Table 2.
Topic | Excerpt from consent form |
---|---|
Data sharing | “Researchers can ask to study the materials stored in the Biobank. This includes researchers from the [university], as well as from other universities, the government, and drug‐ or health‐related companies. Some researchers will be from the U.S.; some may be from other countries around the world. All of the information collected about you will be preserved and made available to others for research. The researchers and officials of the National Institutes of Health will be responsible for deciding how the data will be shared.” |
Commercialization | “This information may ultimately have significant therapeutic or commercial value. By agreeing to participate in this study, you consent to such uses.” |