Short abstract
Objective
This study aimed to examine the effects of a language education intervention (LEI) on social participation among emerging adults with autism.
Methods
This randomized clinical trial involved 86 emerging adults who had low social participation, as assessed by the Social Participation Questionnaire. Participants completed an LEI comprising cognitive, adaptive and rational thinking training to improve their ability to take part in social events. Repeated measures analysis of variance was used to analyse the data.
Results
The results indicated a significant increase in social participation among emerging adults who were exposed to the LEI compared with their counterparts in a wait list control group.
Conclusion
Language and speech institutions and hospitals should adopt the LEI procedures discussed in this research to help their autistic patients increase their participation in social activities.
Keywords: Language education intervention, social participation, emerging adults, autism, randomized control trial, Nigeria
Introduction
Social participation among individuals with autism is now a global concern that requires urgent attention because of the increasing incidence of autism in adults. Recent studies indicate a high prevalence of autism in emerging adults,1,2 among whom poor social participation is a particular problem.3–5 Autistic adults may experience social isolation,6 have no close friends4 and fail to participate in community activities.5 Social participation among such individuals is predicted by cognitive abilities, adaptive skills and irrational thoughts.3,7 Because autistic adults exhibit below-average cognitive functioning, adaptive coping and rational thinking, they may find it difficult to increase their involvement in social activities.8 It is therefore necessary to investigate the effects of intervention programs targeted at enhancing the cognitive, adaptive and rational thinking competencies of adults with autism.
One problem is that previous studies8–12 have failed to clarify whether educative interventions can effectively increase social participation in the autistic adult population. To address this gap, the current study tested the effects of a language education intervention (LEI) on social participation among emerging adults with autism. The LEI is a behavioural educative intervention program based on cognitive, adaptive and rational emotive principles.10,13,14 Underlying the program is a medical philosophy that considers disturbances to emerge from faulty beliefs about social activities,15 which is the core of rational emotive therapy.10,14 This type of therapeutic approach assumes that an individual has irrational thoughts that may prevent him/her from exercising the freedom to live life.9 The study focused on individuals in the developmental stage of emerging adulthood, a stage between adolescence and full-fledged adulthood.16 During the LEI, emerging adults received cognitive, adaptive and rational thinking training to improve their ability to take part in social events. Thus, the objective of the study was to determine the effects of a language education intervention on social participation among emerging adults with autism. Hypothesis which states that: “there will be no significant effects of a language education intervention on social participation among emerging adults with autism” was tested.
Methods
Ethical considerations
We adhered to the ethical principles of the Declaration of Helsinki and the guidelines of the Faculty of Education at the University of Nigeria, Nsukka, Nigeria. We also complied with the regulations of the UMIN Clinical Trials Registry (UMIN000035599). The study was approved by the research and ethics committee of the Department of Art Education, Faculty of Education, University of Nigeria.
Participants
We recruited 86 autistic emerging adults from southeastern Nigeria and divided them into a treatment group and a wait list control group. Following Reifman et al.,16 we defined emerging adults as individuals aged between 18 and 25 years. Using observations in the participants’ medical reports, we ensured that participants met the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (DSM-IV-TR) criteria for autism spectrum disorders, as recommended by Seltzer et al.17 and Lord et al.18 The other inclusion criteria were demonstrating low social participation, as ascertained using the Social Participation Questionnaire (SPQ); showing a willingness to participate in the research, as signified by a signed informed consent form; being available to attend all intervention sessions; and having English as their primary language. We used numbered containers to assign participants to the two groups and kept track of attendance. No cases of illiteracy were observed.
Procedures
This was a pre-test/post-test group randomized trial in which participants were randomly allocated19 to the treatment and wait list control groups. Participants in the treatment group were exposed to a 14-week LEI, whereas those in the wait list control group did not receive any language development training within the aforementioned period. Both groups underwent three SPQ-based assessments: before the intervention, after the intervention and after follow-up. The SPQ, which we developed and submitted for validation by experts, comprises several subdomains, such as collective motive, social motive, reward motive, identification with older people, willingness to participate in social activities and willingness to maintain friendships, in line with measures used in previous studies.5 The SPQ comprises 26 items rated on a four-point scale ranging from 4 (‘strongly agree’) to 1 (‘strongly disagree’) and has an internal consistency coefficient of 0.79. Examples of items from the questionnaire are ‘attending church or special interest group meetings’, ‘participating in recreational activities’, ‘forming meaningful relationships in new settings’ and ‘sustaining friendships’. A high SPQ score ranges from 78 to 104 (indicating low social participation) and a low score ranges from 26 to 77 (suggesting high social participation). We used repeated measures analysis of variance to analyse the data. SPSS version 22.0 was used for all analyses (SPSS Inc., Chicago, IL, USA). The analysts were blinded and did not take part in the intervention and assessment procedures.
Intervention
Language education intervention
The LEI for increased social participation among emerging adults with autism spanned 28 group sessions (2 hours each) and was implemented over 14 weeks. Meetings were conducted twice a week. A 4-week follow-up was carried out 2 months after the intervention was concluded. The development of the LEI used in this study was based on cognitive, adaptive and rational emotive principles used in previous research.10,13,14,19,20 Therefore, the focus of the LEI was to improve the cognitive abilities, adaptive skills and rational thoughts of the participants to increase their social participation. Language education techniques, cognitive behavioural techniques, rational emotive techniques and social coping techniques that have led to positive results in previous studies3,11 were used in the present study. Using these techniques, participants were exposed to learning experiences that helped them to question irrational thoughts that had hampered their social participation, thereby strengthening their cognitive, adaptive and rational skills and facilitating their social participation. Details of the intervention have been described in previous studies.3,20,21 The LEI was administered to participants in six small groups by six clinicians with training and expertise in speech-language education, language pathology, psychology, counselling and medical rehabilitation.
Results and discussion
There were 43 participants in the treatment group (14 males, 29 females) and 43 in the wait list control group (18 males, 25 females). The mean age of the treatment group was 23.36 ± 1.10 years, and that of the control group was 24.01 ± 2.80 years. Data were analysed only from participants who completed all three assessments (treatment group n = 36, control group = 34). The findings revealed no significant difference in the baseline measure of social participation between the treatment group (91.00 ± (standard deviation) 3.34) and the wait list control group (90.47 ± 2.97). The high mean value indicates that there was low social participation among the autistic emerging adults at the baseline assessment. This finding supports previous studies that found an association between poor social participation and autism disorder.3–5 The finding also supports previous research indicating that autistic adults experience social isolation6 and lack of close friends4 and do not participate in community activities.5
The post-intervention assessment revealed a significant increase in social participation among autistic emerging adults in the treatment group (31.72 ± 2.16) compared with those in the wait list control group (89.21 ± 1.98), F(1,69) = 388.80, P = .000, = .851, R2 = .849, CI = 52.19–67.17, standard error = 3.75. The findings indicate that LEI was efficacious in increasing social participation among emerging adults with autism. The results are in accord with previous evidence that individuals with autism can be helped to cope with social challenges using educative interventions.8 The findings also support research indicating that cognitive abilities, adaptive skills and irrational thoughts are predictors of social participation among adults with autism.3,7 Our intervention addressed the cognitive, adaptive and irrational thoughts of the autistic emerging adults to increase their social participation.
The follow-up assessment demonstrated an additional significant increase in social participation among the autistic emerging adults in the treatment group (30.11 ± 1.11) compared with those in the wait list control group (85.34 ± 2.23), F(1,69) = 384.59, P = .000, = .852, R2 = .859, CI = 50.94–66.20, standard error = 3.82. This is further evidence that the LEI affected social participation, and supports research indicating that educative interventions can strengthen social skills in individuals with autism disorder.9–12 The current findings suggest that language-speech therapists, pathologists, educators, special teachers, counsellors and medical professionals in educational institutions, medical centres, rehabilitation centres and special schools should adopt this type of LEI to help autistic adults increase their social participation. However, additional studies are needed to determine whether the effects of this LEI on social participation among autistic individuals apply to other locations. Despite the positive findings, the study had some limitations, such as the small sample size, lack of qualitative data and inadequate participant demographic data. We therefore suggest that these limitations should be addressed in future research on the effect of LEI among autistic individuals.
Conclusion
The objective of this study was to investigate the effects of LEI on social participation among emerging adults with autism. The findings revealed that LEI was efficacious in increasing social participation among emerging adults with autism. Therefore, we urge language-speech institutions and hospitals to adopt the LEI procedures used in the current study to help their autistic patients increase social participation. There is need for more research and policies to support the implementation of LEI in communities that may contain autistic individuals.
Declaration of conflicting interest
The authors declare that there is no conflict of interest.
Funding
This research received no specific grant from any funding agency in the public, commercial, or not-for-profit sectors.
References
- 1.Brugha TS, McManus S, Bankart J, et al. Epidemiology of autism spectrum disorders in adults in the community in England. Arch Gen Psychiatry 2011; 68: 459–465. [DOI] [PubMed] [Google Scholar]
- 2.Baxter AJ, Brugha T, Erskine H, et al. The epidemiology and global burden of autism spectrum disorders. Psychol Med 2015; 45: 601–613. [DOI] [PubMed] [Google Scholar]
- 3.Farley MA, McMahon WM, Fombonne E, et al. Twenty‐year outcome for individuals with autism and average or near‐average cognitive abilities. Autism Res 2009; 2: 109–118. [DOI] [PubMed] [Google Scholar]
- 4.Billstedt E, Carina Gillberg I, Gillberg C. Autism in adults: symptom patterns and early childhood predictors. Use of the DISCO in a community sample followed from childhood. J Child Psychol Psychiatry 2007; 48: 1102–1110. [DOI] [PubMed] [Google Scholar]
- 5.Orsmond GI, Shattuck PT, Cooper BP, et al. Social participation among young adults with an autism spectrum disorder. J Autism Dev Disord 2013; 43: 2710–2719. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 6.Orsmond GI, Krauss MW, Seltzer MM. Peer relationships and social and recreational activities among adolescents and adults with autism. J Autism Dev Disord 2004; 34: 245–256. [DOI] [PubMed] [Google Scholar]
- 7.Howlin P, Goode S, Hutton J, et al. Adult outcome for children with autism. J Child Psychol Psychiatry 2004; 45: 212–229. [DOI] [PubMed] [Google Scholar]
- 8.Kuhlthau K, Orlich F, Hall TA, et al. Health-related quality of life in children with autism spectrum disorders: results from the autism treatment network. J Autism Dev Disord 2010; 40: 721–729. [DOI] [PubMed] [Google Scholar]
- 9.Steins G, Haep A. Social learning and rational-emotive education: an exploratory investigation of students’ perspective. Psychology 2015; 6: 1096–2. [Google Scholar]
- 10.Ellis A. Can rational emotive behavior therapy (REBT) be effectively used with people who have devout beliefs in God and religion? Professional Psychology: Research and Practice 2000; 31: 29–2. [Google Scholar]
- 11.Dryden W. Flexibility and passionate non-extremism versus absolutism and extremism: teaching the basics of REBT theory and showing its wider applicability. Journal of Rational-Emotive & Cognitive-Behavior Therapy 2012; 30: 38–51. [Google Scholar]
- 12.Vernon A. What works when with children and adolescents: a handbook of individual counseling techniques. Champaign, IL: Research Press, 2002. [Google Scholar]
- 13.Mkangi A. Rational Emotive Behavioural Therapy (REBT): a critical review. Front Psychol 2010; 2: 54–65. [Google Scholar]
- 14.Ellis A. (ed.). The revised ABCs of rational-emotive therapy (RET). In Zeig JK (ed.) The evolution of psychotherapy: the second conference New York: Routledge, 2014. [Google Scholar]
- 15.Gonzalez JE, Nelson JR, Gutkin TB, et al. Rational emotive therapy with children and adolescents: a meta-analysis. Journal of Emotional and Behavioral Disorders 2004; 12: 222–235. [Google Scholar]
- 16.Reifman A, Arnett JJ, Colwell MJ. Emerging adulthood: theory, assessment and application. Journal of Youth Development 2007; 2: 37–48. [Google Scholar]
- 17.Seltzer MM, Krauss MW, Shattuck PT, et al. The symptoms of autism spectrum disorders in adolescence and adulthood. J Autism Dev Disord 2003; 33: 565–581. [DOI] [PubMed] [Google Scholar]
- 18.Lord C, Risi S, Lambrecht L, et al. The Autism Diagnostic Observation Schedule—Generic: a standard measure of social and communication deficits associated with the spectrum of autism. J Autism Dev Disord 2000; 30: 205–223. [PubMed] [Google Scholar]
- 19.Tittle M. The Effects of Foreign and Second Language Students' Irrational Beliefs and Anxiety on Classroom Achievement. 1997. [Google Scholar]
- 20.Anderson C. Cognitive behavioral therapy and autism spectrum disorders. IAN Community Scientific Liaison. https://iancommunity.org/cs/simons_simplex_community/cognitive_behavioral_therapy.
- 21.Chen HF, Cohn ES. Social participation for children with developmental coordination disorder: conceptual, evaluation and intervention considerations. Phys Occup Ther Pediatr 2003; 23: 61–78. [PubMed] [Google Scholar]
