Skip to main content
Canadian Journal of Public Health = Revue Canadienne de Santé Publique logoLink to Canadian Journal of Public Health = Revue Canadienne de Santé Publique
. 2003 Nov 1;94(6):408–412. doi: 10.1007/BF03405075

Literacy in Primary Care Populations

Is it a Problem?

June L Smith 12,32,, Jeannie Haggerty 22
PMCID: PMC6979911  PMID: 14700237

Abstract

Background

Almost half of Canadians experience difficulty using print media, according to the 1994 International Adult Literacy Survey. Our objectives were to estimate the prevalence of low-literacy patients in our practice, to determine whether reading grade level is associated with self-perceived health status in primary care, and to evaluate the reading difficulty of commonly used patient education pamphlets.

Methods

We surveyed a random sample of 229 patients aged 18 to 85 years presenting for scheduled and walk-in care. Main outcome measures were reading ability as estimated by word decoding skill with the validated Rapid Estimate of Adult Literacy in Medicine (REALM) and self-perceived health status using COOP/WONCA functional health measures. We assessed the reading difficulty of 120 commonly used patient education pamphlets using the Simple Measure of Gobbledygook (SMOG) formula.

Results

The prevalence of low-literate patients was 9%. Poor reading ability in English was most likely among patients under 45 years of age not having completed high school, and among those whose maternal language was neither English nor French (immigrants). REALM scores and self-perceived health were weakly correlated but not significant statistically. The mean reading grade level of pamphlets was grade 11.5 (SD: 1.5). Seventy-eight percent of pamphlets required at least a high school reading level.

Conclusion

Literacy levels were higher than expected in our patient population; this finding may be due to the rapid assessment tool used, which may have underestimated the difficulty of using print media. Clearly, the vast majority of commonly used patient education materials would not meet the needs of low-literate patients, who may be more likely to experience poorer health. Providers need to be sensitive to the reading limitations of patients and patient education materials should be written at a lower reading level.

Footnotes

Acknowledgements: Funded by the Research and Development Fund of the Herzl Family Practice Centre. The authors thank Dr. Roland Grad for his assistance with the manuscript and his insights into the inner workings of the Herzl Family Practice Centre; the Herzl Family Practice Centre Support Staff for their collaboration with the study; Isabel Pereira for assisting with data management; and Drs. Ann Macaulay and Rick Mah for their timely and valuable insights.

References

  • 1.Ontario Public Health AssociationFrontier College. Literacy and Health Project, Phase 1: Making the World Healthier and Safer for People Who Can’t Read. Toronto: Ontario Public Health Association; 1990. [Google Scholar]
  • 2.Baker DW, Parker RM, Williams MV, Clark WS, Nurss J. The relationship of patient reading ability to self-reported health and use of health services. Am J Public Health. 1997;87:1027–30. doi: 10.2105/AJPH.87.6.1027. [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 3.Davis TC, Meldrum H, Tippy PKP, Weiss BD, Williams MV. How poor literacy leads to poor health care. Patient Care. 1996;30:94–127. [Google Scholar]
  • 4.Weiss BD, Blanchard JS, McGee DL, Hart G, Warren B, Burgoon M, et al. Illiteracy among medicaid recipients and its relationship to health care costs. J Health Care Poor Underserved. 1994;5:99–111. doi: 10.1353/hpu.2010.0272. [DOI] [PubMed] [Google Scholar]
  • 5.Brez SM, Taylor M. Assessing literacy for patient teaching: Perspectives of adults with low literacy skills. J Adv Nurs. 1997;25:1040–47. doi: 10.1046/j.1365-2648.1997.19970251040.x. [DOI] [PubMed] [Google Scholar]
  • 6.Baker DW, Parker RM, Williams MV, Pitkin K, Parikh NS, Coates W, et al. The health care experience of patients with low literacy. Arch Fam Med. 1996;5:329–34. doi: 10.1001/archfami.5.6.329. [DOI] [PubMed] [Google Scholar]
  • 7.Maxcy DO, Atkinson RH, Longman DG, Wall P. Workplace safety: Minimum print and non-print literacy skills. J Reading. 1995;38:362–70. [Google Scholar]
  • 8.Sellors J, Pickard L, Mahony JB, Jackson K, Nelligan P, Zimic-Vincetic M, et al. Understanding and enhancing compliance with the second dose of hepatitis B vaccine: A cohort analysis and a randomized controlled trial. CMAJ. 1997;157:143–48. [PMC free article] [PubMed] [Google Scholar]
  • 9.Davis TC, Berkel HJ, Arnold CL, Nandy I, Jackson RH, Murphy PW. Intervention to increase mammography utilization in a public hospital. J Gen Intern Med. 1998;13:230–33. doi: 10.1046/j.1525-1497.1998.00072.x. [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 10.Davis TC, Arnold C, Berkel HJ, Nandy I, Jackson RH, Glass J. Knowledge and attitude on screening mammography among low-literate, low-income women. Cancer. 1996;78:1912–20. doi: 10.1002/(SICI)1097-0142(19961101)78:9<1912::AID-CNCR11>3.0.CO;2-0. [DOI] [PubMed] [Google Scholar]
  • 11.Fortenberry JD, McFarlane MM, Hennessy M, Bull SS, Grimley DM, St Lawrence J, et al. Relation of health literacy to gonorrhoea related care. Sex Transm Inf. 2001;77:206–11. doi: 10.1136/sti.77.3.206. [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 12.Maxwell CJ, Bancej CM, Snider J, Vik SA. Factors important in promoting cervical cancer screening among Canadian women: Findings from the 1996–97 National Population Health Survey (NPHS) Can J Public Health. 2001;92:127–33. doi: 10.1007/BF03404946. [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 13.Spandorfer JM, Karras DJ, Hughes LA, Caputo C. Comprehension of discharge instructions by patients in an urban emergency department. Ann Emerg Med. 1995;25:71–74. doi: 10.1016/S0196-0644(95)70358-6. [DOI] [PubMed] [Google Scholar]
  • 14.Williams MV, Parker RM, Baker DW, Parikh NS, Pitkin K, Coates WC, et al. Inadequate functional health literacy among patients at two public hospitals. JAMA. 1995;274:1677–82. doi: 10.1001/jama.1995.03530210031026. [DOI] [PubMed] [Google Scholar]
  • 15.Davis TC, Mayeaux EJ, Fredrickson D, Bocchini A, Jackson RH, Murphy PW. Reading ability of parents compared with reading level of pediatric patient education materials. Pediatrics. 1994;93:460–68. [PubMed] [Google Scholar]
  • 16.Government of Canada. Reading the Future: A Portrait of Literacy in Canada. Ottawa: Statistics Canada; 1995. [Google Scholar]
  • 17.van Weel C, Konig-Zahn C, Touw-Otten FWMM, van Duijn NP, de Jong BM. Measuring Functional Health Status with the COOP/WONCA Charts: A Manual. The Netherlands: Northern Center for Research; 1995. [Google Scholar]
  • 18.Davis TC, Long SW, Jackson RH, Mayeaux EJ, George RB, Murphy PW, et al. Rapid Estimate of Adult Literacy in Medicine: A shortened screening instrument. Fam Med. 1993;25:391–95. [PubMed] [Google Scholar]
  • 19.Nelson E, Wasson J, Kirk J, Keller A, Clark D, Dietrich A, et al. Assessment of function in routine clinical practice: Description of the COOP chart method and preliminary findings. J Chron Dis. 1987;40:55S–63S. doi: 10.1016/S0021-9681(87)80033-4. [DOI] [PubMed] [Google Scholar]
  • 20.Essink-Bot ML, Krabbe PFM, Bonsel GJ, Aaronson NK. An empirical comparison of four generic health status measures: The Nottingham Health Profile, the Medical Outcomes Study 36-item Short Form Health Survey, the COOP/WONCA Charts, and the EuroQol Instrument. Med Care. 1997;35:522–37. doi: 10.1097/00005650-199705000-00008. [DOI] [PubMed] [Google Scholar]
  • 21.Murphy PW, Davis TC, Long SW, Jackson RH, Decker BC. Rapid estimate of adult literacy in medicine (REALM): A quick reading test for patients. J Reading. 1993;37:124–30. [Google Scholar]
  • 22.Doak CC, Doak LG, Root JH. Teaching Patients with Low Literacy Skills. 2nd. Philadelphia: JB Lippincott Company; 1996. [Google Scholar]
  • 23.McLaughlin GH. SMOG Grading — a new readability formula. Reading. 1969;12:639–46. [Google Scholar]
  • 24.Smith JL, Levitt C, Franco E. Inovative system to improve use of patient education materials. Can Fam Phys. 1997;43:58–62. [PMC free article] [PubMed] [Google Scholar]
  • 25.Meade CD, Smith CF. Readability formulas: Cautions and criteria. Patient Education and Counseling. 1991;17:153–58. doi: 10.1016/0738-3991(91)90017-Y. [DOI] [Google Scholar]
  • 26.Spadero DC. Assessing readability of patient information materials. Ped Nurs. 1983;9:274–78. [PubMed] [Google Scholar]
  • 27.Pichert JW, Elam P. Readability formulas may mislead you. Patient Education and Counseling. 1985;7:181–91. doi: 10.1016/0738-3991(85)90008-4. [DOI] [Google Scholar]
  • 28.Haggerty JL, Pineault R, Beaulieu M-D, Brunelle Y, Goulet F, Rodrigue J. Unpublished data from research project “Continuity of Primary Care in Quebec: Barriers and Facilitators”, funded by the Canadian Health Services Research Foundation. 2000. [Google Scholar]
  • 29.Gibbs RD, Gibbs PH, Henrich J. Patient understanding of commonly used medical vocabulary. J Fam Pract. 1987;25:176–78. [PubMed] [Google Scholar]
  • 30.Dymock S. Reading but not understanding. J Reading. 1993;37:86–91. [Google Scholar]
  • 31.Parker RM, Baker DW, Williams MV, Nurss JR. The test of functional health literacy in adults: A new instrument for measuring patient’s literacy skills. J Gen Intern Med. 1995;10:537–41. doi: 10.1007/BF02640361. [DOI] [PubMed] [Google Scholar]
  • 32.Baker DW, Parker RM, Williams MV, Clark WS. Health literacy and the risk of hospital admission. J Gen Intern Med. 1998;13:791–98. doi: 10.1046/j.1525-1497.1998.00242.x. [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 33.Bennett CL, Ferreira MR, Davis TC, Kaplan J, Weinberger M, Kuzel T, et al. Relation between literacy, race, and stage of presentation among low-income patients with prostate cancer. J Clin Oncol. 1998;16:3101–104. doi: 10.1200/JCO.1998.16.9.3101. [DOI] [PubMed] [Google Scholar]
  • 34.Ad Hoc Committee on Health Literacy for the Council on Scientific Affairs, American Medical Association. Health Literacy — Report of the Council on Scientific Affairs. JAMA. 1999;281:552–57. doi: 10.1001/jama.281.6.552. [DOI] [PubMed] [Google Scholar]
  • 35.Gazmararian JA, Baker DW, Williams MV, Parker RM, Scott TL, Green DC, et al. Health literacy among medicare enrollees in a managed care organization. JAMA. 1999;281:545–51. doi: 10.1001/jama.281.6.545. [DOI] [PubMed] [Google Scholar]
  • 36.Estrada CA, Hryniewicz MM, Higgs VB, Collins C, Byrd JC. Anticoagulant patient information material is written at high readability levels. Stroke. 2000;31:2966–73. doi: 10.1161/01.STR.31.12.2966. [DOI] [PubMed] [Google Scholar]
  • 37.Hearth-Holmes M, Murphy PW, Davis TC, Nandy I, Elder CG, Broadwell LH, et al. Literacy in patients with chronic disease: Systemic lupus erythematosus and reading level of patient education materials. J Rheumatol. 1997;24:2335–39. [PubMed] [Google Scholar]
  • 38.Smith H, Gooding S, Brown R, Frew A. Evaluation of readability and accuracy of information leaflets in general practice for patients with asthma. BMJ. 1998;317:264–65. doi: 10.1136/bmj.317.7153.264. [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 39.Graber MA, Roller CM, Kaeble B. Readability levels of patient education material on the world wide web. J Fam Pract. 1999;48:58–61. [PubMed] [Google Scholar]

Articles from Canadian Journal of Public Health = Revue Canadienne de Santé Publique are provided here courtesy of Springer

RESOURCES