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. 2021 Apr 22;58:80–87. doi: 10.1016/j.breast.2021.04.008

Table 1.

Characteristics counselees requesting breast cancer genetic counseling.

All counselees
Hospital referralsa
Total
trained hospitals
untrained hospitals
N % N % N % N %
totalb 3179 1695
total excluding missing trained status 1641 1204 71.0% 437 25.8%
mean age referral 48.9 51.6 51.2 52.8
(min-max) (18–92) (18–88) (18–88) (23–83)
gender 3179 1695 1204 437
male 294 9.2% 36 2.1% 29 2.4% 7 1.6%
female 2885 90.8% 1659 97.9% 1175 97.6% 430 98.4%
breast cancer 3179 1641 1204 437
affected 1641 51.6% 1417 86.3% 1024 85.0% 393 89.9%
unaffected 1538 48.4% 224 13.7% 180 15.0% 44 10.1%
mean age breast cancer 49.3 49.2 49.1 49.6
(min-max) (24–87) (24–87) (24–87) (27–83)
DNA-testing 3010 1535 1132 403
diagnostic 1421 47.2% 1178 76.6% 833 73.6% 345 85.6%
predictive 1589 52.8% 357 23.3% 299 26.4% 58 14.4%
rapid DNA-testing 3140 1614 1191 423
yes 662 21.1% 627 44.6% 475 39.9% 152 35.9%
no 2478 78.9% 987 55.4% 716 60.1% 271 64.1%
educational level 3021 1668 1148 417
low 103 3.4% 61 3.9% 45 3.9% 16 3.8%
intermediate-I 616 20.4% 353 22.6% 233 20.3% 120 28.8%
intermediate-II 1097 36.3% 566 36.2% 404 35.2% 162 38.8%
high 1205 39.9% 585 37.4% 466 40.6% 119 28.5%
need help because of limited HL 3133 1614 1184 430
never 2825 90.2% 1448 89.7% 1052 88.9% 396 92.1%
once in a while 199 6.4% 105 6.5% 87 7.3% 18 4.2%
often 47 1.5% 26 1.6% 19 1.6% 7 1.6%
always 62 2.0% 35 2.2% 26 2.2% 9 2.1%
language proficiency 3148 1624 1193 431
good/intermediate proficiency 3057 97.1% 1574 96.9% 1151 96.5% 423 98.0%
low proficiency 52 1.6% 28 1.7% 24 2.0% 4 1.0%
no proficiency 39 1.2% 22 1.4% 18 1.5% 4 1.0%
migrant status counselee 3146 1623 1192 431
Dutch native 2550 81.1% 1289 79.4% 927 77.7% 362 84.0%
migrant 596 18.9% 334 20.6% 265 22.2% 69 16.0%
country of origin known 575 324 259 65
  • western

307 9.8% 164 10.0% 134 11.2% 30 6.7%
  • non western

268 8.5% 160 9.6% 125 10.5% 35 8.1%
interpretor present 3150 1625 1193 432
No 3100 98.4% 1593 98.0% 1169 98.0% 424 98.1%
Yes 50 1.6% 32 2.0% 24 2.0% 8 1.9%
  • family

42 87.5% 29 90.6% 21 87.5% 0 0.0%
  • professional

6 12.4% 3 9.4% 3 12.5% 8 100.0%
a

Excluding records training unknown.

b

Hospital referrals n = 1695 (53%), general practitioner referrals n = 1332 (42%), unknown n = 152 (5%).