Abstract
This quality improvement study investigates whether national dementia plans in Group of Seven (G7) countries and South Korea conform to the recommendations of the World Health Organization and the Organization for Economic Cooperation and Development.
Introduction
The Organisation for Economic Co-operation and Development (OECD) and the World Health Organization (WHO) proposed 10 key objectives and 7 action areas as guidelines for developing dementia policies.1,2 However, to our knowledge, few studies have examined whether existing national dementia plans (NDPs) conform to these international recommendations. This study investigated how well the WHO and OECD recommendations are implemented in existing NDPs in Group of Seven (G7; an intergovernmental political forum) countries and South Korea.
Methods
We analyzed the latest NDPs of G7 countries (Canada, Germany, Italy, the UK, the US, France, and Japan) and South Korea (Table 1). National dementia plans are defined as standalone comprehensive national strategies, policies, plans, or frameworks to address dementia.1 Plans complementary to the most recent NDPs were also analyzed, such as the UK’s “Prime Minister’s Challenge on Dementia 2020: Implementation Plan.” The French “Neurodegenerative Diseases Plan 2014-2019” was identified as the latest NDP because the French “Neurodegenerative Diseases Roadmap 2021-2022” was a transitional extension rather than a new NDP. Because this study did not involve human participants or animals, the Institutional Review Board of Seoul National University Bundang Hospital determined that ethical approval was not required. This study adhered to the SQUIRE reporting guideline.
Table 1. National Dementia Plans of Group of Seven Countries and South Korea.
Country and title of plana | Period | Release | Responsible authoritative body |
---|---|---|---|
Canada | |||
A Dementia Strategy for Canadab | 2019c | 2019 | Public Health Agency |
Germany | |||
National Dementia Strategyb | 2020c | 2020 | Federal Ministry for Family Affairs, Senior Citizens, Women and Youth and the Federal Ministry of Health |
Italy | |||
Italian National Dementia Plan 2015b | 2015-2018 | 2014 | Ministry of Health |
United Kingdom | Department of Health and Social Care | ||
Living Well with Dementia | 2009c | 2009 | |
Prime Minister’s Challenge on Dementia 2015 | 2012-2015 | 2012 | |
Prime Minister’s Challenge on Dementia 2020b; Prime Minister’s Challenge on Dementia 2020 Implementation Planb | 2015-2020 | 2015 | |
France | |||
National Plan for “Alzheimer and Related Diseases” 2001-2004 | 2001-2004 | 2001 | Ministry of Social Affairs, Health and Women’s Rights |
National Plan for “Alzheimer and Related Diseases” 2005-2007 | 2005-2007 | 2004 | |
National Plan for “Alzheimer and Related Diseases” 2008-2012 | 2008-2012 | 2008 | |
French Neurodegenerative Diseases Plan 2014-2019b | 2014-2019 | 2014 | |
Neurodegenerative Diseases Roadmap 2021-2022d | 2021-2022 | 2021 | |
United States | |||
National Plan to Address Alzheimer Diseaseb | 2012e | 2021f | Department of Health and Human Services |
Japan | |||
5-Year Plan for Promotion of Dementia Measures (Orange Plan) | 2013-2017 | 2012 | Ministry of Health, Labour and Welfare |
Comprehensive Strategy to Accelerate Dementia Measures (New Orange Plan)b | 2015-2020 | 2015 | |
South Korea | |||
Dementia Comprehensive Management Measures | 2008-2012 | 2008 | Ministry of Health and Welfare |
The 2nd National Dementia Plan 2013-2015 | 2013-2015 | 2012 | |
The 3rd National Dementia Plan 2016-2020 | 2016-2020 | 2015 | |
National Dementia Initiative | 2017c | 2017 | |
The 4th National Dementia Plan (2021-2025)b | 2021-2025 | 2020 |
As of August 2022, the latest national dementia plans were selected for analysis.
Identified as the latest national dementia plan.
End date is not specified.
Because the Neurodegenerative Diseases Roadmap 2021-2022 was a transitional extension to maintain essential action rather than a new national dementia plan, the French Neurodegenerative Diseases Plan has been identified as the latest one.
Annually updated.
The latest 2021 update was selected for analysis.
The WHO’s 7 action areas from the “Global Action Plan on the Public Health Response to Dementia”1 and the OECD’s 10 key objectives from “Addressing Dementia: The OECD Response”2 were integrated into 11 policy targets (prevention, diagnosis, awareness, caregiver support, environment, long-term care, health facilities, end-of-life care, care coordination, research and technology, and information systems) as the comparison framework (eFigure in the Supplement). The first WHO action area (ie, dementia as a public health priority) was not included in the policy targets, because the presence of an NDP may indicate a high public health priority. Next, the NDPs were compared across the 11 targets and policy approaches for each target, which were derived from the WHO action plan and OECD report (eMethods in the Supplement).
Results
France was the first country and Germany was the most recent country to adopt an NDP. France, the UK, Japan, and South Korea have revised their NDPs several times, while the US has updated its NDP annually since 2012. The 8 countries’ NDPs largely followed the WHO and OECD recommendations and shared common policy themes (Table 2). All the countries covered targets 1 (prevention), 2 (diagnosis), 3 (awareness), 6 (long-term care), 9 (care coordination), 10 (research and technology), and 11 (information systems). However, several policy targets received little attention. Target 8 (end-of-life care) was not addressed in Italy, Canada, or South Korea. Target 4 (caregiver support) was not addressed in Italy and target 7 (health facilities) was not addressed Canada. Target 5 (the appropriate environment) was not addressed in either Italy or Canada.
Table 2. Comparing 8 Countries’ National Dementia Plans by Possible Policy Approaches for the 11 Targetsa.
Possible policy approach | Canada | Italy | Germany | UK | US | Japan | France | South Korea |
---|---|---|---|---|---|---|---|---|
Target 1: dementia risk reduction | ||||||||
Intensifying preventive awareness | + | + | + | + | + | + | − | + |
Intensifying preventive activities (lifestyles, program) | + | − | + | + | + | + | − | + |
Research for prevention | + | − | + | + | + | + | + | + |
Target 2: early diagnosis of dementia | ||||||||
Increase the availability and accessibility of diagnostic services | + | + | + | + | + | + | + | + |
Provide training to primary care staff in identifying dementia | + | − | + | + | + | + | + | + |
Postdiagnostic support to link people to appropriate services | − | − | + | + | − | + | + | + |
Target 3: dementia awareness and friendliness | ||||||||
Public awareness campaigns to reduce stigma | + | + | + | + | + | + | + | + |
Targeted education of those who come into contact with PWD | + | − | + | + | + | − | − | + |
Dementia education in schools | − | − | − | + | − | + | − | − |
Target 4: support for caregivers of PWD | ||||||||
Increase the availability and uptake of respite care services | + | − | + | + | + | + | + | + |
Provide training to caregivers (informal caregivers) | + | − | + | + | + | + | + | + |
Provide support to caregivers (focused on peer-to-peer support) | + | − | + | + | − | + | − | + |
Target 5: safe and appropriate environment for PWD | ||||||||
Supporting the improvement of the residential environment | − | − | + | + | − | − | + | + |
Introduction of an alternative housing model | − | − | + | + | + | + | + | + |
Target 6: safe and high-quality long-term-care services for PWD | ||||||||
Standardizing long-term-care services | + | − | + | + | + | − | + | + |
Training dementia-related workforce for care service | + | + | + | + | + | + | + | + |
Monitoring the management of BPSD | − | − | − | + | + | − | − | − |
Promoting human rights and decision-making for PWD | + | − | + | + | + | + | + | + |
Target 7: adequate health facilities for PWD | ||||||||
Training staff in recognizing and responding to PWD | − | + | + | + | + | + | − | + |
Establishing specialized staff and dedicated wards in hospitals | − | − | + | + | − | − | + | + |
Target 8: EOL care for the dignity of PWD | ||||||||
Improving accessibility to EOL care for PWD | − | − | + | + | − | + | + | − |
Training care home staff in EOL care for PWD | − | − | + | + | + | − | + | − |
Target 9: coordinated and proactive care closer to home | ||||||||
Establishing multidisciplinary services | + | + | + | + | + | + | + | + |
Providing acute services outside of the hospital | − | − | + | + | + | − | + | − |
Target 10: dementia research and innovation | ||||||||
Promoting user-centered development and assessment of technologies | + | − | + | + | + | + | + | + |
Developing measures to facilitate research | + | + | + | + | + | + | + | + |
Target 11: information systems for dementia | ||||||||
Developing national systems to gather information | + | + | + | + | − | − | + | + |
Recording and sharing patient data | − | − | − | − | + | + | + | + |
Enabling access to data of available services and resources | + | + | + | + | + | + | + | + |
Abbreviations: BPSD, behavioral and psychological symptoms of dementia; EOL, end-of-life; PWD, people with dementia.
A plus sign indicates that the policy approach is addressed in the national dementia plan; a minus sign indicates that the policy approach is lacking in the national dementia plan.
The NDPs shared common policy approaches, such as public campaigns (target 3), making diagnostic services available (target 2), training workforce (target 6), establishing multidisciplinary services (target 9), facilitating research (target 10), and publicizing available services (target 11).
Discussion
Among several previous comparison studies of NDPs, only 1 used WHO action areas as a framework, which focused on the factors associated with the existence of an NDP.3 A systematic comparison of existing NDPs based on international recommendations would provide valuable guidance for the development of NDPs. Combining the WHO’s inclusive action areas and the OECD’s meticulous key objectives, our 11 targets could provide a practical blueprint.
This study had several limitations. First, plans other than NDPs may contain dementia-related policies, especially regarding research, information systems, and long-term care. Second, subnational plans, which were not included in the present study, may complement NDPs in countries with substantial local autonomy.
References
- 1.World Health Organization . Global action plan on the public health response to dementia 2017-2025. Accessed February 14, 2022. https://www.who.int/publications/i/item/global-action-plan-on-the-public-health-response-to-dementia-2017---2025
- 2.Organisation for Economic Co-operation and Development . Addressing dementia: the OECD response. Accessed March 15, 2021. https://www.oecd.org/els/addressing-dementia-9789264231726-en.htm
- 3.Sun F, Chima E, Wharton T, Iyengar V. National policy actions on dementia in the Americas and Asia-Pacific: Consensus and challenges. Rev Panam Salud Publica. 2020;44(e2):e2. doi: 10.26633/RPSP.2020.2 [DOI] [PMC free article] [PubMed] [Google Scholar]
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