Healthcare equity remains an elusive goal for health systems across the county.1 In a recent report,2 the Commonwealth Fund highlighted persistent disparities in healthcare outcomes across all fifty states. Black, Latinx/Hispanic and American Indian and Alaskan Native subgroups continue to be at higher risk for morbidity and mortality related to treatable conditions like diabetes and cancer. In addition to exacerbating these disparities, the COVID-19 pandemic illuminated structural factors within the health system that hinder progress, including lack of physician diversity, variable quality in translational services, bias in algorithms used to identify patients at risk and inadequate partnerships with community leaders and organizations to address social determinants of health.3–5
Previous efforts to address health inequities focused on improving access to high quality care for historically marginalized groups under the assumption that a “rising tide lifts all boats”. However, in real world settings, the connection between process of care (e.g., A1c testing) and clinical outcomes (e.g., blood sugar control or Hemoglobin A1c) is complicated by factors within and outside of the health care system.6 For example, among insured adults in a large integrated health care system, we reported racial and ethnic disparities in adherence to antihypertensive medications that were partially mediated by patient socioeconomic status, physician prescribing behavior, and type of drug coverage (e.g., copay amount).7 As a consequence, focusing on processes of care alone is unlikely to eliminate disparities in our health care outcomes.
Achieving an equity focused healthcare practice will require several steps. These steps include improving the collection of accurate patient race, ethnicity and language data,8 speeding the adoption of equity-focused quality improvement measures,9–12 and the design and dissemination of effective interventions to address social needs.13 To achieve equity goals, we need to move beyond current quality improvement strategies. A critical step is the development and adoption of equity-focused measures of care quality.
In the August 26th online issue of Medical Care, Becket and colleagues14 evaluate the real-world performance of one such metric, the Health Equity Summary Score (HESS).15,16 Developed by the Centers for Medicaid and Medicare Service Office of Minority Health,15–17 HESS is a standardized metric designed to identify and evaluate healthcare disparities. Developed using patient experience measures from the 2016–2019 Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS),18
HESS enables the assessment of variance in patient experience by race, ethnicity and dual Medicare and Medicaid eligibility.15–17 HESS facilitates equity measurement at a point in time or over time within a single health system, as well as comparisons of equity across hospitals. These measures can be used internally by health systems to track progress toward equity goals, as well as by payors to incentivize the prioritization of health equity goals.16
While HESS is not the only health equity measure available to health systems, it was ranked highest in a contracted study conducted by RAND and sponsored by ASPE’s (Assistant Secretary for Planning and Evaluation) Office of Health Policy.17 Beckett and colleagues report notable correlation between the HESS and the organizational and financial characteristics of hospitals.14 They also note a high degree of correlation between the HESS and overall quality scores. However, as previously observed, high average quality scores sometimes masked important differences in outcomes by race, ethnicity and preferred language. Using the HESS measure, Beckett and colleagues provide yet more evidence that place matters, with Black, Hispanic, and non-English language preference patients being more likely to receive care in low performing hospitals.14
The authors demonstrate the potential utility of HESS and similar measures in clinical practice. Beckett and colleagues also report important limitations to its immediate application in practice. For example, 56% of hospitals in the HCAPS were excluded from the analysis due to insufficient survey responses from relevant subgroups. This limitation is likely a reflection of suboptimal data capture within health systems and inadequate systems to support data capture.19,20 Fundamentally, these data gaps are a direct result of an ongoing racial divide in care delivery, where health outcomes are largely determined by where patients receive care. Understanding these structural factors is critically important for interpreting the results equity focused quality metrics.
As we strive to move health systems toward a more equitable future, we will need to see additional innovations in metric development. For example, how will HESS and other metrics account for intersectionality and structural racism and perceived discrimination?21–23 In addition, how will social needs and health system factors be assessed to lend interpretation to equity gaps that persist over time? Further, health systems and payors will need guidance to minimize the potential for the use of these metrics to select patients for care exclusions or exclude Providers who are more likely to serve patients at high risk.24 This next stage of the work, while necessary, is perhaps the hardest as it requires thinking beyond individual systems to the broader healthcare ecosystem and the external environment.
However, health systems do not have to tread this path alone. Partnerships between health systems and patients and community organizations can facilitate the prioritization of needs and the further development of metrics that matter. Moreover, community partners can aid in the interpretation of data findings and in the development of guidance regarding the appropriate use of these metrics.25 Ultimately, if these metrics are to guide clinical practice, patient and community organizations will be critical partners in the design of interventions to address drivers of disparities within and outside of the health care system.
Funding Acknowledgement:
Dr. Adams receives funding from the Diabetes Research for Equity through Advanced Multilevel Science Center for Diabetes Translational Research (DREAMS-CDTR) [P30 DK092924] and the Stanford Cancer Institute [P30 CA124435]. She is also supported by an endowment through the Stanford Cancer Institute as the Stanford Medicine Innovation Professor.
Footnotes
Conflicts of Interest: None to disclose
References
- 1.Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: The National Academies Press. 10.17226/10027. [DOI] [PubMed] [Google Scholar]
- 2.Radley DC, Baumgartner JC, Collins SR, et al. Achieving Racial and ethnicity Equity in U.S. Health Care: A Scorecard of state Performance (Commonweath Fund, Nov. 2021). 10.26099/ffmq-mm33 [DOI] [Google Scholar]
- 3.Glance LG, Thirukumaran CP, Dick AW. The Unequal Burden of COVID-19 Deaths in Counties With High Proportions of Black and Hispanic Residents. Med Care. 2021. Jun 1;59(6):470–476. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 4.Kulikowski C, Maojo VM. COVID-19 pandemic and artificial intelligence: challenges of ethical bias and trustworthy reliable reproducibility? BMJ Health Care Inform. 2021. Oct;28(1):e100438. doi: 10.1136/bmjhci-2021-100438. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 5.National Academies of Sciences, Engineering, and Medicine; Policy and Global Affairs; Health and Medicine Division; Roundtable on Black Men and Black Women in Science, Engineering, and Medicine. COVID-19 and the Present and Future of Black Communities: The Role of Black Physicians, Engineers, and Scientists: Proceedings of a Workshop. Marrett CB, Jones CP, Alexander M, Laurencin CT, editors. Washington (DC): National Academies Press (US); 2021. Jun 22. [PubMed] [Google Scholar]
- 6.Selby JV, Swain BE, Gerzoff RB, et al. TRIAD Study Group. Understanding the gap between good processes of diabetes care and poor intermediate outcomes: Translating Research into Action for Diabetes (TRIAD). Med Care. 2007. Dec;45(12):1144–53. [DOI] [PubMed] [Google Scholar]
- 7.Adams AS, Uratsu C, Dyer W, et al. Health system factors and antihypertensive adherence in a racially and ethnically diverse cohort of new users. JAMA Intern Med. 2013. Jan 14;173(1):54–61. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 8.Labgold K, Hamid S, Shah S, et al. (2021). Estimating the Unknown: Greater Racial and Ethnic Disparities in COVID-19 Burden After Accounting for Missing Race and Ethnicity Data. Epidemiology, 32 (2), 157–161. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 9.Anderson AC, O’Rourke E, Chin MH, et al. Promoting Health Equity And Eliminating Disparities Through Performance Measurement And Payment. Health Aff (Millwood). 2018. Mar;37(3):371–377. [DOI] [PubMed] [Google Scholar]
- 10.ASPE Report to Congress: Social Risk Factors and Performance Under Medicare’s Value-Based Purchasing Programs (Study A), 2016. ASPE Report to Congress: Social Risk Factors and Performance Under Medicare’s Value-Based Purchasing Programs (Study B), 2020. [Google Scholar]
- 11.Damberg CL, Elliott MN, Ewing BA. Pay-for-performance schemes that use patient and provider categories would reduce payment disparities. Health Aff (Millwood). 2015. Jan;34(1):134–42. [DOI] [PubMed] [Google Scholar]
- 12.Hughes D, Levi J, Heinrich J, et al. Developing a Framework to Measure the Health Equity Impact of Accountable Communities for Health, Washington, D.C.: Funders Forum on Accountable Health, 2020. National Academies of Science, Engineering, and Medicine, Accounting for Social Risk Factors in Medicare Payment: Identifying Social Risk Factors, Washington, D.C.: National Academies Press and HHS, 2016. [Google Scholar]
- 13.Nau C, Adams JL, Roblin D, et al. Considerations for Identifying Social Needs in Health Care Systems: A Commentary on the Role of Predictive Models in Supporting a Comprehensive Social Needs Strategy. Med Care. 2019. Sep;57(9):661–666. [DOI] [PubMed] [Google Scholar]
- 14.Beckett MK, Hambarsoomian K, Martino SC, et al. Measuring Equity in the Hospital Setting: An HCAHPS Application of the Health Equity Summary Score. Med Care. 2023;61:XX–XX. [DOI] [PubMed] [Google Scholar]
- 15.Zimmerman FJ. A robust health equity metric. Public Health. 2019. Oct;175:68–78. [DOI] [PubMed] [Google Scholar]
- 16.Agniel D, Martino SC, Burkhart Q, et al. Incentivizing Excellent Care to At-Risk Groups with a Health Equity Summary Score. J Gen Intern Med. 2021. Jul;36(7):1847–1857. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 17.Martino SC, Ahluwalia S, Harrison J, et al. Developing Health Equity Measures. 2021
- 18.Centers for Medicare & Medicaid Services. HCAHPS: Improving Patient Experience. 2021. Available at: https://hcahpsonline.org/en/mode--patient-mix-adj/. Accessed August 3, 2021.
- 19.Centers for Medicare & Medicaid Services. DQ Atlas. Available at: https://www.medicaid.gov/dq-atlas/. Accessed October 12, 2022.
- 20.Cruz TM, Smith SA. Health Equity Beyond Data: Health Care Worker Perceptions of Race, Ethnicity, and Language Data Collection in Electronic Health Records. Med Care. 2021. May 1;59(5):379–385. [DOI] [PubMed] [Google Scholar]
- 21.Scheim AI, Bauer GR. The Intersectional Discrimination Index: Development and validation of measures of self-reported enacted and anticipated discrimination for intercategorical analysis. Soc Sci Med. 2019. Apr;226:225–235. [DOI] [PubMed] [Google Scholar]
- 22.Adkins-Jackson PB, Chantarat T, Bailey ZD, et al. Measuring Structural Racism: A Guide for Epidemiologists and Other Health Researchers. Am J Epidemiol. 2022. Mar 24;191(4):539–547. [DOI] [PMC free article] [PubMed] [Google Scholar]
- 23.Shariff-Marco S, Gee GC, Breen N, et al. A mixed-methods approach to developing a self-reported racial/ethnic discrimination measure for use in multiethnic health surveys. Ethn Dis. 2009. Autumn;19(4):447–53. [PMC free article] [PubMed] [Google Scholar]
- 24.Newhouse JP Reimbursing Health Plans and Health Providers: Efficiency in Production Versus Selection. J. Econ. Lit. 34, 1236–1263 (1996). [Google Scholar]
- 25.Spencer J, Gilmore B, Lodenstein E, et al. A mapping and synthesis of tools for stakeholder and community engagement in quality improvement initiatives for reproductive, maternal, newborn, child and adolescent health. Health Expect. 2021. Jun;24(3):744–756. [DOI] [PMC free article] [PubMed] [Google Scholar]
