Full Text
The Full Text of this article is available as a PDF (89.9 KB).
Selected References
These references are in PubMed. This may not be the complete list of references from this article.
- Bartels D. M., LeRoy B. S., McCarthy P., Caplan A. L. Nondirectiveness in genetic counseling: a survey of practitioners. Am J Med Genet. 1997 Oct 17;72(2):172–179. [PubMed] [Google Scholar]
- Burke B. M., Kolker A. Directiveness in prenatal genetic counseling. Women Health. 1994;22(2):31–53. doi: 10.1300/j013v22n02_03. [DOI] [PubMed] [Google Scholar]
- Charles C., Gafni A., Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997 Mar;44(5):681–692. doi: 10.1016/s0277-9536(96)00221-3. [DOI] [PubMed] [Google Scholar]
- Clarke A. Genetics, ethics, and audit. Lancet. 1990 May 12;335(8698):1145–1147. doi: 10.1016/0140-6736(90)91139-2. [DOI] [PubMed] [Google Scholar]
- Clarke Angus. Genetic screening: a response to Nuffield. Bull Med Ethics. 1994 Apr;NO:13–21. [PubMed] [Google Scholar]
- Coulter A. Partnerships with patients: the pros and cons of shared clinical decision-making. J Health Serv Res Policy. 1997 Apr;2(2):112–121. doi: 10.1177/135581969700200209. [DOI] [PubMed] [Google Scholar]
- Deber R. B., Kraetschmer N., Irvine J. What role do patients wish to play in treatment decision making? Arch Intern Med. 1996 Jul 8;156(13):1414–1420. [PubMed] [Google Scholar]
- Elwyn G., Edwards A., Gwyn R., Grol R. Towards a feasible model for shared decision making: focus group study with general practice registrars. BMJ. 1999 Sep 18;319(7212):753–756. doi: 10.1136/bmj.319.7212.753. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Elwyn G., Edwards A., Kinnersley P. Shared decision-making in primary care: the neglected second half of the consultation. Br J Gen Pract. 1999 Jun;49(443):477–482. [PMC free article] [PubMed] [Google Scholar]
- Elwyn Glyn, Gwyn Richard, Edwards Adrian, Grol Richard. Is 'shared decision-making' feasible in consultations for upper respiratory tract infections? Assessing the influence of antibiotic expectations using discourse analysis. Health Expect. 1999 May;2(2):105–117. doi: 10.1046/j.1369-6513.1999.00045.x. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Fraser F. C. Genetic counseling. Am J Hum Genet. 1974 Sep;26(5):636–659. [PMC free article] [PubMed] [Google Scholar]
- Gafni A., Charles C., Whelan T. The physician-patient encounter: the physician as a perfect agent for the patient versus the informed treatment decision-making model. Soc Sci Med. 1998 Aug;47(3):347–354. doi: 10.1016/s0277-9536(98)00091-4. [DOI] [PubMed] [Google Scholar]
- Guadagnoli E., Ward P. Patient participation in decision-making. Soc Sci Med. 1998 Aug;47(3):329–339. doi: 10.1016/s0277-9536(98)00059-8. [DOI] [PubMed] [Google Scholar]
- Gwyn R., Elwyn G. When is a shared decision not (quite) a shared decision? Negotiating preferences in a general practice encounter. Soc Sci Med. 1999 Aug;49(4):437–447. doi: 10.1016/s0277-9536(99)00067-2. [DOI] [PubMed] [Google Scholar]
- Kessler S. Psychological aspects of genetic counseling. XI. Nondirectiveness revisited. Am J Med Genet. 1997 Oct 17;72(2):164–171. doi: 10.1002/(sici)1096-8628(19971017)72:2<164::aid-ajmg8>3.0.co;2-v. [DOI] [PubMed] [Google Scholar]
- Michie S., Bron F., Bobrow M., Marteau T. M. Nondirectiveness in genetic counseling: an empirical study. Am J Hum Genet. 1997 Jan;60(1):40–47. [PMC free article] [PubMed] [Google Scholar]
- Ong L. M., de Haes J. C., Hoos A. M., Lammes F. B. Doctor-patient communication: a review of the literature. Soc Sci Med. 1995 Apr;40(7):903–918. doi: 10.1016/0277-9536(94)00155-m. [DOI] [PubMed] [Google Scholar]
- Quill T. E., Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Ann Intern Med. 1996 Nov 1;125(9):763–769. doi: 10.7326/0003-4819-125-9-199611010-00010. [DOI] [PubMed] [Google Scholar]
- Quill T. E., Cassel C. K. Nonabandonment: a central obligation for physicians. Ann Intern Med. 1995 Mar 1;122(5):368–374. doi: 10.7326/0003-4819-122-5-199503010-00008. [DOI] [PubMed] [Google Scholar]
- Redelmeier D. A., Rozin P., Kahneman D. Understanding patients' decisions. Cognitive and emotional perspectives. JAMA. 1993 Jul 7;270(1):72–76. [PubMed] [Google Scholar]
- Shiloh S., Sagi M. Effect of framing on the perception of genetic recurrence risks. Am J Med Genet. 1989 May;33(1):130–135. doi: 10.1002/ajmg.1320330121. [DOI] [PubMed] [Google Scholar]
- Tversky A., Kahneman D. The framing of decisions and the psychology of choice. Science. 1981 Jan 30;211(4481):453–458. doi: 10.1126/science.7455683. [DOI] [PubMed] [Google Scholar]
- Wertz D. C., Fletcher J. C. Attitudes of genetic counselors: a multinational survey. Am J Hum Genet. 1988 Apr;42(4):592–600. [PMC free article] [PubMed] [Google Scholar]
- Wolff Gerhard, Jung Christine. Nondirectiveness and genetic counseling. J Genet Couns. 1995 Mar;4(1):3–25. doi: 10.1007/BF01423845. [DOI] [PubMed] [Google Scholar]
- van Zuuren F. J. The standard of neutrality during genetic counselling: an empirical investigation. Patient Educ Couns. 1997 Sep-Oct;32(1-2):69–79. doi: 10.1016/s0738-3991(97)00051-7. [DOI] [PubMed] [Google Scholar]
- van Zuuren F. J., van Schie E. C., van Baaren N. K. Uncertainty in the information provided during genetic counseling. Patient Educ Couns. 1997 Sep-Oct;32(1-2):129–139. doi: 10.1016/s0738-3991(97)00052-9. [DOI] [PubMed] [Google Scholar]