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Canadian Journal of Public Health = Revue Canadienne de Santé Publique logoLink to Canadian Journal of Public Health = Revue Canadienne de Santé Publique
. 1998 Mar 1;89(2):105–108. doi: 10.1007/BF03404399

Participatory Research with Native Community of Kahnawake Creates Innovative Code of Research Ethics

Ann C Macaulay 18,28,✉, Treena Delormier 38, Alex M McComber 38, Edward J Cross 38, Louise P Potvin 48, Gilles Paradis 58,68, Rhonda L Kirby 38, Chantal Saad-Haddad 18, Serge Desrosiers 48
PMCID: PMC6990238  PMID: 9583251

Abstract

Participatory research requires ethical guidelines to incorporate the needs of the partners, i.e., the researchers and the community. This paper describes the background, development and implementation of an innovative Code of Research Ethics developed for a participatory research project with a Native community in Canada. The document ensures that responsibility and control will be shared by both researchers and community throughout the project including joint publication of the results. It defines community control of data, means of resolving dissension at time of publication, incorporation of new researchers and the differences between community-based and academic researchers.

Footnotes

KSDPP is funded through the National Health and Research Development Program, Health Canada. Project #6605-4188-ND and #6605-4187-ND. Dr. Potvin is an MRC scientist (H3-17299-AP007270).

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