidance should be considered in the development of peer‐support services. Second, it was clear that although the majority of health professionals reported on a Likert‐like scale that their service was accessible to poorer mothers, there was variation in what that meant in practice, with many services aiming to meet the needs of poorer mothers not attracting them as service users. Although peer support was viewed as valuable by mothers who attended (Thomson, Crossland, & Dykes, 2012), perceptions of breastfeeding groups and breastfeeding peer supporters as a source of pressure to breastfeed urgently require addressing (Hunt and Thomson, 2016). Further work should be undertaken by breastfeeding services to reach out to mothers from deprived areas, to prevent a further increase in health inequalities (Marmot et al., 2010). Third, breastfeeding support groups and peer‐support services were not routinely keeping records of service use. Although it may appear at odds with the ethos of mother‐to‐mother support to keep records, the use of standardised records across the U.K. would enable effective monitoring of service usage. If this is evidenced, services may be in a stronger position to argue for financial investment in the future.
The most common theme found in open‐text responses was the challenge of running services with limited financial support, although this was not experienced equally by all services and a minority of services reported recent investment. Linked to this financial shortfall, some services reported challenges of recruiting, training, and ongoing supervision for peer supporters. If the U.K. is to see an increase in breastfeeding duration, and accordingly to save on health care costs (Renfrew et al., 2012), further investment in establishing the evidence base for effective breastfeeding support services must be made. To date, there is no peer‐support model that has been found to be effective at increasing breastfeeding within a U.K. context. However, it may be that the models of peer support contained within trials that failed to establish efficacy did not provide an adequate dose of peer support (Jolly et al., 2012), and existing services may not prioritise utilising scarce resources in the most efficient way (Rozga, Kerver, & Olson, 2014). Further research should be undertaken to investigate new models of breastfeeding support, which are theoretically robust and have been developed in conjunction with mothers and health professionals, to ensure acceptability and feasibility of delivery (Craig et al., 2008).
This study is the first attempt to map and describe the provision of peer support for breastfeeding throughout all four nations of the U.K. We received responses from around the U.K. and achieved a response rate that covered 58% of NHS organisation areas. We supplemented survey data with online searches to enable us to describe the current provision of breastfeeding peer support and breastfeeding support groups among nonresponders to provide a map of coverage across the U.K. The survey questions varied between asking for factual information, such as the numbers of groups, and subjective views of service provision, such as how accessible services were to women from deprived backgrounds, and the interpretation of meaning may have varied between respondents. We did not provide participants with a definition for the terms peer support and breastfeeding group, and this may have also led to variations in meaning between participants. Furthermore, these questions are theoretically susceptible to bias. The survey was open for a period of 3 weeks in December 2014. We acknowledge the biases inherent with a low individual response rate and that we may have received further responses if the online survey was open for a longer period. We were also made aware that two respondents were unable to access our online survey from their NHS computers. Although we provided support that enabled those respondents to take part, it may be that other potential respondents did not contact us and were thus excluded from the survey. Our data provide clear learning about best practice in terms of service design, but these models of more comprehensive training and support for peer supporters, integration with health professionals, and accessibility to poorer mothers have not been tested for effectiveness, and there is thus a limited evidence base on which to guide service development.
To conclude, there was no standardised provision of breastfeeding peer support around the U.K., and services were regularly adapted in line with funding available, rather than number of births or perceived need. Evidence‐based guidance is urgently needed to inform the provision of equitable breastfeeding peer‐support services.
CONFLICTS OF INTEREST
Billie Hunter is Royal College of Midwives Professor of Midwifery. Sally Tedstone was the National Breastfeeding Co‐ordinator for Wales at the time of writing. The remaining authors declare that they have no conflicts of interest.
CONTRIBUTIONS
AG commented on drafts of the survey instrument, oversaw the creation of the online survey tool, analysed the qualitative data, undertook some additional analysis of the quantitative data, and wrote this manuscript. KM commented on drafts of the survey instrument, undertook analysis of the quantitative data, and revised this manuscript. ST developed the first version of the survey instrument, contributed to study design, recruited participants via the four Infant Feeding Networks, helped to contextualise research findings, and revised this manuscript.GG undertook analysis of the joint survey and online findings, created the figures, and revised this manuscript. LC managed the Mam‐Kind study, commented on drafts of the survey instrument and interpretation of findings, contributed to the website search, and revised this manuscript BH contributed to study design, commented on drafts of the survey instrument and interpretation of findings, and revised this manuscript. JS was a clinical coinvestigator on the study; contributed to survey development and methodology, and interpretation of findings; and revised this manuscript. RP contributed to study design, commented on drafts of the survey instrument and interpretation of findings, and revised this manuscript. AB contributed to study design, commented on drafts of the survey instrument and interpretation of findings, and revised this manuscript. MR contributed to study design, commented on drafts of the survey instrument and interpretation of findings, and revised this manuscript. SP oversaw the entire Mam‐Kind study, including this survey component, including design, instrument, analysis, and write up.
ACKNOWLEDGMENTS
The authors would like to thank the participants for their time in completing this survey. We also wish to acknowledge members of the Mam‐Kind study team who contributed to the design of the survey instrument or interpretation of the data, including Laura Merrett, Heather Trickey, Avril Jones, Dawn Burrows, Deb Fitzsimmons, Joanna Lourenco, Mary Whitmore, Nicki Symes, Nina Gobat, Rebecca Playle, Sian Regan, and Steve Rollnick. The views expressed are those of the author and not necessarily those of the NHS, the NIHR or the Department of Health.
Grant A, McEwan K, Tedstone S, et al. Availability of breastfeeding peer support in the United Kingdom: A cross‐sectional study. Matern Child Nutr. 2018;14:e12476 10.1111/mcn.12476
Footnotes
Within England, NHS organisations are known as NHS Trusts. Within Wales, Northern Ireland, and Scotland, NHS organisations are known as Health Boards. Within this paper, we use the term NHS organisations to mean both NHS Trusts and Health Boards.
Where participants have used abbreviations in their responses, these have been reported in full for clarity.
Specialist midwives and nurses for young mothers from deprived areas.
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