Abstract
In heart disease palliative care has received less attention than in cancer. In the Regional Study of Care for the Dying, carers of a random sample of deaths in 20 English health districts were interviewed about 10 months after the death. There were 675 respondents for patients dying with heart disease, and we report data on 600 deaths that were not sudden. 54% of patients died in hospital, 30% in their own home, 11% in a nursing or residential home, and 4% in other places. Half the patients were said to have known, or probably known, that they were likely to die; of these, 82% were said to have worked this out for themselves rather than been told by a doctor or nurse. More than one-third of patients (39%) died without an informal carer present. Respondents said that a quarter of the patients had wanted to die earlier: this desire was associated with older age and the number and severity of symptoms. The study suggests the need for health services to give greater attention to palliative care for patients dying with heart disease.
Full text
PDFSelected References
These references are in PubMed. This may not be the complete list of references from this article.
- Addington-Hall J., McCarthy M. Regional Study of Care for the Dying: methods and sample characteristics. Palliat Med. 1995 Jan;9(1):27–35. doi: 10.1177/026921639500900105. [DOI] [PubMed] [Google Scholar]
- Dargie H. J., McMurray J. J. Diagnosis and management of heart failure. BMJ. 1994 Jan 29;308(6924):321–328. doi: 10.1136/bmj.308.6924.321. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Evans C., McCarthy M. Prognostic uncertainty in terminal care: can the Karnofsky index help? Lancet. 1985 May 25;1(8439):1204–1206. doi: 10.1016/s0140-6736(85)92876-4. [DOI] [PubMed] [Google Scholar]
- Higginson I., Wade A., McCarthy M. Palliative care: views of patients and their families. BMJ. 1990 Aug 4;301(6746):277–281. doi: 10.1136/bmj.301.6746.277. [DOI] [PMC free article] [PubMed] [Google Scholar]
- McCarthy M., Lay M., Addington-Hall J. Dying from heart disease. J R Coll Physicians Lond. 1996 Jul-Aug;30(4):325–328. [PMC free article] [PubMed] [Google Scholar]