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. Author manuscript; available in PMC: 2022 Apr 1.
Published in final edited form as: Med Care. 2021 Apr 1;59(Suppl 2):S158–S164. doi: 10.1097/MLR.0000000000001444

Health Care Utilization of Individuals Affected by Homelessness: Illinois, 2011–2018

Dana Madigan 1,2,*, Lee S Friedman 1
PMCID: PMC8635209  NIHMSID: NIHMS1634125  PMID: 33710089

Abstract

Objectives:

To describe individuals coded as homeless in state-level data comprising of outpatient and inpatient cases over a multi-year period to provide public health surveillance data on the health care utilization and needs of this population.

Research Design:

In this cross-sectional study, outpatient and inpatient visits coded for homelessness were identified from the Illinois Hospital Discharge Database for January 1, 2011 through December 31, 2018. Demographic characteristics, primary diagnosis and comorbid conditions, and hospital course of treatment were described. Predictors of discharge to a healthcare facility versus routine discharge to home or self-care were evaluated using multivariable logistic regression.

Results:

There were 154,173 patient visits predominantly involving males, those aged 25–64 years, and non-Hispanic whites and African-Americans. The majority had comorbidities of depression, psychosis and/or substance abuse (70.2%) and a routine discharge to home or self-care (81.9%). Discharge to home or self-care relative to another health care institution was associated with having charity coverage and being Black/African-American.

Conclusions:

Those experiencing homelessness experience a high burden of health concerns. Hospital billing records can be used to prioritize the distribution of limited public health resources for health care programs and interventions among those experiencing homelessness.

Keywords: homeless persons, delivery of health care, population surveillance

INTRODUCTION

Those with unstable or a lack of housing are at an increased risk and experience increased severity of many health conditions, but these health concerns are difficult to measure and address with early intervention. The homeless population is comprised of families that move to where there is available work, individuals living out of personal vehicles, individuals that sleep in makeshift homes predominately in urban settings, persons living in various public and private shelters, and rough sleeping encampments.1,2 Because of the challenges in reaching this population, hospitals can play an important role in surveillance of this population because they may be the only point of contact a person affected by homelessness has with formal public health infrastructure outside of law enforcement and public education services. Additionally, it is likely to be the only location we can gather comprehensive and reliable information about the health characteristics of these individuals.

A systematic review examining the health of individuals affected by homelessness in high-income countries noted that while there are many common public health priorities shared among the homeless across these countries, surveillance needs to occur regularly within these health systems since the optimal public health strategies for this population can vary across time and region and their health care needs are generally greater than the general population.3 Infectious diseases, such as tuberculosis, hepatitis, human immunodeficiency virus (HIV), and chronic infestations of scabies and lice are more common among homeless individuals.3 Chronic age-related conditions affect the homeless 10–15 years earlier than the general population, which is important since the median age of the homeless in the U.S. is approximately 50 years old.3 In the US, these include substance abuse, mental illness, diabetes, cardiovascular disease, cerebrovascular disease, cognitive impairments, and functional impairments.3 Homeless individuals are more likely than the non-homeless to seek care at an emergency department or hospital and the subset of individuals with substance abuse and mental disorders have been shown to seek care in the hospital setting more frequently during a calendar year.36

Improved surveillance data of health care utilization patterns of the homeless may lend insights to programmatic and service needs of this population.7 Studies currently tend to look at hospital data covering very short periods of one year or less, restricted to specific facilities serving small geographic regions, include only those identified as homeless through newly implemented screening questionnaires rather than general ICD (International Classification of Diseases; Geneva, Switzerland: World Health Organization;) coding, and limit their inclusion criteria to specific populations such as veterans or the mentally ill.6,810 We aimed to describe all individuals coded as homeless in state-level data comprising of outpatient and inpatient cases over a multi-year time frame to provide public health surveillance data on the health care utilization and needs of this population.

METHODS

Data Source

Data from the Illinois Hospital Discharge Database for January 1, 2011 through December 31, 2018 were used to identify outpatient and inpatient visits where patients are identified as affected by homelessness at the time of the clinical visit. The outpatient database includes all patients treated in emergency rooms for less than 24 hours who were not admitted to the hospital and those that are registered in the emergency department for ambulatory services. The inpatient database includes all patients treated for 24 hours or more for any medical reason. Both databases are based on billing records and include variables on patient demographics (age, gender, race/ethnicity), exposure (mechanism of injury), health outcomes (diagnoses, hospital procedures, discharge status), and economics (hospital charges, payer source). Based on the annual state audit of hospitals, the hospitals included in the datasets used for this analysis comprise 96.5% of all patient admissions statewide.11,12

Case Definition

Patient visits were identified as cases in accordance with previous studies using hospital data to examine homelessness using a billing code of V60.0 for “lack of housing” (International Classification of Diseases, Ninth Revision [ICD-9; Geneva, Switzerland: World Health Organization; 1980]) or the equivalent code of Z59.0 for “homelessness” (International Classification of Diseases, Tenth Revision [ICD-10; Geneva, Switzerland: World Health Organization; 1992]).13 Alternative codes for inadequate housing (V60.1), which refers to poor infrastructure and unspecified housing or economic circumstances (V60.9), were not included in the case definition despite their inclusion in broader definitions14 because we do not have the capacity to verify unstable or lack of housing as opposed to inadequate housing.

The Centers for Disease Control and Prevention (CDC) equivalence mapping between ICD-9 and ICD-10 recommends that V60.0 is equivalent to Z59.0. The difference in coding reflects the transition in the United States (US) in the fourth quarter of 2015 from ICD-9 to ICD-10. The coding schemas for ICD-9 and ICD-10 codes are essentially capturing the same type of homeless population despite the slight change in terminology. The ICD-9 V60.0 codes captures persons with a lack of housing and explicitly identifies the following subgroups: hobos, social migrants, tramps, transients and vagabonds. The ICD-10 Z59.0 code captures persons with a lack of housing (permanent) (temporary) or shelter and explicitly identifies the following subgroups: nomad, nomadism (i.e. new term for hobo), social migrant, tramp, transient, vagabond, vagabondage, and vagrancy.

Identifying Unique Visits Using Probabilistic Linkage

Using probabilistic data linkage methodology, we identified unique hospital visits. Identifying duplicates within datasets was done by using facility, attending clinician, primary ICD code, date of birth, gender, zip code, date of admission, and date of discharge. Then we manually screened these duplicates to identify truly mismatched ICD codes. Duplicates can result from system errors (e.g. a record is submitted twice after data entry), errors between coders (e.g. two or more coders accidentally enter a patient’s information twice), or from quality control practices at facilities that intentionally have two coders enter the same patient information. In addition, duplicate entries occur from split billing and sequential billing practices. Split billing generally is used when separate bills are issued for treatment by different specialists during a single hospitalization (e.g. neurologist, endocrinologist, and surgeon). The patients will have multiple records for the same period of time, but the diagnoses may differ substantially based on the treating physician’s specialty. Sequential billing occurs in some hospitals where patients have multiple records with identical diagnoses, but different and consecutive admission and discharge dates. These occur primarily among patients with long lengths of stay. This resulted in removing 4,318 duplicates for a final sample of 154,173 patient visits for those with an ICD code for homelessness.

Covariates

Key variables summarized include patient characteristics (gender, age, race and ethnicity), facility information (name, location, trauma level), length of stay, total hospital costs, insurance coverage, discharge status, reason for visit, comorbidities, and acute injuries. Metropolitan areas were designated using the US Department of Agriculture (USDA) Rural-Urban Continuum Codes.15 Total hospital charges is the sum of all procedure, service, and facility charges accumulated from the point of admission to discharge. Total hospital charges are in 2018 US dollars adjusted for annual inflation using the Bureau of Labor Statistics (BLS) Consumer Price Index (CPI-U).16 Hospital charges are a proxy measure for cost, but may not directly reflect reimbursement rates, resource consumption, or comprehensive economic costs. As data were coded using both the ICD-9 and ICD-10 classification system, diagnosis were categorized and crosswalked to summarize groups of conditions. There were 10,448 (6.8%) visits without a coded primary diagnosis, primarily in outpatient visits (n=9,470; 90.6%). The Elixhauser Comorbidity Index was used to assess comorbidities.17

Statistical Analysis

All statistical analyses were conducted using SAS software (v.9.4; SAS Institute Inc., Cary, NC). As part of the descriptive analysis, we compared demographic characteristics, geospatial trends, temporal trends, primary diagnosis, comorbid conditions, and hospital course of treatment measures.

An adjusted multivariable logistic regression model was developed to evaluate predictors of being discharged to a healthcare facility versus being routinely discharged to home or self-care, a predefined status code, which for this population likely meant returning to a state of homelessness. Statistical evaluation of covariates, as well as a priori knowledge, was used to determine inclusion of covariates in the final models. The final model included patient characteristics (gender, age, race and ethnicity), insurance coverage, operations, acute injuries, diagnoses, and comorbidities. A modified Elixhauser Comorbidity Index was created for this purpose that excluded depression and psychosis. These groups were modeled separately as crude analysis demonstrated a difference in discharge status based on these comorbidity groups. No evidence of multicolinearity among the independent variables was indicated. A two-sided p-value less than 0.05 was considered statistically significant.

RESULTS

Characteristics of the Homeless Being Treated in the Hospital Setting

The number of hospital visits of those with reported homelessness increased between 2011–2018 from 9,882 to 29,765 (average annual increase=2,602, p<0.001). There was minimal variability in visits seen by month or day of the week. Hospital visits predominantly involved males, adults between the ages of 25–64 years, and non-Hispanic whites and African-Americans (Table 1). Government insurance was the primary payer for these visits (Table 1). There were dramatic increases in those covered by Medicare and Medicaid (48.9% of visits in 2011 to 77.7% in 2018) and conversely, reductions in self-pay (i.e. no health insurance; 32.0% to 10.5%) and charity care (9.6% to 1.5%) (Figure 1). This change was concentrated around the implementation of the Patient Protection and Affordable Care Act (2014). Charity care refers to visits that have waived medical fees. Total cumulative charges in 2018 adjusted US dollars (USD) for treating homeless patients between 2011–2018 in Illinois was $2.34 billion USD with most of the charges occurring among inpatient cases ($2.02 billion).

TABLE 1 -.

Demographic Characteristics of Patient Visits of those Experiencing Homelessness

Inpatient
(N=76,952)
% Outpatient
(N=77,221)
%
Gender
 Female 20,445 26.57 20,809 26.95
 Male 56,498 73.42 56,411 73.05
 Unknown 9 0.01 1 0.00
Age
 0 to 4 yrs 121 0.16 240 0.31
 5 to 9 yrs 86 0.11 120 0.16
 10 to 14 yrs 148 0.19 99 0.13
 15 to 19 yrs 1,315 1.71 1,049 1.36
 20 to 24 yrs 5,592 7.27 4,558 5.90
 25 to 34 yrs 13,983 18.17 12,067 15.63
 35 to 44 yrs 15,435 20.06 15,467 20.03
 45 to 54 yrs 21,671 28.16 21,804 28.24
 55 to 64 yrs 14,740 19.15 17,729 22.96
 65 to 74 yrs 3,283 4.27 3,370 4.36
 75 yrs and older 578 0.75 712 0.92
 Unknown 0 0.00 6 0.01
Mean Age (sd) 44 13.63 45 13.66
Race/Ethnicity
 Non-Hispanic White 35,021 45.51 31,332 40.57
 Non-Hispanic African-American 27,324 35.51 33,992 44.02
 Hispanic 5,159 6.70 4,981 6.45
 Asian 292 0.38 319 0.41
 Pacific Islander 1,268 1.65 161 0.21
 American Indian/Alaska Native 250 0.32 129 0.17
 Other 5,334 6.93 4,617 5.98
 Unknown 2,304 2.99 1,690 2.19
Primary payer type
 Medicaid 39,002 50.68 35,665 46.19
 Medicare 14,819 19.26 13,627 17.65
 Self-pay/Self-administered 8,377 10.89 15,969 20.68
 Charity 2,019 2.62 3,754 4.86
 Private/Commercial Insurance 11,124 14.46 7,131 9.23
 Military (Champus Tricare, Champva) 90 0.12 65 0.08
 Workers’ Compensation 7 0.01 18 0.02
 Other 1,514 1.97 992 1.28
Median Hospital Charges (IQR) $16,025.50 $10,002.00-$27,450.00 $2,049.12 $921.00-$4,478.00

FIGURE 1.

FIGURE 1.

Percent of visits covered by government insurance, self-pay, and charity each year.

Location and Type of Hospitals Treating Homeless in Illinois

The vast majority of visits were for those who identified as being Illinois residents; 93.1% of visits had patient zip codes located in Illinois and less than 2% of those claiming Medicaid coverage did so through a state other than Illinois Medicaid. The majority of visits were in facilities within Chicago (48.3%) and the surrounding suburbs (31.0%). In addition, a large proportion of visits occurred in facilities with a level I or II trauma unit (30.3% and 22.2% respectively). Out of approximately 208 hospitals reporting to the billing system annually, around 30% of inpatient cases and 40% of outpatient cases were treated in just 10 hospitals within Illinois. Over 95% of visits were to metropolitan hospitals located in USDA metropolitan areas.

Reason for Hospital Visits

The most common primary reasons for hospital visits were mental disorders, substance abuse (drug and alcohol), musculoskeletal and connective tissue disorders, diseases of the respiratory system, diseases of the circulatory system, and skin diseases. This was similar when comparing males and females; however, pregnancy complications replaced diseases of the circulatory system as the 5th most common primary diagnosis in females. When comparing primary diagnosis for the following major age groups -- children (under 18 years), adults (aged 18–64), and older adults (aged 65 and older) -- mental disorders remained the most common diagnosis in all three age groups. However, among children, diseases of the respiratory system, infectious diseases, skin diseases, superficial injuries, and conditions of the eye and ear were the next most common. In older adults, mental disorders were followed by diseases of the circulatory system, diseases of the respiratory system, substance abuse, musculoskeletal and connective tissue disorders, and skin diseases. There was little variation when comparing those with governmental insurance to those that were self-pay or charity, with only skin diseases being more common than diseases of the circulatory system in self-pay or charity visits.

The primary reason for the hospital visits coincided strongly with the reported co-morbid conditions as characterized by the Elixhauser Comorbidity Index (Table 2). Drug abuse, depression, alcohol abuse, or psychosis was found in 108,232 visits (70.2%), while HIV/AIDS was identified as a comorbidity in 1,691 visits (1.1%).

TABLE 2-.

Elixhauser Comorbidities in Patient Visits of those Experiencing Homelessness

Inpatient
(N=76,952)
% Outpatient
(N=77,221)
%
Mean Number of Comorbidities (sd) 3.07 1.68 1.37 1.33
Number of patient visits with 3+ comorbidities 45,013 58.49 13,233 17.14
Type of Comorbidity
 Drug Abuse 37,428 48.64 11,706 15.16
 Depression 29,184 37.92 12,422 16.09
 Alcohol Abuse 28,433 36.95 18,338 23.75
 Psychosis 22,378 29.08 11,276 14.60
 Hypertension (Uncomplicated) 22,274 28.95 14,776 19.13
 Chronic Pulmonary Disease 17,419 22.64 9,674 12.53
 Fluid And Electrolyte Disorders 12,495 16.24 2,555 3.31
 Other Neurological Disorders 7,814 10.15 4,258 5.51
 Diabetes (Uncomplicated) 6,805 8.84 5,537 7.17
 Obesity 6,706 8.71 1,105 1.43
 Cardiac Arrhythmia 5,981 7.77 2,851 3.69
 Liver Disease 4,935 6.41 1,241 1.61
 Congestive Heart Failure 4,313 5.60 1,705 2.21
 Hypertension (Complicated) 3,617 4.70 1,159 1.50
 Diabetes (Complicated) 3,601 4.68 1,315 1.70
 Coagulopathy 3,052 3.97 413 0.53
 Renal Failure 3,031 3.94 848 1.10
 Hypothyroidism 2,906 3.78 863 1.12
 Weight Loss 2,871 3.73 300 0.39
 Deficiency Anemia 2,777 3.61 442 0.57
 Peripheral Vascular Disorders 1,411 1.83 453 0.59
 Pulmonary Circulation Disorders 1,105 1.44 144 0.19
 HIV/AIDS 968 1.26 723 0.94
 Solid Tumor without Metastasis 957 1.24 222 0.29
 Valvular Disease 888 1.15 281 0.36
 Rheumatoid Arthritis/collagen 664 0.86 402 0.52
 Paralysis 563 0.73 188 0.24
 Peptic Ulcer Disease without Bleeding 554 0.72 121 0.16
 Metastatic Cancer 421 0.55 57 0.07
 Blood Loss Anemia 261 0.34 20 0.03
 Lymphoma 126 0.16 34 0.04

When stratifying mental disorders, the most common diagnosis was for mood disorders (n=24,507; 31.9% of inpatient visits versus n=4,502; 5.8% of outpatient visits) followed by non-mood psychotic disorders (e.g. schizophrenia, schizotypal, and delusional disorders; n=14,122; 18.4% of inpatient visits versus n=3,719; 4.8% of outpatient visits). The most common substance abuse diagnoses were as follows: alcohol (n=5,609; 7.3% of inpatient visits versus n=10,534; 13.6% of outpatient visits), opioids and analgesics (n=1,371; 1.8% of inpatient visits versus n= 570; 0.7% of outpatient visits), cocaine (n=221; 0.3% of inpatient visits versus n=290; 0.4% of outpatient visits), sedatives, hypnotics, and anxiolytics (n=234; 0.3% of inpatient visits versus n=61; 0.1% of outpatient visits), other stimulants (n=141; 0.2% of inpatient visits versus n=60; 0.1% of outpatient visits), and cannabis and hallucinogens (n=64; 0.1% of inpatient visits versus n=124; 0.2% of outpatient visits).

Acute injuries accounted for 15.2% of visits (n=23,457) and these injuries were most commonly due to exposures to weather and environmental conditions (n=2,988; 12.7%; of which n=2,304 were cold-related and n=300 were heat-related), falls (n=2,862; 12.2%), assaults (n=1,813; 7.7%), suicide attempts (n=1,242; 5.3%), and poisonings or adverse effects of drugs (n=1,233; 5.3%).

Length of Stay and Discharge Outcomes

A small percentage of hospitalizations resulted in death or discharge to hospice (n=351; 0.23%) (Table 3). The large majority of visits (81.9%) had a routine discharge to home or self-care (76.4% of inpatient visits and 87.4% of outpatient visits) (Table 3). Approximately 4.8% of visits (n=7,472) resulted in being discharged or transferred to psychiatric facilities (Table 3), of which 397 (5.3%) were following suicide attempts and 3,560 (47.6%) had a primary diagnosis code for a mental disorder. Individuals discharged or transferred to psychiatric facilities were predominantly male (n=5,456; 73.0%), white (n=3,756; 50.3%), aged 45–54 years (n=2,029; 27.2%) and with government insurance (n=5,156; 69.0%). Few were discharged or transferred to a court or law enforcement (0.37%) (Table 3). Visits resulting in being discharged or transferred to a court or law enforcement had a primary diagnosis code for a mental disorder (n=239; 42.1%) or drug and alcohol abuse (n=88; 16.0%) and individuals were predominantly male (n=437; 76.9%), white (n=329; 57.9%), aged 25–34 years (n=159; 28.0%), and with government insurance (n=353; 62.1%).

TABLE 3 -.

Length of Stay and Discharge Status of Patient Visits of those Experiencing Homelessness

Inpatient
(N=76,952)
% Outpatient
(N=77,221)
%
Length of Stay
 Outpatient visits greater than one day NA NA 5,615 7.27
 Inpatient length of stay (mean days (sd)) 6.21 6.99 NA NA
Visit Characteristics
 Operations 5,941 7.72 565 0.73
 Suffered an acute injury in the hospital 755 0.98 38 0.05
Discharge Description
 Routine discharge to home or self-care 58,803 76.42 67,485 87.39
 Discharge/transferred to long-term/intermediate facility 8,704 11.31 646 0.84
 Discharged/transferred to a psychiatric hospital or psychiatric distinct unit of a hospital 2,601 3.38 4,871 6.31
 Left against medical advice/discontinued care 3,458 4.49 2,260 2.93
 Discharged/transferred to a short-term/acute facility 1,297 1.69 877 1.14
 Other 1,088 1.41 697 0.90
 Discharged/transferred to court/law enforcement 291 0.38 277 0.36
 Discharge/transferred to home health care service 416 0.54 51 0.07
 Expired/hospice 294 0.38 57 0.07

We identified several predictors of discharge to a healthcare facility opposed to discharge to home or self-care, which were similar between inpatient and outpatient visits. The strongest predictor that a homeless individual would be discharged to a secondary healthcare facility was a suicide attempt (Table 4). Other factors consistently associated with discharge to a healthcare facility include having governmental insurance, serious comorbidities as measured by the modified Elixhauser Comorbidity Index, depression, and psychosis (Table 4). Suicide attempts, depression, and psychosis were much stronger predictors for outpatient visits than inpatient visits (Table 4). Having charity coverage and being Black/African-American were consistently associated with not being discharged to a healthcare facility (Table 4).

TABLE 4 -.

Predictors of Discharge to Another Healthcare Facility Compared to Routine Discharge to Home or Self-care

Inpatient Outpatient All
Adjusted OR
CI95%
Adjusted OR
CI95%
Adjusted OR
CI95%
Year of Visit 0.98 (0.97, 0.99) 1.01 (1.00, 1.03) 0.99 (0.98, 0.99)
Male 0.94 (0.9, 0.99) 1.02 (0.96, 1.09) 1.01 (0.97, 1.05)
Age (per 10 years) 1.31 (1.28, 1.32) 0.86 (0.84, 0.88) 1.09 (1.08, 1.10)
Race/Ethnicity
 Black/African-American 0.81 (0.78, 0.85) 0.66 (0.62, 0.70) 0.76 (0.74, 0.79)
 Hispanic or Latino 0.91 (0.84, 0.99) 1.00 (0.89, 1.12) 0.94 (0.88, 1.01)
 Other 1.01 (0.94, 1.08) 0.80 (0.71, 0.91) 0.94 (0.88, 0.99)
Payor
 Government Insurance 1.11 (1.05, 1.17) 1.18 (1.08, 1.29) 1.13 (1.08, 1.19)
 Charity 0.61 (0.52, 0.71) 0.67 (0.56, 0.80) 0.63 (0.56, 0.71)
 Self-Pay 0.59 (0.54, 0.65) 0.95 (0.85, 1.06) 0.74 (0.70, 0.79)
Acute Injury 1.74 (1.65, 1.83) 0.71 (0.65, 0.78) 1.34 (1.28, 1.39)
Suicide Attempt 2.52 (2.19, 2.91) 7.75 (5.86, 10.25) 3.15 (2.78, 3.57)
Comorbidity
 Depression 1.09 (1.05, 1.14) 4.26 (4.02, 4.51) 1.91 (1.85, 1.98)
 Psychoses 1.75 (1.67, 1.83) 4.26 (4.01, 4.53) 2.76 (2.66, 2.86)
 Operation 2.42 (2.27, 2.58) 1.06 (0.77, 1.45) 3.14 (2.95, 3.33)
 Additional Comorbidity (Modified Elixhauser) 1.09 (1.08, 1.10) 1.11 (1.09, 1.13) 1.17 (1.15, 1.18)

DISCUSSION

This study found that the large majority of hospital visits in Illinois for those coded as homeless had comorbidities of depression, psychosis, and/or substance abuse (70.2%). Only a small fraction of visits were treated for acute injuries, the most common causes of injury were from weather-related risks, falls, and from being assaulted. Mental health issues were the most common primary diagnosis across all major age groups, even in children. Among hospital visits for the female homeless, pregnancy complications were identified in the top five primary diagnoses.

The large majority of visits (81.9%) had a routine discharge to home or self-care (76.4% of inpatient visits and 87.4% of outpatient visits) which for this population would predominately involve returning to their conditions of homelessness. However, this study demonstrates that disparities persist for racial groups or those that are uninsured. African-Americans represented 40% of the hospital visits despite representing less than 15% of the Illinois population (or approximately 30% in Chicago), and African-Americans were far less likely to be discharged to a secondary facility that could delay return to conditions of homelessness or assist with transitioning out of homelessness.

This work provides comprehensive details on what has been observed in other studies examining the health concerns of those affected by homelessness; there is a high prevalence of mental disorders, substance abuse, infectious disease, and chronic disease seen at an earlier age36 and observed very few patients over the age of 75 years. There has traditionally been a lot of focus on subpopulations suffering from health conditions with significant consequences, such as HIV/AIDS. This data shows there is a much higher prevalence of other conditions and there may be unintended health consequences from focusing exclusively on narrow subgroups, rather than developing broad programs. However, policies that have been successful in addressing conditions like HIV/AIDS in this population could provide insights for further improving the general health care of those affected by homelessness.

There remains a significant burden of care and cost to hospitals for the healthcare of those affected by homelessness. However, with the expansion of the insurance coverage in Illinois because of the Patient Protection and Affordable Care Act implementation (January 1, 2014), the proportion of patient visits without any insurance coverage decreased dramatically. While reimbursement rates fluctuate, it can be assumed they are significantly lower than $2.34 billion dollars in charges for this population found in this study and these charges only represent one component of direct costs. These visits are concentrated in a small percentage of hospitals within the state of Illinois and demonstrates that this burden of care falls disproportionally on specific facilities. While it may be hard to adequately address and accommodate at the facility level, this clustering of visits may provide benefits when trying to reach this population or implement interventions that provide a transition from homelessness to residency programs.

It is not feasible to develop transition programs in every hospital but our data show that programs could be housed in a small fraction of hospitals that treat the vast majority of the homeless population seen in emergency departments. Discharge to medical respite programs which are short-term residential care programs for those too sick to be discharged back to the streets have demonstrated some success in limiting readmissions, but it occurs far less frequently. Most homeless individuals are discharged to other settings which have not been shown to achieve similar results as medical respite programs.18 Safety-net hospitals, which provide care regardless of insurance status or ability to pay, are more likely to serve this population but have been shown to employ fewer strategies to reduce readmissions.19

The Patient Protection and Affordable Care Act may allow for increased access of care outside of emergency departments, but this population has shown frequent hospitalizations and emergency department visits despite this coverage, which may be due to a lack of alternative services.6 For example, while those with insurance coverage are better able to access mental health treatment, Illinois has one of the lowest Medicaid-to-Medicare fee ratios resulting in physicians getting reimbursed much less through Medicaid than they would receive for the same service through Medicare. This can create a barrier for the Medicaid population in accessing services as providers may be more reluctant to treat this population and may contribute to the behavioral health care professional shortage in Illinois (14 professionals per 10,000 residents compared to the already less-than ideal national average of 21 per 10,000).20 Illinois spends $77 per capita on mental health services compared to the $133 national average, with approximately three-quarters of those funds going to community-based mental health programs and one-quarter to in-state psychiatric hospitals.21 Mental illness is a known risk factor for incarceration and has significant costs to individuals and society.21 Therefore, more comprehensive interventions are indicated to better address the health needs of those affected by homelessness.

Limitations

There are several limitations to this study. Primarily, misclassification is a concern as many individuals may not be coded as affected by homelessness and there is no way to validate the cases that are coded relative to duration, cause, and current status of homelessness. Because of common social biases for this population, substance abuse and mental illness may be coded differentially in this population. Additionally, ICD-9 and ICD-10 codes cannot be converted in a one-to-one fashion and there may be some lost information that is incongruent between the two systems.

CONCLUSIONS

Hospital discharge data are a valuable public health surveillance tool for evaluating healthcare issues affecting the homeless. Those experiencing homelessness experience a high burden of health concerns and may lack the supportive services needed for improving their health when routinely discharged to home or self-care. Hospital billing records can be used to prioritize the distribution of limited public health resources for health care programs and interventions among those experiencing homelessness. While hospitals provide a valuable source of care to this population, they are likely experiencing a larger burden of care as this is a main access point for psychiatric and other healthcare services since other facilities have been shut down or experienced a loss in funding or reimbursement. Additionally, there is evidence that when these health services are not taken on by hospitals, it is shifted to other social systems that are not designed to address psychiatric and other medical needs, such as the criminal justice.21 Therefore, it is imperative that this population has access to services at the most cost-effective, primary prevention point.

Acknowledgments:

This project is in partial fulfillment of the dissertation requirements for the doctoral degree at the Graduate College of the University of Illinois at Chicago (DM).

Funding Sources: The research reported in this publication was funded, in part, by the National Institute for Occupational Safety and Health (NIOSH) Illinois Education and Research Center (#T42OH008672). The sponsors had no role in in the design, methods, subject recruitment, data collections, analysis or preparation of paper.

Footnotes

Conflicts of Interest: The authors declare that they have no conflicts of interest.

Human Protections: This study received IRB approval under University of Illinois at Chicago’s protocol #2008–0060.

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