Abstract
Objectives:
To examine the association of patient and direct-care staff beliefs about patients’ capability to increase independence with activities of daily living (ADL) and the probability of successful discharge to the community after a skilled nursing facility (SNF) stay.
Design:
Retrospective cohort study of SNF patients using 100% Medicare inpatient claims and Minimum Data Set resident assessment data. Linear probability models were used to estimate the probability of successful discharge based on patient and staff beliefs about the patient’s ability to improve in function, as well as patient and staff beliefs together. Estimates were adjusted for demographics, health status, functional characteristics, and SNF fixed effects.
Participants:
Fee-for-service Medicare beneficiaries (N=526,432) aged 66 years or older who were discharged to an SNF after hospitalization for stroke, hip fracture, or traumatic brain injury.
Interventions:
Not applicable.
Main Outcome Measures:
Successful community discharge (discharged alive within 90d of SNF admission and remaining in the community for ≥30d without dying or health care facility readmission).
Results:
Patients with positive beliefs about their capability to increase independence with ADLs had a higher adjusted probability of successful discharge than patients with negative beliefs (positive, 63.8%; negative, 57.8%; difference, 6.0%, 95% confidence interval [CI], 5.4–6.6). This remained true regardless of staff beliefs, but the difference in successful discharge probability between patients with positive and negative beliefs was larger when staff had positive beliefs. Conversely, the association between staff beliefs and successful discharge varied based on patient beliefs. If patients had positive beliefs, the difference in the probability of successful discharge between positive and negative staff beliefs was 2.5% (95% CI, 1.0–4.0). If patients had negative beliefs, the difference between positive and negative staff beliefs was −4.6% (95% CI, −6.0 to −3.2).
Conclusions:
Patients’ beliefs have a significant association with the probability of successful discharge. Understanding patients’ beliefs is critical to appropriate goal-setting, discharge planning, and quality SNF care.
Keywords: Brain injuries, Goals, Hip fractures, Medicare, Patient-centered care, Rehabilitation, Rehabilitation research, Stroke, Skilled nursing facilities, United States
Patient-centered care requires that patients are a part of their health care team and that their preferences, needs, and values guide clinical decision-making.1,2 Patient-centered approaches improve patient satisfaction, quality of care, and functional outcomes among patients with chronic and complex medical conditions, and are critical components of quality health care.2–6 The Centers for Medicare and Medicaid Services (CMS) has recently prioritized making health care quality measurement more patient-centered through function-related quality measures and linking quality measurement to reimbursement.7–11
Patients, families, and health care providers recognize that increasing independence with activities of daily living (ADL) and self-care are important rehabilitation goals.12–15 Setting goals is an integral part of patient-centered practice as it requires patients, families, and health care providers to establish mutually agreed-upon objectives that guide the care plan.1,7,16 Expectations about recovery, positive affect, and beliefs about the ability to do what is required to recover (self-efficacy) may help patients to set and achieve their goals.17–23 Through interactions with their patients, health care providers can affect patients’ self-efficacy, expectations, and functional outcomes,24–27 whereas not involving patients in decisions can create discordance between patients and their health care teams.28–31 Despite the recognized benefits, financial and organizational pressures,32,33 doubts about patients’ capacity, and practitioners’ difficulty eliciting goals from patients are barriers to patient involvement in clinical decisions.12,28–31,33–38
Our objective was to examine the association between beliefs about a patient’s capability to increase independence with ADLs and successful discharge to the community. Discharging to the community, and remaining in the community for 31 days is a skilled nursing facility (SNF) quality measure, designed to reflect the goal shared by most patients and families of the patient returning home and remaining home after a postacute rehabilitative stay.39 Specifically, we examined whether the probability of successful discharge after an SNF stay was associated with: (1) a patient’s beliefs about their capability to increase independence in ADLs; (2) SNF staff beliefs about a patient’s capability to increase independence in ADLs; and (3) the interaction between patient and staff beliefs (eg, the association between patient’s beliefs and successful discharge conditional on staffs’ beliefs and vice versa). Our analyses focused on patients admitted to SNFs with stroke, hip fracture, and traumatic brain injury (TBI) because a high proportion of these individuals use inpatient postacute care services,40–42 and because their functional limitations with self-care and mobility are the primary reasons for postacute care referral and need for institutionalization after postacute care.43–52 Based on evidence supporting the relationship between independence with ADLs and discharge disposition45,53 and the role of self-efficacy17,54,55 and positive affect22,23 in goal achievement, we hypothesized that positive beliefs held by patients and direct-care staff would be associated with a higher probability of successful discharge.
Methods
Data source
This study is a retrospective cohort analysis using 100% Medicare administrative data for the years 2011 to 2016. We combined the following sources of individual-level data: the Medicare Master Beneficiary Summary File (Medicare enrollment data [ie, demographics and managed care participation]), the Medicare Provider Analysis and Review files (inpatient hospital and SNF encounters), hospice and home health claims, and Minimum Data Set 3.0 (MDS), a federally mandated clinical assessment completed for all residents in CMS-certified nursing homes. The Brown University Institutional Review Board approved this study.
Sample
We combined claims and enrollment data to identify fee-for-service Medicare beneficiaries discharged to a SNF after acute hospitalization for hip fracture, stroke, or TBI between January 1, 2011, and December 31, 2016. Patients were identified based on the International Classification of Diseases code contained in the primary diagnosis field of their hospital claim (see supplemental appendix S1, available online only at http://www.archives-pmr.org/, for specific International Classification of Diseases codes). We identified patients aged 66 and older who had not used SNF or hospice services in the previous year. We excluded patients with missing successful discharge information, a single MDS assessment (ie, those with very short nursing home stays), and incomplete or “unable to determine” patient or staff belief data (primary explanatory variable). The application of the inclusion and exclusion criteria to arrive at the final sample is described in figure 1. Differences between patients who were included versus those who were excluded owing to MDS assessments or missing belief data are detailed in supplemental table S1 (available online only at http://www.archives-pmr.org/).
Fig 1.

Flowchart of Medicare beneficiaries who met the inclusion and exclusion criteria. *A total of 88% of those with incomplete successful discharge information were censored owing to admission after September 1, 2016.
Study variables
Study outcome
The primary outcome was successful discharge from the SNF within 90 days of admission. Successful discharge was identified using residential history file methodology56 and defined as discharge home after an SNF stay and remaining home without admission to an inpatient health care facility (ie, acute hospital, long-term care hospital, SNF, or inpatient rehabilitation hospital), hospice use, or death for 30 continuous days.57 Patients who were readmitted or who died during the SNF stay were not considered successfully discharged. The outcome aligns with the CMS claims-based quality measure, which reports the percentage of patients who return to home and remain alive without readmission to an acute care or long-term care hospital for 31 days.39
Primary explanatory variables
The primary predictors were the rating of the patients’ “Functional Rehabilitation Potential” from the MDS, which indicates whether the resident or the direct-care staff believe the patient is “capable of increased independence in at least some ADLs.” The MDS manual states that a resident’s beliefs should be based on a conversation with the resident and should reflect the resident’s perceptions regardless of how accurate the staff believes those perceptions to be. The rating of staff beliefs should be based on an interdisciplinary team meeting involving staff who routinely work with the resident.58 Responses of “yes” were coded as positive beliefs, responses of “no” were coded as negative beliefs, and patients were excluded if beliefs were “unable to determine,” which was more often among those with significant cognitive deficits.
Covariates
Sociodemographic variables included age, race, and dual Medicare-Medicaid eligibility during the month of admission. The Elixhauser Comorbidity index was calculated based on the set of hospital discharge diagnoses.59 Marital status was categorized into currently married versus other categories. Depression was based on the Patient Health Questionnaire-9 or the Patient Health Questionnaire-9 Observational Version and coded as none to minimal depression (score, <5), mild depression (score, 5–9), or moderate to severe depression (score, >10).60 Body mass index (BMI) was categorized into underweight (<18.5), normal or overweight (18.5–30), or obese (>30).61 Cognition was characterized using the Cognitive Function Scale score, which ranges from 1 (intact) to 4 (severe impairment).62 Because patient beliefs may be reported differently among those with more significant cognitive impairment, we included a dummy indicator for each Cognitive Function Scale score value in all models to limit this source of bias. The ADL-long form score was used to assess independence with ADLs. Scores range from 0 to 28, with higher scores indicating less independence.63,64
Analyses
The characteristics of patients with positive and negative beliefs were summarized using standard descriptive measures, including means, standard deviations, frequencies, and proportions. Bivariate comparisons were made using t tests for continuous variables and chi-square tests for categorical variables. To examine the association of patient beliefs with successful discharge, we used linear probability models controlling for patients’ sociodemographic, health status, and functional status characteristics, and SNF fixed effects. Separate models were used for the full sample and each diagnosis group. By including SNF fixed effects in each model, we estimated the average within-SNF association between patient beliefs and successful discharge (ie, differences between patients with and without positive beliefs pooled across SNFs). Thus, relevant facility-level attributes such as quality were effectively controlled for.
We then examined the association of staff beliefs with successful discharge in using the same methodology but replacing patient beliefs with the staff beliefs as the primary explanatory variable. In a third specification, we included both patient and staff beliefs and an interaction term allowing us to examine the association of patient beliefs with successful discharge conditional on the staffs’ beliefs and vice versa. Point estimates from each model are presented as adjusted probabilities of successful discharge based on either patient or staff beliefs, or their combination, which we derived using the marginal standardization form of predictive margins. All analyses were completed with STATA MP 16.0.a Additional information about the data and methods used for these analyses can be found at https://repository.library.brown.edu/studio/item/bdr:1117604/.
Results
Our final sample included 526,432 Medicare fee-for-service beneficiaries who were discharged to an SNF after hospitalization for hip fracture (n=341,540), stroke (n=142,200), or TBI (n=42,692) between 2011 and 2016. Patient characteristics are described in table 1. The majority (63.4%) of patients were successfully discharged home. Of the 192,834 (36.6%), patients who were not successfully discharged, 47,926 (24.9%) remained in an SNF, 19,427 (10.1%) died before SNF discharge, 28,018 (14.5%) died within 30 days of SNF discharge, and 97,463 (50.5%) entered an inpatient health care facility within 30 days of SNF discharge.
Table 1.
Patient characteristics by patient and staff beliefs
| Characteristics | Patient Beliefs | Staff Beliefs | |||||
|---|---|---|---|---|---|---|---|
| All Subjects | Positive | Negative | P Value | Positive | Negative | P Value | |
| n (%) | 526,432 | 487,236 (93) | 39,196 (7) | 489,403 (93) | 37,029 (7) | ||
| Age, mean ± SD | 84.1±7.6 | 84.1±7.6 | 84.2±7.7 | .01 | 84.1±7.6 | 84.0±7.7 | .26 |
| Female, % | 70.8 | 70.9 | 70.5 | .1 | 70.9 | 69.9 | .01 |
| Currently married, % | 33.3 | 33.4 | 31.5 | .01 | 33.4 | 31.8 | .01 |
| Race, % | .01 | .01 | |||||
| White | 90.2 | 90.4 | 87.4 | 90.4 | 87.7 | ||
| Black | 5.6 | 5.4 | 8.3 | 5.4 | 8.3 | ||
| Other | 4.2 | 4.2 | 4.3 | 4.3 | 4.0 | ||
| Medicaid eligible, % | 12.5 | 12.2 | 15.9 | .01 | 12.3 | 15.4 | .01 |
| Elixhauser Comorbidity Index,* mean ± SD | 15.5±13.6 | 15.4±13.6 | 16.0±13.6 | <.01 | 15.4±13.6 | 15.8±13.6 | <.01 |
| Obesity,† % | <.01 | <.01 | |||||
| Underweight | 7.5 | 7.4 | 9.0 | 7.4 | 8.8 | ||
| Normal/overweight | 74.8 | 74.9 | 73.5 | 74.9 | 73.6 | ||
| Obese | 15.4 | 15.4 | 14.7 | 15.4 | 14.7 | ||
| Depression,‡ % | <.01 | <.01 | |||||
| None to minimal | 73.2 | 74.0 | 63.3 | 73.8 | 65.5 | ||
| Mild | 15.3 | 15.3 | 15.0 | 15.3 | 15.1 | ||
| Moderate to severe | 5.0 | 5.0 | 5.8 | 5.0 | 5.5 | ||
| Cognitive function,§ % | <.01 | <.01 | |||||
| 1 | 52.5 | 53.8 | 36.6 | 53.5 | 39.5 | ||
| 2 | 23.8 | 24.0 | 22.6 | 23.9 | 23.1 | ||
| 3 | 20.3 | 19.5 | 30.0 | 19.7 | 28.0 | ||
| 4 (severely impaired) | 2.8 | 2.3 | 10.1 | 2.4 | 8.6 | ||
| Admission ADL score‖ | 18.4±3.6 | 18.3±3.5 | 19.5±4.6 | <.01 | 18.4±3.5 | 19.1±4.6 | <.01 |
| mean ± SD | |||||||
| Index hospitalization length of stay, d, mean ± SD | 6.9±4.4 | 6.8±4.2 | 7.8±6.1 | P<.01 | 6.9±4.3 | 7.6±6.1 | P<.01 |
| ICU admission, % | 27.7 | 27.4 | 31.5 | P<.01 | 27.4 | 31.2 | P<.01 |
NOTE. Comparisons were made using t tests for continuous variables and chi-square tests for categorical variables.
Elixhauser Comorbidity Index (sample range, −4 to 98, with higher scores indicating more comorbidity burden).
Derived from the resident’s BMI.
According to the Patient Health Questionnaire or Patient Health Questionnaire Observational Version.
According to the Cognitive Function Scale (score range, 1–4, with higher scores indicating more cognitive impairment).
According to the Morris ADL scale (score range, 0–28, with higher scores indicating worse ADL function).
A higher proportion of patients with positive beliefs were married, white, had a normal or overweight BMI, and had none to minimal reported depression or cognitive impairment compared with patients with negative beliefs. Patients with positive beliefs also had better ADL function and lower comorbidity burden at SNF admission than those with negative beliefs. Compared with patients with positive beliefs, those with negative beliefs had longer hospital lengths of stay, and a higher proportion were black, underweight, eligible for Medicaid, admitted to the intensive care unit (ICU) during hospitalization, and had significant cognitive impairments. Similarly, among staff with positive beliefs, a higher proportion of patients were white, women, had a normal or overweight BMI, none to minimal reported depression or cognitive impairment, and had better ADL function and lower comorbidity burden compared with when staff had negative beliefs. Among staff with negative beliefs, patients had longer hospital lengths of stay, and a higher proportion were black, underweight, eligible for Medicaid, admitted to the ICU during hospitalization, and had impaired cognition. Similar patterns were observed in each diagnosis group, and are detailed in supplemental table S2 (patient beliefs), supplemental table S3 (staff beliefs), and supplemental table S4 (patient and staff beliefs) (available online only at http://www.archives-pmr.org/).
Patients with positive beliefs about their capability for increased independence with ADLs had a higher probability of successful discharge than patients with negative beliefs after adjusting for sociodemographic, health, and cognitive characteristics. In the full sample, the adjusted probability of successful discharge was 63.8% (95% confidence interval [CI], 63.8–63.9) among patients with positive beliefs and 57.8% (95% CI, 57.3–58.4) among those with negative beliefs. Thus, positive beliefs conferred a 6.0% (95% CI, 5.4–6.6) increase in the probability of successful discharge. Similarly, positive staff beliefs conferred a 4.4% (95% CI, 3.8–5.0) increase in the probability of successful discharge. Similar patterns were observed across each diagnosis group (table 2).
Table 2.
Adjusted probability of successful discharge based on patient and staff beliefs
| All Patients | Hip Fracture | Stroke | TBI | |
|---|---|---|---|---|
| Estimate (95% CI) | Estimate (95% CI) | Estimate (95% CI) | Estimate (95% CI) | |
| Patient beliefs* | ||||
| Positive | 63.8 (63.8–63.9) | 68.0 (67.9–68.0) | 54.5 (54.4–54.6) | 60.9 (60.7–61.1) |
| Negative | 57.8 (57.3–58.4) | 63.1 (62.3–63.9) | 48.0 (47.0–49.0) | 54.4 (52.2–56.6) |
| Difference | 6.0 (5.4–6.6) | 4.9 (4.1–5.7) | 6.6 (5.5–7.6) | 6.5 (4.1–8.9) |
| Staff beliefs† | ||||
| Positive | 63.7 (63.6–63.7) | 67.9 (67.8–67.9) | 54.4 (54.3–54.5) | 60.8 (60.6–61.0) |
| Negative | 59.3 (58.7–59.9) | 64.6 (63.8–65.4) | 49.3 (48.3–50.3) | 55.8 (53.4–58.1) |
| Difference | 4.4 (3.8–5.0) | 3.2 (2.4–4.1) | 5.1 (3.9–6.2) | 5.0 (2.5–7.6) |
NOTE. Estimates reflect adjusted probability (95% CI).
Probability estimates were based on models that included patient beliefs and the covariates of age, age2, sex, race, marital status, depression, cognitive function, hospital length of stay, ICU use, obesity, and Medicaid eligibility.
Probability estimates were based on models that included staff beliefs and the covariates listed above.
The probabilities of successful discharge based on the interaction of patient and staff beliefs overall and in each patient group are described in table 3. The effect of positive patient beliefs on successful discharge in the context of staff beliefs and the effect of positive staff beliefs on successful discharge in the context of patient beliefs are reported in table 3.
Table 3.
Adjusted probability of successful discharge based on the interaction of patient and staff beliefs
| All Patients | Hip Fracture | Stroke | TBI | |
|---|---|---|---|---|
| Estimate (95% CI) | Estimate (95% CI) | Estimate (95% CI) | Estimate (95% CI) | |
| Patient/staff beliefs | ||||
| Patient positive/staff positive | 63.8 (63.8–63.9) | 68.0 (67.9–68.0) | 54.6 (54.5–54.7) | 61.0 (60.8–61.2) |
| Patient positive/staff negative | 61.3 (59.9–62.8) | 65.8 (63.9–67.8) | 51.9 (49.1–54.7) | 57.7 (52.1–63.3) |
| Patient negative/staff positive | 54.1 (52.9–55.4) | 58.7 (57.0–60.4) | 44.6 (42.4–46.8) | 51.5 (46.8–56.1) |
| Patient negative/staff negative | 58.7 (58.1–59.4) | 64.2 (63.4–65.0) | 48.7 (47.6–49.8) | 55.1 (52.6–57.6) |
| Difference in probability of successful discharge associated with patient positive beliefs | ||||
| If staff were positive | 9.7 (8.4–11.0) | 9.3 (7.5–11.0) | 9.9 (7.7–12.2) | 9.5 (4.8–14.2) |
| If staff were negative | 2.6 (1.0–4.2) | 1.6 (−0.5 to 3.7) | 3.2 (0.3–6.1) | 2.6 (−3.5 to 8.6) |
| Difference in probability of successful discharge associated with staff positive beliefs | ||||
| If patients were positive | 2.5 (1.0–4.0) | 2.2 (0.2–4.1) | 2.7 (−0.1 to 5.5) | 3.3 (−2.5 to 9.0) |
| If patients were negative | −4.6 (−6.0 to −3.2) | −5.5 (−7.4 to −3.6) | −4.1 (−6.5 to −1.6) | −3.7 (−8.9 to 1.6) |
NOTE. Estimates reflect adjusted probability (95% CI). Probability estimates were based on the interaction of patient and staff beliefs in a model adjusted for age, age2, sex, race, marital status, depression, cognitive function, hospital length of stay, ICU use, obesity, and Medicaid eligibility.
In the full sample, positive patient beliefs conferred a 9.7 percentage point (95% CI, 8.4–11.0) increase in the probability of successful discharge if staff beliefs were positive, and at 2.6 percentage point (95% CI, 1.0–4.2) if staff beliefs were negative. Positive patient beliefs conferred a significant increase in the probability of successful discharge if staff beliefs were positive in each diagnosis group. If staff beliefs were negative, positive patient beliefs were associated with a significant increase in the probability of successful discharge among patients with stroke. The direction of the effect was consistent among patients with hip fracture and TBI, although the results were not significant (see table 3).
Staff beliefs were also associated with the probability of successful discharge after adjusting for sociodemographic, health, and cognitive characteristics. However, the direction of the association varied based on patient beliefs. In the full sample, positive staff beliefs were associated with a 2.5 percentage point (95% CI, 1.0–4.0) increase in the probability of successful discharge if the patient had positive beliefs. However, if patient beliefs were negative, the difference in the probability of successful discharge was −4.6 percentage points (95% CI, −6.0 to −3.2), suggesting that when patients had negative beliefs, staff’s positive beliefs were associated with a lower probability of successful discharge. Similar patterns were observed in diagnosis-specific analyses (see table 3).
Discussion
In this study of older adults admitted to SNFs after hip fracture, stroke, or TBI, we examined the association of patient and staff beliefs about the patients’ capability to increase independence with ADLs and the probability of successful discharge. We found that patients with positive beliefs had a higher probability of successful discharge after an SNF stay compared with patients with negative beliefs after adjusting for a broad set of individual-level covariates, including depression and cognitive status, as well as SNF fixed effects. We also found that positive patient beliefs were associated with successful discharge regardless of the direction of staff beliefs. We found that staffs’ positive beliefs about patients’ capability to increase independence with ADLs were associated with successfully discharging to the community, but only if patients also had positive beliefs. Taken together, our findings suggest that patients’ beliefs about the potential to increase independence may be more important to discharge outcomes than the beliefs of direct-care staff.
Our findings that patient beliefs are associated with desirable outcomes is supported by previous literature suggesting that patients’ expectations about recovery and self-efficacy may be associated with positive outcomes.21,26,65 Drawing on the self-efficacy framework, it is possible that patients who believe they will improve put more effort into rehabilitation and are ultimately more likely to improve and achieve desired outcomes.54,66 Patients with positive expectations may also be viewed as more motivated and easier to work with than those with more pessimistic outlooks.67 Clinicians themselves may be motivated by patients’ perceived motivation and use different approaches to encouragement and care that affect recovery and long-term outcomes.67,68 Our results also suggest that patients may have good insight into their recovery potential, contradicting the perception that patients’ capacity or knowledge is a barrier to patient-centered practices.28,33,38
Contrary to our hypothesis, staffs’ positive beliefs were only associated with successful discharge if patients also had positive beliefs. If patients had negative beliefs, the probability of successful discharge was greater if staff shared negative beliefs. We hypothesize that this finding reflects the importance of patients’ beliefs and the benefits of shared recognition of a patient’s poor prognosis. Patient and staff agreement about expectations for recovery, even negative expectations, may allow for early coordination of services and caregiver training, which allows patients to remain at home in the presence of functional impairment.69,70
Functional improvement, accurate goal setting, and helping patients return to their home environment have always been a goal of inpatient postacute rehabilitative care. However, after the passage of the Improving Post-Acute Care Transformation Act of 2014 and the corresponding CMS “Meaningful Measures” initiative, there has been increased attention on engaging patients and families as partners in their care.10 SNF quality measures now incorporate functional goals, functional change, and the proportion of patients who are discharged to the community and remain in the community for 31 days. The quality measures are publicly reported through the CMS’ Nursing Home Compare website and must be reported to avoid a 2% payment reduction penalty.11,71 The results of this work suggest that patients’ beliefs regarding the capability to increase independence with ADLs may have a measurable effect on the probability of achieving desired quality outcomes and that, despite the barriers, understanding and incorporating patient beliefs may help facilitate accurate goal-setting and effective discharge planning.
In this investigation, we focused on the relationship between patient and staff beliefs on successful community discharge. However, we did not examine the relationship between patient and staff beliefs on ADL improvement during an SNF stay. Future work examining the associations between beliefs and functional improvement will provide additional insight into the role of beliefs on postacute discharge outcomes. Additionally, further examination of concordance and discordance between patients and staff and strategies for shared decision-making in cases of discordance may enhance the integration of beliefs and expectations into effective care planning.
Study limitations
Our findings should be considered in light of several limitations. First, there may be residual confounding from factors related to beliefs and successful discharge that we are unable to obtain from the available data. For example, details of direct-care staffs’ training; use of patient-centered approaches and encouragement strategies; and patients’ pre-injury functional status, family support, living situation, and other social supports may influence the probability of successful discharge, but were unavailable and not included in this analysis. Additionally, we did not include information about health care utilization (eg, primary, specialty, mental health, or home health care) after the SNF stay that may be associated with successful discharge. Information about awareness of deficits was also unavailable, and although we control for cognitive function, differences in patient report of beliefs among those with cognitive impairments may be a source of bias. Additionally, the included data sources contain limited information about injury severity among the patients with stroke or TBI. We included ICU use and cognitive function in our models, which may be associated with injury severity, but additional investigation into the role of injury characteristics on the relationship between perceptions and discharge outcomes is warranted. Finally, our sample included patients with 3 primary diagnoses who were homogenous in terms of experience with postacute care. Therefore, our findings may not be generalized to individuals admitted to SNFs for conditions we did not examine, non-Medicare beneficiaries, and those enrolled in Medicare Advantage.
Conclusions
Patients’ positive beliefs about their ability to increase independence with ADLs are associated with an increased probability of successful discharge from SNF after a hip fracture, stroke, or TBI. Our findings suggest that patient beliefs about the potential for functional recovery have a measurable effect on desirable outcomes. Despite the barriers, integrating patients into care decisions is critical to achieving outcomes that are important to patients, clinicians, and facilities. Direct-care staff who interact with patients need the resources, support, and training to be able to engage with patients; understand their beliefs, goals, and expectations; and integrate patients into care planning.
Supplementary Material
Acknowledgments
Supported by the National Institutes of Health (NIH; grant no. P01AG027296), the National Institute on Aging (NIA; grant no. R21AG059120), the Agency for Healthcare Research and Quality (AHRQ; grant no. 5T32HS000011), and the U.S. Department of Veterans Affairs Health Services Research and Development Service (grant no. CDA 14-422). The NIH, NIA, and AHRQ had no role in the design or conduct of the study including management, analysis, or interpretation of the data, or preparation of the manuscript; and the Veterans Administration had no role in the design or conduct of the study. E.E. received support through the Foundation for Physical Therapy-funded Center on Health Services Training and Research.
List of abbreviations:
- ADL
activities of daily living
- BMI
body mass index
- CI
confidence interval
- CMS
Centers for Medicare and Medicaid Services
- ICU
intensive care unit
- MDS
Minimum Data Set 3.0
- SNF
skilled nursing facility
- TBI
traumatic brain injury
Footnotes
Supplier
a. STATA MP 16.0; StataCorp LLC.
Presented as an abstract and poster to the American Congress of Rehabilitation Medicine, November 5–8, 2019, Chicago, IL, and AcademyHealth, July 28-August 6, 2020, online.
The views expressed in this article are those of the authors and do not necessarily reflect the position or policy of the National Institutes of Health, the Department of Veterans Affairs, or the United States government.
Disclosures: none.
References
- 1.Mead N, Bower P. Patient-centredness: a conceptual framework and review of the empirical literature. Soc Sci Med 2000;51:1087–110. [DOI] [PubMed] [Google Scholar]
- 2.Institute of Medicine (US). Committee on Quality of Health Care in America. Crossing the quality chasm: a new health system for the 21st century. Washington, DC: National Academies Press; 2001. [PubMed] [Google Scholar]
- 3.Landefeld CS, Palmer RM, Kresevic DM, Fortinsky RH, Kowal J. A randomized trial of care in a hospital medical unit especially designed to improve the functional outcomes of acutely ill older patients. N Engl J Med 1995;332:1338–44. [DOI] [PubMed] [Google Scholar]
- 4.McGilton KS, Davis AM, Naglie G, et al. Evaluation of patient-centered rehabilitation model targeting older persons with a hip fracture, including those with cognitive impairment. BMC Geriatr 2013;13:136. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 5.McGilton KS, Sorin-Peters R, Rochon E, et al. The effects of an interprofessional patient-centered communication intervention for patients with communication disorders. Appl Nurs Res 2018;39:189–94. [DOI] [PubMed] [Google Scholar]
- 6.McMillan SS, Kendall E, Sav A, et al. Patient-centered approaches to health care: a systematic review of randomized controlled trials. Med Care Res Rev 2013;70:567–96. [DOI] [PubMed] [Google Scholar]
- 7.Reuben DB, Tinetti ME. Goal-oriented patient care–an alternative health outcomes paradigm. N Engl J Med 2012;366:777–9. [DOI] [PubMed] [Google Scholar]
- 8.Blueprint for the CMS Measures Management System. Version 16.0. Available at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/MMS/Downloads/Blueprint.pdf. Accessed October 19, 2020.
- 9.Centers for Medicare & Medicaid Services (CMS) HHS. Medicare program; prospective payment system and consolidated billing for skilled nursing facilities (SNF) final rule for FY 2019, SNF value-based purchasing program, and SNF quality reporting program. Fed Regist 2018;83:39162–290. [PubMed] [Google Scholar]
- 10.Centers for Medicare & Medicaid Services. Meaningful Measures Hub. Available at: https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/QualityInitiativesGenInfo/MMF/General-info-Sub-Page. Accessed December 5, 2019.
- 11.Centers for Medicare & Medicaid Services (CMS) HHS. Medicare program; prospective payment system and consolidated billing for skilled nursing facilities for FY 2018, SNF value-based purchasing program, SNF quality reporting program, survey team composition, and correction of the performance period for the NHSN HCP influenza vaccination immunization reporting measure in the ESRD QIP for PY 2020. Final rule. Fed Regist 2017;82:36530–634. [PubMed] [Google Scholar]
- 12.van Seben R, Smorenburg SM, Buurman BM. A qualitative study of patient-centered goal-setting in geriatric rehabilitation: patient and professional perspectives. Clin Rehabil 2019;33:128–40. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 13.Kus S, Müller M, Strobl R, Grill E. Patient goals in post-acute geriatric rehabilitation–goal attainment is an indicator for improved functioning. J Rehabil Med 2011;43:156–61. [DOI] [PubMed] [Google Scholar]
- 14.Krishnan S, Pappadis MR, Weller SC, et al. Needs of stroke survivors as perceived by their caregivers: a scoping review. Am J Phys Med Rehabil 2017;96:487–505. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 15.Krishnan S, Pappadis MR, Weller SC, Fisher SR, Hay CC, Reistetter TA. Patient-centered mobility outcome preferences according to individuals with stroke and caregivers: a qualitative analysis. Disabil Rehabil 2018;40:1401–9. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 16.Wade DT. Goal setting in rehabilitation: an overview of what, why and how. Clin Rehabil 2009;23:291–5. [DOI] [PubMed] [Google Scholar]
- 17.Scobbie L, Dixon D, Wyke S. Goal setting and action planning in the rehabilitation setting: development of a theoretically informed practice framework. Clin Rehabil 2011;25:468–82. [DOI] [PubMed] [Google Scholar]
- 18.Scobbie L, McLean D, Dixon D, Duncan E, Wyke S. Implementing a framework for goal setting in community based stroke rehabilitation: a process evaluation. BMC Health Serv Res 2013;13:190. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 19.Sabol VK, Resnick B, Galik E, Gruber-Baldini AL, Morton PG, Hicks GE. Exploring the factors that influence functional performance among nursing home residents. J Aging Health 2011;23:112–34. [DOI] [PubMed] [Google Scholar]
- 20.Ghazi C, Nyland J, Whaley R, Rogers T, Wera J, Henzman C. Social cognitive or learning theory use to improve self-efficacy in musculo-skeletal rehabilitation: a systematic review and meta-analysis. Physi-other Theory Pract 2018;34:495–504. [DOI] [PubMed] [Google Scholar]
- 21.Borkan JM, Quirk M. Expectations and outcomes after hip fracture among the elderly. Int J Aging Hum Dev 1992;34:339–50. [DOI] [PubMed] [Google Scholar]
- 22.Fredman L, Hawkes WG, Black S, Bertrand RM, Magaziner J. Elderly patients with hip fracture with positive affect have better functional recovery over 2 years. J Am Geriatr Soc 2006;54:1074–81. [DOI] [PubMed] [Google Scholar]
- 23.Ostir GV, Berges IM, Ottenbacher ME, Clow A, Ottenbacher KJ. Associations between positive emotion and recovery of functional status following stroke. Psychosom Med 2008;70:404–9. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 24.Schoberer D, Leino-Kilpi H, Breimaier HE, Halfens RJ, Lohrmann C. Educational interventions to empower nursing home residents: a systematic literature review. Clin Interv Aging 2016;11: 1351–63. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 25.Clareus B, Renstrom EA. Patients’ return-to-work expectancy relates to their beliefs about their physician’s opinion regarding return to work volition and ability. J Pain Res 2019;12:353–62. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 26.Connolly FR, Aitken LM, Tower M. An integrative review of self-efficacy and patient recovery post acute injury. J Adv Nurs 2014;70:714–28. [DOI] [PubMed] [Google Scholar]
- 27.Korpershoek C, van der Bijl J, Hafsteinsdottir TB. Self-efficacy and its influence on recovery of patients with stroke: a systematic review. J Adv Nurs 2011;67:1876–94. [DOI] [PubMed] [Google Scholar]
- 28.Rosewilliam S, Sintler C, Pandyan AD, Skelton J, Roskell CA. Is the practice of goal-setting for patients in acute stroke care patient-centred and what factors influence this? A qualitative study. Clin Rehabil 2016;30:508–19. [DOI] [PubMed] [Google Scholar]
- 29.Glazier SR, Schuman J, Keltz E, Vally A, Glazier RH. Taking the next steps in goal ascertainment: a prospective study of patient, team, and family perspectives using a comprehensive standardized menu in a geriatric assessment and treatment unit. J Am Geriatr Soc 2004;52:284–9. [DOI] [PubMed] [Google Scholar]
- 30.McAndrew E, McDermott S, Vitzakovitch S, Warunek M, Holm MB. Therapist and patient perceptions of the occupational therapy goal-setting process. Phys Occup Ther Geriatr 2000;17:55–63. [Google Scholar]
- 31.Feder SL, Britton MC, Chaudhry SI. “They need to have an understanding of why they’re coming here and what the outcomes might be.” Clinician perspectives on goals of care for patients discharged from hospitals to skilled nursing facilities. J Pain Symptom Manage 2018;55:930–7. [DOI] [PubMed] [Google Scholar]
- 32.Leach E, Cornwell P, Fleming J, Haines T. Patient centered goal-setting in a subacute rehabilitation setting. Disabil Rehabil 2010;32:159–72. [DOI] [PubMed] [Google Scholar]
- 33.Kirschner KL, Stocking C, Wagner LB, Foye SJ, Siegler M. Ethical issues identified by rehabilitation clinicians. Arch Phys Med Rehabil 2001;82:S2–8. [PubMed] [Google Scholar]
- 34.Brown M, Levack W, McPherson KM, et al. Survival, momentum, and things that make me “me”: patients’ perceptions of goal setting after stroke. Disabil Rehabil 2014;36:1020–6. [DOI] [PubMed] [Google Scholar]
- 35.Schulman-Green DJ, Naik AD, Bradley EH, McCorkle R, Bogardus ST. Goal setting as a shared decision making strategy among clinicians and their older patients. Patient Educ Couns 2006;63:145–51. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 36.Boeckxstaens P, Willems S, Lanssens M, et al. A qualitative interpretation of challenges associated with helping patients with multiple chronic diseases identify their goals. J Comorb 2016;6:120–6. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 37.Laver K, Halbert J, Stewart M, Crotty M. Patient readiness and ability to set recovery goals during the first 6 months after stroke. J Allied Health 2010;39:e149–54. [PubMed] [Google Scholar]
- 38.Rosewilliam S, Roskell CA, Pandyan AD. A systematic review and synthesis of the quantitative and qualitative evidence behind patient-centred goal setting in stroke rehabilitation. Clin Rehabil 2011;25:501–14. [DOI] [PubMed] [Google Scholar]
- 39.Centers for Medicare & Medicaid Services (CMS) HHS. medicare program; prospective payment system and consolidated billing for skilled nursing facilities for FY 2017, SNF value-based purchasing program, SNF quality reporting program, and SNF payment models research. Final rule. Fed Regist 2016;81:51969–2053. [PubMed] [Google Scholar]
- 40.Buntin MB, Colla CH, Escarce JJ. Effects of payment changes on trends in post-acute care. Health Serv Res 2009;44:1188–210. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 41.Dams-O’Connor K, Cuthbert JP, Whyte J, Corrigan JD, Faul M, Harrison-Felix C. Traumatic brain injury among older adults at level I and II trauma centers. J Neurotrauma 2013;30:2001–13. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 42.Tian W An all-payer view of hospital discharge to postacute care, 2013. Rockville, MD: Agency for Healthcare Research and Quality; 2016. [PubMed] [Google Scholar]
- 43.Wee JY, Bagg SD, Palepu A. The Berg balance scale as a predictor of length of stay and discharge destination in an acute stroke rehabilitation setting. Arch Phys Med Rehabil 1999;80:448–52. [DOI] [PubMed] [Google Scholar]
- 44.Vochteloo AJ, Tuinebreijer WE, Maier AB, Nelissen RG, Bloem RM, Pilot P. Predicting discharge location of hip fracture patients; the new discharge of hip fracture patients score. Int Orthop 2012;36:1709–14. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 45.Luppa M, Luck T, Weyerer S, Konig HH, Brahler E, Riedel-Heller SG. Prediction of institutionalization in the elderly. A systematic review. Age Ageing 2010;39:31–8. [DOI] [PubMed] [Google Scholar]
- 46.Eum RS, Seel RT, Goldstein R, et al. Predicting institutionalization after traumatic brain injury inpatient rehabilitation. J Neurotrauma 2015;32:280–6. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 47.Mellick D, Gerhart KA, Whiteneck GG. Understanding outcomes based on the post-acute hospitalization pathways followed by persons with traumatic brain injury. Brain Inj 2003;17:55–71. [DOI] [PubMed] [Google Scholar]
- 48.Foster M, Tilse C, Fleming J. Referral to rehabilitation following traumatic brain injury: practitioners and the process of decision-making. Soc Sci Med 2004;59:1867–78. [DOI] [PubMed] [Google Scholar]
- 49.Bohannon RW, Lee N, Maljanian R. Postadmission function best prdicts acute hospital outcomes after stroke. Am J Phys Med Rehabil 2002;81:726–30. [DOI] [PubMed] [Google Scholar]
- 50.Portelli R, Lowe D, Irwin P, Pearson M, Rudd AG. Intercollegiate Stroke Working Party. Institutionalization after stroke. Clin Rehabil 2005;19:97–108. [DOI] [PubMed] [Google Scholar]
- 51.Bond J, Gregson B, Smith M, Lecouturier J, Rousseau N, Rodgers H. Predicting place of discharge from hospital for patients with a stroke or hip fracture on admission. J Health Serv Res Policy 2000;5:133–9. [DOI] [PubMed] [Google Scholar]
- 52.Cree M, Soskolne CL, Belseck E, et al. Mortality and institutionalization following hip fracture. J Am Geriatr Soc 2000;48:283–8. [DOI] [PubMed] [Google Scholar]
- 53.Middleton A, Downer B, Haas A, Lin YL, Graham JE, Ottenbacher KJ. Functional status is associated with 30-day potentially preventable readmissions following skilled nursing facility discharge among Medicare beneficiaries. J Am Med Dir Assoc 2018;19:348–54. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 54.Resnick B Geriatric rehabilitation: the influence of efficacy beliefs and motivation. Rehabil Nurs 2002;27:152–9. [DOI] [PubMed] [Google Scholar]
- 55.Brock K, Black S, Cotton S, Kennedy G, Wilson S, Sutton E. Goal achievement in the six months after inpatient rehabilitation for stroke. Disabil Rehabil 2009;31:880–6. [DOI] [PubMed] [Google Scholar]
- 56.Intrator O, Hiris J, Berg K, Miller SC, Mor V. The residential history file: studying nursing home residents’ long-term care histories(*). Health Serv Res 2011;46:120–37. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 57.Leland NE, Gozalo P, Christian TJ, et al. An examination of the first 30 days after patients are discharged to the community from hip fracture postacute care. Med Care 2015;53:879–87. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 58.Centers for Medicare & Medicaid Services. Long-Term Care Facility Resident Assessment Instrument 3.0 User’s Manual. Version 1.13. Baltimore: Centers for Medicare & Medicaid Services; 2015. [Google Scholar]
- 59.Moore BJ, White S, Washington R, Coenen N, Elixhauser A. identifying increased risk of readmission and in-hospital mortality using hospital administrative data: the AHRQ Elixhauser Comorbidity Index. Med Care 2017;55:698–705. [DOI] [PubMed] [Google Scholar]
- 60.Kroenke K, Spitzer RL, Williams JB. The PHQ-9: validity of a brief depression severity measure. J Gen Intern Med 2001;16:606–13. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 61.Centers for Disease Control and Prevention. About adult BMI. Available at: https://www.cdc.gov/healthyweight/assessing/bmi/adult_bmi/index.html#Interpreted. Accessed September 30, 2019.
- 62.Thomas KS, Dosa D, Wysocki A, Mor V. The Minimum Data Set 3.0 cognitive function scale. Med Care 2017;55:e68–72. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 63.Morris JN, Fries BE, Morris SA. Scaling ADLs within the MDS. J Gerontol A Biol Sci Med Sci 1999;54:M546–53. [DOI] [PubMed] [Google Scholar]
- 64.Wysocki A, Thomas KS, Mor V. functional improvement among short-stay nursing home residents in the MDS 3.0. J Am Med Dir Assoc 2015;16:470–4. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 65.Mahomed NN, Liang MH, Cook EF, et al. The importance of patient expectations in predicting functional outcomes after total joint arthroplasty. J Rheumatol 2002;29:1273–9. [PubMed] [Google Scholar]
- 66.Bandura A. Self-efficacy. In: Ramachaudran V, editor. Encyclopedia of human behavior4. New York: Academic Press; 1994. p 71–81. [Google Scholar]
- 67.Maclean N, Pound P, Wolfe C, Rudd A. The concept of patient motivation: a qualitative analysis of stroke professionals’ attitudes. Stroke 2002;33:444–8. [DOI] [PubMed] [Google Scholar]
- 68.Chang LH, Hasselkus BR. Occupational therapists’ expectations in rehabilitation following stroke: sources of satisfaction and dissatisfaction. Am J Occup Ther 1998;52:629–37. [DOI] [PubMed] [Google Scholar]
- 69.Bauer M, Fitzgerald L, Haesler E, Manfrin M. Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence. J Clin Nurs 2009; 18:2539–46. [DOI] [PubMed] [Google Scholar]
- 70.Rodakowski J, Rocco PB, Ortiz M, et al. caregiver integration during discharge planning for older adults to reduce resource use: a meta-analysis. J Am Geriatr Soc 2017;65:1748–55. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 71.U.S. Centers for Medicare & Medicaid Services. Nursing home compare. Available at: https://www.medicare.gov/nursinghomecompare/. Accessed December 5, 2019.
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