Abstract
BACKGROUND/OBJECTIVES:
The number of older adults with complex health needs is growing, and this population experiences disproportionate morbidity and mortality. Interventions led by community health workers (CHWs) can improve clinical outcomes in the general adult population with multimorbidity, but few studies have investigated CHW-delivered interventions in older adults.
DESIGN:
We systematically reviewed the impact of CHW interventions on health outcomes among older adults with complex health needs. We searched for English-language articles from database inception through April 2020 using seven databases. PROSPERO protocol registration CRD42019118761.
SETTING:
Any U.S. or international setting, including clinical and community-based settings.
PARTICIPANTS:
Older adults 60 years of age or older with complex health needs, defined in this review as multimorbidity, frailty, disability, or high-utilization.
INTERVENTIONS:
Interventions led by a CHW or similar role consistent with the American Public Health Association’s definition of CHWs.
MEASUREMENTS:
Pre-defined health outcomes (chronic disease measures, general health measures, treatment adherence, quality of life, or functional measures) as well as qualitative findings.
RESULTS:
Of 5,671 unique records, nine studies met eligibility criteria, including four randomized controlled trials, three quasi-experimental studies, and two qualitative studies. Target population and intervention characteristics were variable, and studies were generally of low-to-moderate methodological quality. Outcomes included mood, functional status and disability, social support, well-being and quality of life, medication knowledge, and certain health conditions (e.g., falls, cognition). Results were mixed with several studies demonstrating significant effects on mood and function, including one high-quality RCT, while others noted no significant intervention effects on outcomes.
CONCLUSION:
CHW-led interventions may have benefit for older adults with complex health needs, but additional high-quality studies are needed to definitively determine the effectiveness of CHW interventions in this population. Integration of CHWs into geriatric clinical settings may be a strategy to deliver evidence-based interventions and improve clinical outcomes in complex older adults.
Keywords: older adults, community health workers, complex health needs
INTRODUCTION
The U.S. population aged 65 and older is projected to reach 80 million by 2040, more than double the older adult population in 2000.1 In a recent Commonwealth Fund study, 36% of U.S. older adults had three or more chronic conditions and 43% were considered high-need, defined as having multiple chronic conditions or a functional limitation.2 High-need older adults with multimorbidity and those who are frail, disabled, or high-utilizers of health care comprise a complex older adult population at increased risk of adverse health outcomes, including hospitalization, loss of independence, and mortality3–12 as well as disproportionate socioeconomic strain, mental health needs, and social isolation.2
There is a shortage of healthcare workers with geriatrics training to support the expanding older adult population, particularly in rural and underserved communities where socioeconomic conditions further contribute to complexity.2,13 Community health workers (CHWs) offer one potential strategy to increase delivery of evidence-based interventions and prevent poor health outcomes among vulnerable older adults. The American Public Health Association (APHA) defines CHWs as “frontline public health workers who are trusted members of and/or have an unusually close understanding of the community served.14” CHWs provide a range of services including health education, health coaching, and support accessing community resources.14–16 Studies have shown that CHW-led interventions can improve chronic disease, mental health, and maternal and child health outcomes in a variety of settings, often in underserved or low-resource communities.16–21
Large RCTs have demonstrated the effectiveness of CHW interventions on health outcomes and utilization in the general adult population with multimorbidity.22–24 However, fewer studies have examined the effectiveness of CHW interventions for older adults, particularly those with complex health needs. A 2014 systematic review investigated the impact of CHW interventions on health outcomes in older adults from ethnic minorities, noting potential improvements in access to care, health behaviors (physical activity, diet), and health outcomes (reduction in blood pressure).25 However, most eligible studies had a mean participant age under 60 years, and the review did not focus specifically on complex conditions. To better understand the impact of CHW interventions on health outcomes in complex older adults, we conducted a systematic review of CHW-led interventions in adults aged 60 and older with complex health needs, which we defined as multimorbidity, frailty, disability, or high-utilization.
METHODS
Methods were guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines (see Appendix S1 for checklist).26 A team of clinician-researchers, librarians, and research staff with public health training collaborated on the design of this review. Our protocol is registered through the PROSPERO International Prospective Register of Systematic Reviews (CRD42019118761).27
Search Strategy
Reference librarians (HBB, PJB) conducted searches for English-language studies from date of inception to current through MEDLINE (Ovid), Cochrane Central Register of Controlled Trials (Wiley), Cochrane Database of Systematic Reviews (Wiley), CINAHL (EBSCO), Web of Science (Clarivate Analytics), American Psychological Association PsycINFO (EBSCO), and Global Index Medicus (WHO). Searches were originally conducted on December 21, 2018 and updated on April 23, 2020.
We searched for articles containing terms related to CHWs, older adults, and complex health needs using subject headings and keywords which were adjusted for each database (Appendix S2). Search terms for CHWs were kept broad given the variability in titles used to describe this type of interventionist, and were based on search strategies used in previous systematic reviews of CHW interventions.16,17, 25,28–32 For complex health needs, we searched for terms related to multimorbidity, frailty, disability, and high-utilization as four broad, often overlapping categories associated with complex needs and adverse outcomes in older adults.2–12
Selection Criteria
Selection criteria were defined within the Participants, Interventions, Comparison, Outcomes, and Study Design (PICOS) framework. Only English-language, peer-reviewed original research studies were included. Studies were included if all participants were ≥60 years of age, or if a sub-group analysis of those ≥60 was reported. Studies in any setting (clinical or community-based, U.S. or international) were included.
We included studies in which participants were described as having complex conditions falling within the four categories of multimorbidity, frailty, disability, or high-utilization. We aimed to provide an overview of existing literature on CHW interventions for complex older adults and expected a small number of eligible studies based on our knowledge of the topic. Thus, we did not define specific criteria (e.g., use of standardized instruments) for the four complexity categories. Rather, we looked for author use of terms related to the four categories as defined in our search strategy (Appendix S2), and extracted each study’s description of the complex target population (Table 1).
Table 1.
Citation | Design | N | Setting | Complex Health Need |
---|---|---|---|---|
Alegría, 201937 | RCT | I: 153 C: 154 |
MA, NY, FL, Puerto Rico (Community) | Disability: Depression or anxiety plus minor-moderate disability (SPPB) |
Dye, 201838 | Quasi-exp | I: 33 C: 36 |
Rural Oconee County, SC (Community) | High-utilization: High ED-utilizing county; multiple chronic conditions in most participants |
Geffen, 201939 | Quasi-exp (+ qual) | 212 | Peri-urban suburb, South Africa (Community) | Multimorbidity: At least 2 listed physical or psychosocial conditions |
Lawn, 201740 | Qual | 10 older adults 24 support workers 8 coordinators |
Metro and rural South Australia (Community) | High-utilization: Frequent users of hospital/acute care due to comorbidities, psychosocial complexities |
Li, 201941 | Qual (within parent RCT) | 16 village doctors 16 aging workers 6 psychiatrists |
Rural China (PC) | Multimorbidity: Comorbid hypertension and depression |
Panagioti, 201842 | RCT (Trial w/in Cohort) | I: 504a C: 802 |
Northwest England (Community; PC recruitment) | Multimorbidity: At least 2 self-reported long-term conditions |
Russell, 201743,b | Quasi-exp (+ qual) | 34 older adults 23 HHAs |
Urban NY (Community) | Frailty: Dual Medicare and Medicaid recipients (described as frail) |
Walters, 201744 | Pilot RCT (+ qual) | I: 26 C: 25 |
Urban, semi-rural UK (Community; PC recruitment) | Frailty: Mild frailty (Rockwood Clinical Frailty Scale) |
Wang, 201345 | Pilot RCT | I: 30 C: 32 |
Rural Taiwan (Community; PC recruitment) | Multimorbidity: At least 2 chronic illnesses |
Abbreviations: C, control; ED, emergency department; HHA, home health aide; I, intervention; PC, primary care; Qual, qualitative; Quasi-exp, quasi-experimental; RCT, randomized controlled trial; SPPB, Short Physical Performance Battery.
In this Trials within Cohorts design, 504 participants were randomized to the treatment group, but only 207 consented to the intervention.
Only 1 of the 2 described interventions in this article met criteria for this systematic review.
We included studies of interventions delivered by CHWs or similar interventionists whose described roles were consistent with the APHA’s definition of a CHW (Appendix S3).14 Team-based or multicomponent interventions involving non-CHW personnel were included if CHWs played a primary role in the delivery of the intervention, and we documented roles played by other personnel during data extraction (Supplementary Table S1).
For quantitative studies, we included randomized controlled trials and quasi-experimental designs with at least one pre-defined health outcome, including chronic disease measures, general health measures, treatment adherence, quality of life, or functional measures. Studies without one of these pre-defined health outcomes were excluded; however, we also extracted outcomes for cost, utilization, feasibility, quality, and satisfaction if reported.
Given the limited literature base and preliminary nature of many community intervention studies, we also included articles reporting qualitative findings from CHW intervention studies to better understand the feasibility and acceptability of these interventions. We included purely qualitative studies and multi-method studies that reported qualitative findings. Selection criteria for qualitative studies were the same as for quantitative studies with the exception of the following: 1) permitted age <60 years for CHWs/team members who participated as interviewees (though still required the intervention target population to be ≥60 years); and 2) did not require use of one of the pre-defined quantitative health outcomes.
Study Selection
The primary review team (MAK, SMK, PRD, KEH) test-screened 200 titles and abstracts to confirm >80% concordance using the defined selection criteria, as done in our previous work.33 Three reviewers (SMK, PRD, KEH) then independently screened titles and abstracts in duplicate and excluded those that clearly did not meet eligibility criteria. A third reviewer (MAK) resolved discrepancies between the pairs for the original search. For the search update in April 2020, two reviewers (MAK, KEH) independently screened titles and abstracts and discrepancies were resolved through consensus discussion.
Two reviewers (MAK, KEH) reviewed all eligible full texts independently to determine final inclusion. Discrepancies in inclusion decisions were resolved through consensus discussion involving a third reviewer (PRD), who also adjudicated discrepancies in reason for exclusion. We contacted study authors by email for clarifying information to determine final inclusion when needed; we received responses to 5 out of 6 inquiries, and excluded the sixth article based on the content available in the article. Finally, two reviewers (MAK, KEH) reviewed reference lists of included studies to identify additional articles; we screened relevant titles/abstracts in duplicate followed by full text review if preliminarily eligible, and resolved discrepancies through consensus discussion.
Data Extraction
Study data were extracted independently by two researchers (MAK, KEH) using a standardized collection table, including study and participant characteristics, criteria for complex health needs, intervention characteristics, CHW elements (e.g. title, role, training), primary and secondary quantitative outcomes, and qualitative findings. Certain data elements (e.g. quantitative outcomes) were not relevant for purely qualitative studies and therefore were not extracted for those studies. A priori, we anticipated few eligible studies and significant heterogeneity in study participants, interventions, and outcomes. Therefore, we did not conduct a quantitative synthesis of results, but included a narrative assessment of our findings.
Assessment of Quality
Two independent reviewers (KEH, MAK) assessed methodological quality using the following tools as appropriate for study design: the Revised Cochrane Risk-of-Bias (RoB 2) Tool for Randomized Trials for RCTs34; the National Institute for Health and Care Excellence (NICE) Quality Appraisal Checklist for qualitative studies35; and the Effective Public Health Practice Project (EPHPP) Quality Assessment Tool for Quantitative Studies for quasi-experimental studies.36 For multi-method studies reporting both quantitative and qualitative findings, we used the RoB 2 or EPHPP tool for the quantitative component and the NICE tool for the qualitative component. We resolved discrepancies in quality ratings through consensus discussion. Studies were not excluded based on methodological quality.
RESULTS
Search results are presented in a PRISMA flow diagram (Figure 1).26 The database search and review of reference lists resulted in 5,671 records after duplicates were removed. Of those, 5,304 records were excluded on title and abstract screening. We reviewed 367 full texts and nine studies met final criteria for inclusion.
Study Characteristics
Study characteristics are outlined in Table 1. The nine included studies were published between 2013 and 2019.37–45 Two studies were large RCTs (one conducted as a Trials within Cohorts design),37,42 two were pilot RCTs,44,45 three were quasi-experimental (one with comparison group38 and two pre-post designs39,43), and two were qualitative.40,41 One pilot RCT44 and two quasi-experimental studies39,43 additionally reported qualitative findings. Study setting included both rural and urban locations in the U.S. and internationally. Three studies were conducted in the U.S.,37,38,43 two were in the United Kingdom,42,44 and one each were conducted in Taiwan,45 China,41 South Africa,39 and Australia.40 Interventions were generally community-based (several with recruitment through primary care), but one was primary care-based.41
Participants and Complex Conditions
Mean age of participants ranged from 69–80 years and the majority were female. Race and ethnicity were inconsistently reported (five of nine studies) and composition varied (Table 2). The target population of older adults with complex conditions was variable across studies (Table 1). Four studies recruited participants based on multimorbidity,39, 41,42,45 two targeted high-utilizing populations,38,40 two addressed frail older adults,43,44 and one focused on disability.37 Participants in most studies had multiple chronic conditions, regardless of the specific eligibility criteria. Health conditions targeted in the studies were typically nonspecific, but three studies focused on specific conditions: depression or anxiety (plus disability),37 depression plus hypertension,41 and cardiovascular disease, hypertension, or congestive heart failure.38 Although two studies targeted a frail population, only one used a standardized measure for frailty to determine eligibility.44
Table 2.
Citation | Age | % Female | Race/Ethnicity | % Living Alone |
---|---|---|---|---|
Alegría, 201937 | Mean NR I: 5.9% 60–64, 45.8% 65–74, 48.4% 75+ C: 7.8% 60–64, 40.9% 65–74, 51.3% 75+ |
80.8% | 44.9% Hispanic 33.7% Asian 10.2% White 7.9% Black 3.0% Other 0.3% American Indian |
NR |
Dye, 201838 | Mean NR I: range 61–96 C: range 61–91 |
58.8% (13.2% NR) |
80.9% White 13.2% NR 2.9% Black 2.9% Hispanic |
NR |
Geffen, 201939 | Mean 69 (sd NR) | 75% | NR | 7% |
Lawn, 201740 | Mean NR Range 66–97 |
100% | NR | 50% |
Li, 201941 | N/Aa | N/Aa | N/Aa | N/Aa |
Panagioti, 201842 | I: 75.4 ± 6.8 C: 74.2 ± 6.4 |
54.4% | 97.6% White 1.8% Non-white |
36.5% |
Russell, 201743,b | 80.5 ± 7.7 | 73.5% | 50.0% Black 26.5% Other/ Unknown 11.8% White 11.8% Hispanic |
79.4% |
Walters, 201744 | I: 80.4 ± 6.9 C: 79.7 ± 6.4 |
58.8% | 88.2% White British 7.8% Other White 2.0% African 2.0% Other Asian |
51% |
Wang, 201345 | I: 70.0 ± 8.8 C: 72.6 ± 6.7 |
54.8% | NR | 35.5% |
Abbreviations: C, control; I, intervention; NR, not reported.
Age, sex, race/ethnicity and living alone are reported for older adult study participants only (not reported for non-older adult interviewees in qualitative studies).
Only 1 of the 2 described interventions in this article met criteria for this systematic review.
Interventions
Interventions varied in content, goal, intensity, and mode of delivery (Table 3, Supplementary Table S1). All interventions incorporated a psychosocial or behavioral approach (e.g. goal-setting, behavior change, emotional/social support, self-management). Two involved physical activity (structured group exercise or home exercise) in addition to a psychosocial or behavior change component.37,44 Two studies were workforce enhancement interventions that trained home support workers in self-management skills for integration into their routine home health care.40,43 There were two health coaching interventions,38,42 one primary care collaborative care team model,41 one peer support program,39 and one medication adherence intervention.45
Table 3.
Citation | Intervention Type | Goal | Duration | CHW Title and Selection |
---|---|---|---|---|
Alegría, 201937 | Psychosocial + group exercise | Prevent disability in minority and immigrant older adults w/ mood symptoms and impaired function | 6 mos |
CHW Recruited in collaboration with community site leaders |
Dye, 201838 | Health coaching | Decrease readmissions and ED use in rural older adults w/ chronic disease post- HHS discharge | 4 mos |
Health Coach Member of the community, evaluated through interview, recruited by coordinator |
Geffen, 201939 | Peer support | Improve wellbeing among low-income older adults | 5 mos |
AgeWell Visitor Older adult living in the community, interview and selection process |
Lawn, 201740 | Workforce enhancement | Enhance capacity of support workers in complexity and self-management | N/A (routine HHS) |
Support
Worker Employed as home support worker for older adults |
Li, 201941 | Collaborative care | Treat comorbid depression and HTN in rural older adults | 12 mos |
Aging Worker Employed in village education/ liaison role; local residents who know villagers well |
Panagioti, 201842 | Health coaching | Increase self-management and quality of life in older adults w/ multi-morbidity | 6 mos |
Health Advisor Skills in technology, communication, working with public, DM coaching, social prescribing |
Russell, 201743,a | Workforce enhancement, health coaching | Prepare HHAs to integrate health coaching into care for chronically ill older adults to improve self-management | N/A (routine HHS) |
Health Coach HHA with ≥1yr experience at partner agency and positive evaluations; close relationship between HHAs and community |
Walters, 201744 | Behavior change | Improve clinical outcomes (e.g. functioning) in older adults w/ mild frailty | 6 mos |
HomeHealth Project
Worker Non-specialist w/skills in communication, working with older people, engagement, person-centered planning |
Wang, 201345 | Medication adherence | Improve medication safety in rural older adults w/ chronic illnesses | 2 mos |
Volunteer
Coach Recommended by community leader or clinic, lived in the community, high school ed, volunteer experience and certification |
Additional intervention details are available in Supplementary Table S1.
Abbreviations: DM, diabetes mellitus; ED, emergency department; ed, education; HHA, home health aide; HHS, home health services; HTN, hypertension; mo(s), month(s).
Only 1 of the 2 described interventions in this article met criteria for this systematic review.
Intervention duration ranged from 2–12 months (median 5 months) for the seven studies with a defined intervention period. Six studies were primarily home-based, often including additional telephone follow-up.38–40,43–45 One health coaching intervention was completely phone-based.42 One study incorporated both an individual home, community, or phone-based psychosocial intervention and a group exercise component,37 and one involved home visits in addition to primary care visits.41
CHW Role
CHW roles in intervention delivery are outlined in Table 3 and Supplementary Table S1. Only one study used the term “Community Health Worker” for the interventionist.37 Additional terms included “Health Coach” (n=2), “AgeWell Visitor,” “Support Worker,” “Aging Worker,” “Health Advisor,” “HomeHealth Project Worker,” and “Volunteer Coach.” Most studies recruited interventionists who were from the local community they were serving, had experience similar to their role in the study, and had been recommended by community leaders. None indicated that they required a specific level of education. Two studies trained existing home health workers40,43 and one study recruited older adults to serve as peer interventionists.39
All studies reported training protocols for the interventionists (Supplementary Table S1). Training ranged from 2 days to 4 months, with content focused on key concepts and intervention components. Only three studies noted end-of-training tests or fidelity thresholds.37,38,45 Seven studies reported some form of supervision for the CHW, ranging from formal supervision with audio-recorded sessions to informal as-needed communication with supervisors.
Eight studies involved other personnel in intervention delivery in addition to CHWs (Supplementary Table S1). Two of these studies involved other interventionists providing direct services to participants, including one multicomponent intervention delivered partially by a CHW and partially by an exercise trainer,37 and one collaborative care intervention that involved a CHW (“Aging Worker”) working in collaboration with a village doctor and consulting psychiatrist.41 Six studies had additional team members serving an indirect role in the intervention, including CHW supervision and support or initial participant evaluation.38–40,42–44
Quantitative Health Outcomes
Health outcome measures and results are presented in Table 4 and Supplementary Table S2. Commonly assessed outcomes included self-reported mood (n=4), self-reported functioning/disability and physical performance (n=2), quality of life or well-being (n=4), and self-care (n=2). Two RCTs that combined a psychosocial/behavioral change intervention with exercise showed improved mood, self-reported functioning or disability, and physical measures compared to control.37,44 A large quasi-experimental peer support study demonstrated improvements in well-being, mood, social support and activity, and physical activity.39 A home health aide health coaching intervention improved self-reported general health and self-care maintenance,43 and a medication safety intervention showed improvements in medication safety knowledge and behaviors, but not attitudes, compared to baseline.45 Most other studied outcomes had no significant effects or were not tested for statistical significance. Standardized effect sizes generally were not reported, but one study did report small intent-to-treat effects (Cohen’s d) on measures of mood and function.37
Table 4.
Citation | Comparator | Main Findings | Quality/ROBa |
---|---|---|---|
Alegría, 201937 | UC + assessment, written ed | Quan: ↓depressive symptoms, ↑functional performance, ↓disability; no effect on anxiety | ROB low (Cochrane) |
Dye, 201838 | Matched | Quan: ↓ ED/hospital admissions (no test of significance) | Weak (EPHPP) |
Geffen, 201939 | Baseline | Quan: ↑ well-being, social support, activity participation, social interaction, physical activity; ↓ mood symptoms, loneliness; no change in falls | Moderate (EPHPP) |
Qual: increased connection, skills, benefits to self and family for AgeWell Visitors | − (NICE) | ||
Lawn, 201740 | N/A | Qual: more collaborative relationship between clients and support workers; shift in role towards behavior change and risk identification; increased skills | + (NICE) |
Li, 201941 | N/A | Qual: team model and support of leaders key to success; increased knowledge of village doctors and aging workers; existing relationship supported collaboration; improved mood/health in patients | + (NICE) |
Panagioti, 201842 | UC | Quan: No effect on self-management, quality of life, depression, self-care | ROB high (Cochrane) |
Russell, 201743,b | Baseline | Quan: ↑ quality of life (visual analogue scale only) and self-care; no change in overall quality of life | Weak (EPHPP) |
Qual: positive opportunity and impact for home health aides; facilitated relationship with clients | + (NICE) | ||
Walters, 201744 | UC + written ed | Quan: ↑ functioning, ↓ psych distress, ↑ grip strength; no effect on well-being, frailty characteristics, substance use, cognition, falls, quality of life | ROB some concerns (Cochrane) |
Qual: Health needs motivated participants, satisfied with intervention; project workers gained confidence in role over time; behavioral change approach did not suit all participants | ++ (NICE) | ||
Wang, 201345 | UC | Quan: ↑ medical knowledge and 3/6 behaviors; no effect on attitude | Moderate (EPHPP) |
Additional outcome details are available in Supplementary Tables S2–S3.
Abbreviations: ED, emergency department; qual, qualitative; quan, quantitative; ROB, risk bias; UC, usual care.
The Revised Cochrane Risk-of-Bias (RoB 2) Tool for Randomized Trials34 was used for RCTs, the Effective Public Health Practice Project (EPHPP) Quality Assessment Tool for Quantitative Studies36 was used for quasi-experimental studies, and The National Institute for Health and Care Excellence (NICE) Quality Appraisal Checklist35 was used for qualitative studies.
Only 1 of the 2 described interventions in this article met criteria for this systematic review.
Qualitative Findings
Five studies included qualitative findings, either alone or in addition to quantitative outcomes (Table 4 and Supplementary Table S3).39–41,43,44 All included interviews or focus groups with interventionists, and two also interviewed older adult participants.40,44 In general, studies demonstrated feasibility and acceptability of the intervention, positive experiences among interventionists who found their role was beneficial and fulfilling, and satisfaction among older adults with the intervention and interactions with CHWs.
Quality Assessment
Studies were generally of low-to-moderate methodological quality. Only one high-quality RCT with low risk of bias was identified using the Revised Cochrane Risk-of-Bias Tool for Randomized Trials,37 and only one study with a qualitative component received the highest quality rating using the NICE Quality Appraisal Checklist44 (Table 4).
DISCUSSION
This systematic review identified nine eligible studies of CHW-led interventions for older adults with complex health needs, of which three were conducted in the U.S. Eligible studies were all published within the past 7 years, including three since 2019. This recent increase in relevant publications suggests that CHW-led interventions may be an underutilized, but growing, resource for older adults with complex health needs.
While implementation of CHW-delivered interventions for this population was considered feasible across urban and rural study settings in six countries, the methodological quality was generally low-to-moderate. The single high-quality RCT in this review by Alegría and colleagues investigated a CHW-delivered cognitive-behavioral therapy-based psychosocial intervention in combination with an exercise trainer-led group exercise program for older adults with mood symptoms and minor-to-moderate disability, which had significant effects on mood (Hopkins Symptom Checklist, HSCL-25) and function (Short Physical Performance Battery, SPPB and Late-Life Function and Disability Instrument, LLFDI).37 A pilot RCT conducted by Walters and colleagues similarly investigated a home-based behavioral change intervention that incorporated home exercise for older adults with mild frailty and demonstrated improvement in mood (General Health Questionnaire, GHQ-12) and function (Modified Barthel Index and grip strength), as well as participant satisfaction as evident from qualitative evaluation.44
These studies suggest that CHW-led multicomponent interventions for older adults with early disability and frailty have the potential to improve mood and functional outcomes, which is consistent with WHO Integrated Care for Older People (ICOPE) guidelines for supporting functional capacity in older adults through an integrated, multicomponent approach.46,47 However, additional studies with larger sample sizes and rigorous quantitative and qualitative methodology are needed to confirm health outcome findings and further explore the experience and perceived benefit of older adult participants and CHWs involved in these programs. Future work is also needed to determine whether certain clinical or sociodemographic characteristics predict benefit from these interventions, which components of complex multicomponent interventions are critical for effectiveness, and how variations in CHW and delivery characteristics impact outcomes.
This review has several limitations. We used broad search terms to capture all interventionists whose roles may be in line with the APHA definition of CHWs; however, we may have missed some relevant studies given the variation in name, training, and role of this workforce.30 We did screen 90 additional studies identified through the reference lists of included articles, none of which met eligibility criteria. Publication bias should also be considered, as we only included intervention studies in peer-reviewed journals; a search including unpublished or grey literature may have identified additional relevant studies. We also chose to include two studies in which existing home health aides or support workers received additional self-management and behavioral change training consistent with a CHW role, which may have increased the heterogeneity of the interventionists in our included studies. We chose to include studies outside the U.S. given the long history of CHW interventions in low- and middle-income countries which have informed the development of CHW programs in the U.S.,48 but the variability in geographic, policy, and economic contexts across these settings further increases the heterogeneity of included studies.
By limiting our definition of complex health needs to multimorbidity, frailty, disability, and high-utilization, our review may have excluded relevant studies of other complex conditions such as dementia, serious mental illness, malignancy, or poorly controlled chronic diseases such as diabetes. Dementia warrants particular consideration, given its significant association with disability, decline, and mortality in older adults.49 While none of the eligible studies in this review focused on dementia, this population may benefit from CHW interventions. For example, the Aging Brain Care model has shown that collaborative care incorporating lay interventionists (“care coordinator assistants”) may improve clinical outcomes in older adults with dementia.50 Our search strategy also identified several relevant studies that were excluded based on age during screening (due to participants under age 60), including the LifeCourse model, which incorporates lay “care guides” to improve quality of life in seriously ill older adults,51 and the IMPaCT CHW model, which has demonstrated improved health outcomes in adults with multimorbidity.22,23 Our review did include several studies with socially vulnerable participants, but this was not specified in our eligibility criteria for complexity. As U.S. older adults with complex health needs experience high rates of socioeconomic strain and isolation,2 there is a need to further investigate the potential impact of CHW interventions on socially vulnerable older adults, particularly given the well-suited skills and training of CHWs to serve populations with high social needs.16,52
We employed broad criteria for four categories of complexity to capture the existing literature on older adult CHW interventions and to identify gaps for future work. While they share underlying risk for decline and loss of independence over time, these high-need older patient populations are inherently heterogeneous, and typically lack standardized definitions.53,54 Only two studies in this review used validated instruments for disability and frailty to determine study eligibility.37,44 Variable definitions for multimorbidity, frailty, disability, and high utilization across studies limits the validity and reliability of our findings. At the same time, this may also increase the generalizability to clinical and community care settings where complex needs are often ill-defined. Future work should focus on the use of pragmatic clinical tools (e.g., measures of comorbidity, frailty, function, or vulnerability) to systematically identify at-risk older adults who may benefit from CHW interventions.
Identifying evidence-based interventions to prevent and manage complex conditions in older adults has important clinical and public health implications. This patient population has diverse, costly, and time-intensive needs, and those who are homebound and most vulnerable may be challenging to identify and manage in typical clinic-based settings.2,55,56 Though the impact of comprehensive care management in medically complex adults remains unclear,57,58 innovative multicomponent interventions and team and home-based care models in older adults with complex conditions are promising.37,44,55,59 Studies have demonstrated that CHWs linked to primary care settings can positively impact health-related outcomes in medically and socially complex general adult populations.22,23 Our review suggests that CHW interventions may also benefit older adults with complex needs; should further work demonstrate effectiveness, integration of CHWs into geriatric primary care and consultative clinical settings may improve outcomes in this population. However, sustainable, large-scale dissemination of such programs would necessitate policy reform including payer reimbursement for CHW services, which to date is not widely established in the U.S.60
In summary, there is a limited body of evidence demonstrating impact of CHW-led interventions for older adults with complex conditions. One high-quality RCT and several moderate-quality studies in this review show promise for interventions led by this workforce, particularly the potential impact of multicomponent psychosocial and exercise interventions on mood and function in older adults with disability or frailty. There is a need for additional high-quality studies to understand the impact, cost-effectiveness, and ideal implementation strategies for CHW-led interventions for older adults with complex needs. As the current population ages, the geriatric healthcare workforce will be further stretched. Effective, scalable interventions led by CHWs and other non-clinicians could play an important role in supporting functional independence and well-being among vulnerable older adults.
Supplementary Material
Key Points:
We conducted a systematic review of interventions led by community health workers (CHWs) for older adults with complex health needs, defined as multimorbidity, frailty, disability, and high-utilization.
There is limited published research on CHW interventions for older adults with complex health needs; nine studies of generally low-to-moderate methodological quality met eligibility criteria for this review.
One high-quality RCT and several moderate-quality studies suggest benefit, particularly for the impact of multicomponent CHW interventions on mood and functional outcomes.
Why Does this Paper Matter?
CHW-delivered interventions may improve health outcomes, particularly mood and function, in older adults with complex health needs.
ACKNOWLEDGEMENTS
The authors thank Martha L. Bruce, PhD, MPH and Stephen J. Bartels, MD, MS for their expert mentorship throughout this project.
Financial Disclosures:
This work was supported in part by resources at the VA Bedford Healthcare System in Bedford, MA, the Health Resources and Services Administration (grant number T32HP30036), the National Institute on Aging (grant numbers K23AG043498 and K23AG051681), and the Health Promotion and Disease Prevention Research Center by cooperative agreement no. U48DP005018 from the Centers for Disease Control and Prevention. The content of this article is solely the responsibility of the authors and does not necessarily represent the official views of the Department of Veterans Affairs or the United States Government, the Health Resources and Services Administration, the National Institutes of Health, or the Centers for Disease Control and Prevention.
Sponsor’s Role:
The sponsors had no role in the design or conduct of this study or in the preparation of this article.
Footnotes
Conflicts of Interest: The authors have no conflicts of interest related to this article.
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