Table 2.
Characteristics of patient participants in survey development
| Survey Development Participants (N=60) | |||
|---|---|---|---|
| Characteristic | Concept Elicitation Interviews (N=20) | Survey Pretest Interviews (N=16) | Survey Pilot Test (N=24)c |
| Age, yr | |||
| 22–40 | 5 (25) | 5 (31) | 1 (4) |
| 41–52 | 6 (30) | 2 (13) | 4 (17) |
| 53–65 | 6 (30) | 6 (38) | 10 (44) |
| 66–75 | 0 | 1 (6) | 8 (35) |
| ≥76 | 3 (15) | 2 (13) | 0 |
| Sex | |||
| Men | 10 (50) | 10 (63) | 13 (54) |
| Women | 10 (50) | 6 (38) | 11 (46) |
| Race and ethnicity | |||
| Black, non-Hispanic | 8 (40) | 7 (44) | 4 (17) |
| Asian, non-Hispanic | 1 (5) | 0 | 0 |
| White, non-Hispanic | 9 (45) | 5 (31) | 7 (29) |
| Hispanic or Latino | 2 (10) | 4 (25) | 13 (54)d |
| Education level | |||
| Less than high school | 0 | 0 | 6 (25) |
| High school or equivalenta | 6 (30) | 3 (19) | 8 (33) |
| Associates degree/trade school | 1 (5) | 3 (19) | 0 |
| Some college | 8 (40) | 0 | 7 (29) |
| College graduate | 2 (10) | 1 (6) | 3 (13) |
| Postgraduate | 3 (15) | 2 (13) | 0 |
| Census region | |||
| Northeast | 2 (10) | 0 | 0 |
| South | 8 (40) | 10 (63) | 20 (83) |
| Midwest | 6 (30) | 5 (31) | 0 |
| West | 4 (20) | 1 (6) | 4 (17) |
| Current dialysis modality | |||
| In-center hemodialysis | 9 (45) | 8 (50) | 24 (100) |
| Home hemodialysis | 6 (30) | 5 (31) | 0 |
| Peritoneal dialysis | 5 (25) | 3 (19) | 0 |
| Time on dialysis, yr (any modality) | |||
| 3 mo–1 | — | 3 (19) | 5 (21) |
| >1 | — | 13 (81) | 19 (79) |
| Time on current dialysis modality, yr | |||
| <1 | 6 (30) | 3 (19) | — |
| 1–2 | 3 (15) | 4 (25) | — |
| ≥3 | 11 (55) | 9 (56) | — |
| Patient activationb | |||
| Low | 6 (30) | 4 (25) | — |
| Medium | 9 (45) | 10 (63) | — |
| High | 5 (25) | 2 (12) | — |
Values are presented as n (%). All characteristics were patient reported. —, data element was not collected. We recruited different individuals for each stage of development. There is no overlap in participants across concept elicitation interviews, survey pretest interviews, and survey pilot test.
a
Completion of high school degree or tests of General Educational Development (GED).
b
Assessed using the Consumer Health Activation Index (14).
c
Age value was missing for one pilot test participant (age n=23).
d
8 (33%) completed the survey in Spanish.