From June 2020 to March 2021, All.Can Canada conducted a comprehensive analysis to understand the diagnosis landscape in Canada. The multi-part research comprised a structured literature review to identify and catalogue practices or interventions currently being used in Canada to reduce inefficiencies and enhance the individual’s experience during the diagnosis phase, to identify what indicators are currently used in Canada to measure the diagnosis phase, and to summarize what is known about how the social determinants of health impact the diagnosis experience for people in Canada. Thirty qualitative interviews followed cancer survivors across Canada, who were diagnosed within 18 months of the interview, to understand the diagnosis experience from patients’ and caregivers’ perspectives and what mattered most to them during the process. Next was a survey of 42 healthcare providers working in or studying cancer care from across Canada to understand what they perceive to be the main inefficiencies in the diagnosis system, the factors that are essential for a quality diagnosis process, and what practices have been used to manage inefficiencies and enhance quality.
The workshop will begin with a patient story that illustrates the issues uncovered, then present a brief overview of the research methods, findings, recommendations, and next steps. This will lead to a moderated, multidisciplinary discussion between representatives of patients, primary care, oncology, nursing, and policy to discuss the relevance and implications of the findings, plus priorities in moving the recommendations into practice.
Led by patient groups and people with lived experiences of cancer, All.Can Canada is a national, multi-stakeholder platform for cancer care efficiency, with a preliminary aim of optimizing people’s entry into cancer care through swift, accurate, and appropriately delivered diagnoses.
