Table 1.
Multidimensional Impact of Cancer Risk Assessment (MICRA) domain subscales
Distress (6 items) | Feeling upset about my risk information |
Feeling sad about my risk information | |
Feeling anxious or nervous about my risk information | |
Feeling guilty about my risk information | |
Feeling a loss of control | |
Having problems enjoying life because of my risk information | |
Uncertainty (9 items) | Worrying about my risk of getting cancer (or getting cancer again if you have already been diagnosed with cancer) |
Being uncertain about what my risk information means about my cancer risk | |
Being uncertain about what my risk information means for my child(ren) and/or family’s cancer risk | |
Having difficulty making decisions about cancer screening or prevention (e.g. having preventive surgery or getting medical tests done) | |
Feeling frustrated that there are no definite cancer prevention guidelines for me | |
Thinking about my risk information has affected my work or family life | |
Feeling concerned about how my risk information will affect my insurance status | |
Having difficulty talking about my risk information with family members | |
Worrying that the genetic counselling and testing process has brought about conflict within my family | |
Positive experiences (4 items – reverse scaled) | Feeling relieved about my risk information |
Feeling happy about my risk information | |
Feeling that my family has been supportive during the genetic counselling and testing process | |
Feeling satisfied with family communication about my genetic risk information |