Abstract
The follow-up of patients with inflammatory bowel disease (IBD) was investigated using a postal questionnaire sent to 359 members of the British Society of Gastroenterology (BSG), of whom 235 replied. Of patients with IBD, 96% were weighed on each out-patient clinic review and over 60% had their full blood count checked. Although few centres (20%) have computerized recall of their patients for cancer surveillance, 96% did perform such surveillance on patients with ulcerative colitis. The mean duration of disease before surveillance was initiated was 9.6 years. Most clinicians (80%) only surveyed patients with disease extending beyond the transverse colon. Despite recent work on cancer risk age is relatively unimportant to 76% of clinicians in their decision to screen or not. Only 24% of clinicians undertake cancer surveillance in patients with Crohn's disease but these use similar criteria in their selection of patients. Few other tests were performed regularly. Clinic services vary considerably from centre to centre, 62% offer open access to patients with IBD, 8% have a stoma nurse in clinic and 17% a dietitian. Eighty-four per cent of respondents provide educational books and 22% videos. Forty-four per cent of clinicians refer patients for advice to fellow sufferers. We believe there should be a uniform minimum standard of care and services available in clinics throughout the United Kingdom and propose a patients' charter to ensure that this occurs. Such care profiles provide guidelines to those who need to develop standards for resource management.
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Selected References
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- Godber D., Mayberry J. F. A preliminary report on the role of lay counselling amongst patients with inflammatory bowel disease. J R Soc Med. 1988 Sep;81(9):528–529. doi: 10.1177/014107688808100911. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Jayanthi V., Probert C. S., Mayberry J. F. Epidemiology of inflammatory bowel disease. Q J Med. 1991 Jan;78(285):5–12. [PubMed] [Google Scholar]
- Kvist N., Jacobsen O., Kvist H. K., Nørgaard P., Ockelmann H. H., Schou G., Jarnum S. Malignancy in ulcerative colitis. Scand J Gastroenterol. 1989 May;24(4):497–506. doi: 10.3109/00365528909093080. [DOI] [PubMed] [Google Scholar]
- Probert C. S., Mayberry J. F. Inflammatory bowel disease: patients' expectations in the 1990s. J R Soc Med. 1991 Mar;84(3):131–132. doi: 10.1177/014107689108400305. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Schölmerich J., Sedlak P., Hoppe-Seyler P., Gerok W. The information needs and fears of patients with inflammatory bowel disease. Hepatogastroenterology. 1987 Aug;34(4):182–185. [PubMed] [Google Scholar]
- Smart H., Mayberry J., Calcraft B., Morris J. S., Rhodes J. Effect of information booklet on patients' anxiety levels and consultation rates in Crohn's disease. Public Health. 1986 May;100(3):184–186. doi: 10.1016/s0033-3506(86)80033-6. [DOI] [PubMed] [Google Scholar]