Patients, inclusion |
Age |
≥ 18 years |
Diagnosis of parkinsonism |
Includes idiopathic Parkinson’s disease, progressive supranuclear palsy, corticobasal degeneration, multisystem atrophy, dementia with Lewy Bodies, vascular parkinsonism or primary progressive freezing of gait |
Location |
Be resident within the geographical catchment area of the trial site |
Willingness |
Be willing to participate |
Patients, exclusion |
Cause of parkinsonism |
Drug, infection or toxin induced parkinsonism |
Capacity |
Lack capacity to participate and do not have anyone who can be a consultee to provide advice regarding the patient’s wishes and views |
Decision of clinician |
Current medical, cognitive or psychosocial issue or co-enrolment in other study that, in the opinion of the site investigator, would interfere with adherence to study requirements |
Caregivers, inclusion |
Age |
≥ 18 years |
Provision of care |
Provide informal care or support for a patient with parkinsonism |
Willingness |
Be willing to participate |
Capacity |
Have the ability to provide informed consent to participate |
Caregivers, exclusion |
Formal care |
Professional caregivers who are paid to deliver care |
Person with parkinsonism not participating |
Unwillingness or ineligibility of person for whom they provide care |