Skip to main content
Springer Nature - PMC COVID-19 Collection logoLink to Springer Nature - PMC COVID-19 Collection
. 2005;29(4):303–316. doi: 10.1007/s10916-005-5890-1

Public Health Data Collection and Sharing Using HIPAA Messages

Min Wu 1,, Tian Zhao 2, Changshan Wu 3
PMCID: PMC7087619  PMID: 16178329

Abstract

Public health information has significant value for doctors, public health officials, epidemiological researchers, the general public, and government agencies. Unfortunately, these data are difficult to obtain and are typically collected on as-needed basis and maintained locally. This localized process unavoidably limits the access to important public health data by its users. Moreover, the diversity of data transmission standards and collection techniques make the collected data less usable. This paper proposes a new standardized public health information system based on the HIPAA (Health Insurance Portability and Accountability Act) messages, which are the standard transactions between hospitals and insurance companies. In particular, this paper explores the applicability of HIPAA messages as a data source and transmission standard, and proposes a prototype design of a new system to collect and share public health data using HIPAA messages.

Key words: HIPAA, public health, data collection, system design

References

  • 1.Cromley E. K. GIS and disease. Ann. Rev. Public Health. 2003;24:7–24. doi: 10.1146/annurev.publhealth.24.012902.141019. [DOI] [PubMed] [Google Scholar]
  • 2.Lober W. B., Karras B. T., Wagner M. M., Overhage J. M., Davidson A. J., Fraser H., Trigg L. J., Mandl K. D., Espino J. U., Tsui F. C. Roundtable on bioterrorism detection: Information System—based Surveillance. J. Am. Med. Inform. Assoc. 2002;9(2):105–115. doi: 10.1197/jamia.M1052. [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 3.Overhage J. M., McDonald C. M., Tierney W. M. Design and implementation of the Indianapolis network for patient care and research. Bull. Med. Libr. Assoc. 1995;83(1):48–56. [PMC free article] [PubMed] [Google Scholar]
  • 4.Duchin, J. S., Karras, B. T., Trigg, L. J. et al., Syndromic surveillance for bioterrorism using computerized discharge diagnosis databases. In Proceedings of AMIA Annual Symposium, January 05, p. 897, 2001.
  • 5.eHealth Initiative, Available at: http://www.ehealthinitiative.org. Accessed January 30, 2003.
  • 6.Tsui F. C., Espino J. U., Dato V. M., Gesteland P. H., Hutman J., Wagner M. M. Technical description of RODS: A real-time public health surveillance system. J. Am. Med. Inform. Assoc. 2003 Sep-Oct. Epub 2003 June 04;10(5):399–408. doi: 10.1197/jamia.M1345. [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 7.Office of Civil Rights, Medical privacy—national standards to protect the privacy of personal health information: final modifications to the privacy rule, Federal Register, August 14, 2002, Available at: http://www.hhs.gov/ocr/hipaa/privrulepd.pdf. Accessed May 7, 2004.
  • 8.Centers for Disease Control and Prevention, HIPAA privacy rule and public health Guidance from CDC and the US Department of Health and Human Services. MMWR. 2003;52(Suppl):1–17. [PubMed] [Google Scholar]
  • 9.Gostin L. O., Turek-Brezina J., Powers M., Kozloff R., Faden R., Steinauer D. D. Privacy and security of personal information in a health care system. J. Am. Med. Assoc. 1993;270:2487–2493. doi: 10.1001/jama.270.20.2487. [DOI] [PubMed] [Google Scholar]
  • 10.Croner C. M. Public health, GIS, and the Internet. Ann. Rev. Public Health. 2003;24:57–82. doi: 10.1146/annurev.publhealth.24.012902.140835. [DOI] [PubMed] [Google Scholar]
  • 11.IBM Websphere software platform, http://www-306.ibm.com/software/info1/websphere/index.jsp? tab=highlights. Accessed May 10, 2004.
  • 12.Mandl K. D., Overhage J. M., Wagner M. M., Lober W. B., Sebastiani P., Mostashari F., Pavlin J. A., Gesteland P. H., Treadwell T., Koski E., Hutwagner L., Buckeridge D. L., Aller R. D., Grannis S. Implementing syndromic surveillance: A practical Guide informed by the early experience. J. Am. Med. Inform. Assoc. 2004;11(2):141–150. doi: 10.1197/jamia.M1356. [DOI] [PMC free article] [PubMed] [Google Scholar]

Articles from Journal of Medical Systems are provided here courtesy of Nature Publishing Group

RESOURCES