1Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy
2Spanish Association for Antiphospholipid Syndrome (SAF España), Elche, Spain
3Department of Rheumatology and Clinical Immunology, Charité University Medicine Berlin, Berlin, Germany
4Department of Internal Medicine, Hospital Pitié-Salpêtrière, Assistance Publique Hôpitaux de Paris, French National Referral Center for SLE and APS, Paris, France
5Auto-immune Disease Unit, Hospital de Curry Cabral, Centro Hospitalar de Lisboa Central, EPE, Lisbon, Portugal
6Service de rhumatologie, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Auto-immunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France
7Department of Allergology, Rheumatology and Clinical Immunology, University Children’s Hospital, University Medical Centre Ljubljana, Ljubljana, Slovenia
8Referral Center for Systemic Autoimmune Diseases, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico di Milano, Milan, Italy
9University of Pisa, Pisa, Italy
10Institute of Management, Scuola Superiore Sant’Anna, Pisa, Italy
11Department of Rheumatology, IRCCS Policlinico San Matteo Foundation, Pavia, Italy
12Service de Médecine Interne, Hôpital Cochin, Centre de Référence Maladies systémiques Autoimmunes Rares d’Ile de France, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, Paris, France
13Lupus Europe, Brussels, Belgium
14Rheumatology Unit, Department of Medicine, University of Padova, Padova, Italy
15Medical Genetics Laboratory, Molecular Medicine Department, San Camillo Forlanini Hospital, Sapienza University, Rome, Italy
16Department of Rheumatology, University Hospital Düsseldorf, Heinrich-Heine-University Düsseldorf, Düsseldorf, Germany
17Rheumatology Department, Hospital de Santa Maria, Centro Hospitalar Lisboa Norte, Lisbon Academic Medical Centre, Lisbon, Portugal
18Flemish Association for Hereditary Connective Tissue Disorders, Koersel, Belgium
19Federation of European Scleroderma Associations (FESCA), Milan, Italy
20Deutsche Ehlers-Danlos Initiative e.V., Furth, Germany
21Liga Portuguesa Contra as Doenças Reumáticas, Lisbon, Portugal
22Département de Médecine Interne et Immunologie Clinique, Centre de Référence des Maladies Systémiques et Auto-Immunes Rares du Nord-Ouest (CERAINO), LIRIC, INSERM, Univ. Lille, CHU Lille, Lille, France
23Department of Rheumatology, Cliniques Universitaires Saint-Luc, Brussels, Belgium
24Department of Dermatology, Universitätsklinikum, Cologne, Germany
25Department of Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht University, Utrecht, Netherlands
26Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium
27Université Paris-Saclay, INSERM, CEA, Centre de recherche en Immunologie des infections virales et des maladies auto-immunes; AP-HP. Université Paris-Saclay, Hôpital Bicêtre, Rheumatology Department, Le Kremlin Bicêtre, Paris, France
28Clinical immunology department, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Auto-immunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France
29Relapsing Polychondritis Awareness and Support, Worcester, UK
30Division of Rheumatology and Scleroderma Unit, Department of Clinical and Experimental Medicine, AOU Careggi, University of Florence, Florence, Italy
31Department of Rheumatology and Clinical Immunology, Kerckhoff Klinik, Justus Liebig University of Giessen, Bad Nauheim, Germany
32Department of Rheumatology, Emergency County Teaching Hospital, Cluj-Napoca, Romania
33Department of Rheumatology, Ghent University Hospital Department of Internal Medicine, Ghent, Belgium
34Research Laboratory and Academic Division of Clinical Rheumatology, Department of Internal Medicine, IRCCS Polyclinic Hospital San Martino, University of Genoa, Genoa, Italy
35National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy
36Directorate-General for Health and Food Safety, European Commission, Brussels, Belgium
37Rheumatology and Clinical Immunology Unit, ASST-Spedali Civili and University of Brescia, Brescia, Italy
38Department of Internal Medicine and Immunology, Erasmus MC, Rotterdam, Netherlands
39Liga Portuguesa Contra as Doenças Reumáticas, Núcleo Síndrome de Sjögren, Lisbon, Portugal
40Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands
41Rheumatology Unit, University of Pisa, Pisa, Italy