Table 2.
Demographic characteristics of participants
| Parameter | N = 219 | |
|---|---|---|
| Country, n (%) | ||
| UK | 18 | (8.2%) |
| Ireland | 22 | (10.0%) |
| Germany | 71 | (32.4%) |
| Austria | 3 | (1.4%) |
| Belgium | 4 | (1.8%) |
| The Netherlands | 68 | (31.1%) |
| Denmark | 12 | (5.5%) |
| Switzerland | 16 | (7.3%) |
| Other | 5 | (2.3%) |
| Sex, n (%) | ||
| Female | 198 | (90.4%) |
| Age (years), n (%) | ||
| ≤ 30 | 49 | (22.4%) |
| 31–40 | 78 | (35.6%) |
| 41–50 | 64 | (29.2%) |
| > 50 | 28 | (12.8%) |
| Race, n (%) | ||
| White or Caucasian | 205 | (93.6%) |
| Asian | 3 | (1.4%) |
| Black or African American | 0 | – |
| Other | 11 | (5.0%) |
| Occupational status, n (%) | ||
| Full time employed | 87 | (39.7%) |
| Part time employed | 51 | (23.3%) |
| Student | 10 | (4.6%) |
| Not working or unemployed | 31 | (14.2%) |
| Retired | 40 | (18.3%) |
| Highest level of education, n (%) | ||
| Primary or elementary school | 7 | (3.2%) |
| Secondary or high school | 120 | (54.8%) |
| College or university degree | 73 | (33.3%) |
| Other | 19 | (8.7%) |
| Disease duration, (years), mean (SD) | 10.70 | (9.8) |
| Disease duration, n (%) | ||
| 0–3 | 66 | (30.1%) |
| 4–10 | 69 | (31.5%) |
| 11–20 | 51 | (23.3%) |
| > 20 | 33 | (15.1%) |
| Severity of HS (by Hurley classification) | ||
| Mild | 13 | (5.9%) |
| Moderate | 132 | (60.3%) |
| Severe | 74 | (33.8%) |
| Treatment experience | ||
| Previous biologic therapy | 65 | (29.7%) |
| Previous wide excisional surgery | 134 | (61.2%) |
| Level of pain (0–10 VAS), median (IQR) | 5 | 3-7 |
| HiSQOL score, median (SD) | ||
| Total score | 34 | (16.1) |
| Symptom subscale | 8 | (4.1) |
| Psychosocial subscale | 10 | (5.5) |
| Activities and adaptations subscale | 17 | (8.1) |
| EQ-5D-5L, mean (SD) | ||
| Mobility | 2.14 | (1) |
| Self-care | 1.50 | (0.7) |
| Usual activities | 2.21 | (0.9) |
| Pain and discomfort | 2.94 | (1) |
| Anxiety and depression | 2.58 | (1.2) |
EQ-5D-5L EuroQoL 5-Dimension-5 Level Questionnaire, HiSQOL Hidradenitis Suppurativa Quality of Life Questionnaire, HS hidradenitis suppurativa, IQR interquartile range, SD standard deviation, VAS Visual Analog Scale