Abstract
Introduction
Mental healthcare systems are challenged by how they hear and respond to what marginalised communities experience as drivers of mental distress. In Colombia, this challenge intersects with wider challenges facing post-conflict reconstruction. Our pilot study will explore the feasibility and acceptability of a participatory approach to developing community-led participatory interventions for community mental health systems strengthening and mental health improvement, in two sites in Caquetá, Colombia.
Methods and analysis
The project is divided into three distinct phases aligned with community participatory action research cycles: diagnostic, intervention and evaluation. This allows us to use a participatory approach to design a community-led, bottom-up intervention for mental health systems strengthening and the promotion of mental health and well-being.
The diagnostic phase explores local understandings of mental health, mental distress and access to mental health services from community members and health providers. The intervention stage will be guided by a participatory Theory of Change process. Community priorities will inform the development of a participatory, learning and action (PLA) informed group intervention, with a community linkage forum. The pilot of the PLA intervention will be evaluated using MRC process evaluation guidelines.
Ethics and dissemination
This project has received ethical approval from two sources. Universidad de Los Andes (2021–1393) and the University College London (16127/005). Dissemination of findings will include academic publications, community forums, policy briefs and visual media (cartoons, pod casts and short films).
Keywords: MENTAL HEALTH, Depression & mood disorders, PUBLIC HEALTH
Strengths and limitations of this study.
This pilot study aims to provide evidence for a new methodology that meaningfully involves citizens developing and strengthening mental health systems in complex settings.
The study pilots for the first time in Colombia participatory action research to design participatory learning and action groups (PLA) for improving mental health and strengthening community mental health systems.
PLA groups will enable better collaboration between community knowledge systems, community members and the services that are designed to support them, through ‘community link’ activities.
The main challenge facing this pilot is the integration of participation across multiple sectors.
Participatory action research processes can be directly impacted by wider geopolitical realities—such as the UK government funding cuts, which disrupted community processes and relationship building.
Introduction
Globally, the burden of mental health conditions is shaped by gaps in services. In low-middle income countries, 75% of the population lacks access to any form of care.1 The COVID-19 pandemic exacerbated these challenges as intersecting social realities deepen distress, increase the incidence of mental health disorders and overburden health systems.2 In the case of Colombia, political violence, poverty and displacement further aggravate this burden. Previous research shows that victims of armed conflict are more likely to suffer from mental health disorders,3 with poverty explaining 86% of mental health inequalities in the country.4
Six years after the Peace Accords between the Colombian Government and the FARC-EP (Fuerzas Armadas Revolucionarias de Colombia - Ejército del Pueblo, in Spanish) guerrilla, there are still barriers in the implementation of the Psychosocial Care and Comprehensive Health Services for Victims programme and the Psychosocial Wellbeing Component in the reintegration route for ex-combatants (Resolution n. 4309). In the case of ex-combatants, a dual status of victims and perpetrators requires balancing psychosocial well-being, personal protection and political acceptability of mental health services. This population, like the victims of the conflict, reside in rural areas where services are scarce or non-existent.3 5
Mental-health care systems are challenged by how they hear and respond to what marginalised communities experience as drivers of mental distress.6–8 This is acknowledged by global9 and national priorities, which call for providing accessible and quality services to overlooked communities. In Colombia, this includes territories and rural populations (campesinos) that are the focus of Territorially Focused Development Programmes (PDETs in Spanish), a national programme of development prioritising those who have been heavily affected by disproportionate armed conflict, poverty, illicit economies and institutional fragility.10 11
Scaling-up services is important but only a partial response; sustainable solutions to improve mental health require dialogue between health systems and communities.12 Community-owned and anchored interventions are critical to re-establishing trust between local populations and systems, particularly after periods of extended upheaval. In this context, integrating community-level experiences of mental health and mental distress with institutional responses by state-level actors is a necessary step towards effective community mental health services. This requires a multilevel interdisciplinary perspective that links individual and community well-being to wider institutional, socioeconomic and political contexts. Community participatory action research (CPAR) approaches allow us to explore the ability to identify strengths and solutions produced by communities for communities, connecting them to wider systems, while acknowledging them as agents with the capacity to create effective, context-sensitive solutions.13
As Colombia begins to refocus its efforts towards achieving these global and national policy aims, three critical areas require attention: (1) wider social and political contextual factors that drive experiences of poor mental health,14 (2) increasing understanding of local embodied knowledge and lived experiences of communities and their relevance for building knowledge about mental health,15 and (3) the role and resources offered by community participation in the codesign of interventions and services that are effective.8
In response to these demands, we will implement a participatory process to design, implement and evaluate a participatory intervention to strengthen community mental healthcare systems in two PDET communities in Caquetá-Colombia. We are guided by the following research question: what are the pathways, mechanisms, and resources needed to catalyse collaborative action between communities and institutions for promoting and improving mental health services for PDET communities? To this end, we aim:
To co-design and co-implement a participatory group intervention to create trust and opportunities for collaborative action between community and health system actors to improve the performance of community mental health services.
To co-evaluate the group intervention in terms of process, outcomes (including individual and community mental health) and simulations of the cost-benefit and cost-effectiveness of the intervention at individual, community and health services levels.
To produce a manual based on the development, implementation and evaluation of the intervention to guide communities and institutions in the application of these methods for developing and scaling up community mental health services in Colombia. We expect these tools to be made widely applicable in other low-resource or conflict-affected settings.
The project is divided into distinct phases aligned with CPAR cycles reflecting diagnostic, intervention and evaluation. This protocol presents the STARS-C (Starting from the bottom: Using Participatory Action Research to re-imagine local mental health services in Colombia) objectives, procedures and methodological considerations for implementing a participatory mental health research project in conflict areas amidst the COVID-19 pandemic.
Methods and analysis
The project will be implemented in inter-related phases aligned with participatory action research (PAR). It will run from February 2021 to May 2023 in Caquetá, Colombia. Implementation of the group intervention will run from July 2022 to March 2023. The project has been co-designed through existing partnerships involving academics and two community-based organisations: (1) the Manigua Corporation (Corpomanigua), an organisation of women with experience in the design and implementation of projects with marginalised communities, located in Florencia, representing an urban community and (2) the Multi-active Cooperative for Wellbeing and Peace of Caquetá (Cooperativa Multiactiva para el Buen Vivir y la Paz del Caquetá), which represents a rural community of ex-combatants from the former guerrilla FARC-EP, located in the small village Héctor Ramírez Poblado Center (CP-HR: former Territorial Space for Training and Reincorporation Héctor Ramírez) in the municipality of La Montañita.
Co-design and coimplementation will be further achieved through the appointment of community researchers (two from each site), who live and work in the communities being studied. They will be involved in all stages of the implementation of the project as detailed below and were appointed prior to the drafting of this protocol. To ensure more equal partnerships in this work, community researchers were trained in collecting qualitative information, quantitative questionnaires and in psychological first aid to support potential psychological and emotional distress among participants. Regular supervision is provided in real-time planned meetings. WhatsApp groups are used for constant communication.
Setting
Caquetá is one of Colombia’s 32 departments, and the only region of the country in which all municipalities are included in the Territorially Focused Development Plans (PDET in Spanish). The project will be conducted in two of these PDET municipalities: Florencia and La Montañita. Each of the municipalities also represents diversity within a more general context of deprivation and adversity.
Florencia is Caquetá’s capital city and constitutes its largest population with 173 011 inhabitants.16 Updated mental health statistics are not available at the municipality level; however, a report by MSF (2010) in Caquetá suggests that of the 60% of the nearly 5000 patients affected by armed conflict and internal displacement, 18% were diagnosed with adaptative disorders, 18% with relationship problems and problems associated with abuse or neglect, 11% by major depression with one episode, 9% with grief and 8% with mood disorders.17 Arguably, the prevalence of these mental health disorders relates to structural drivers such as high unemployment levels. According to the latest report done by the National Administrative Department of Statistics in 2020, the unemployment rate in Florencia was 25%, with women having a higher unemployment rate (29.2%) than men (21.5%),16 both much more, than the current unemployment national rate of 11%.18 As an urban area, Florencia has access to some specialised mental health facilities and staff, including psychologists, psychiatrists and nurses.
La Montañita is a rural area located to the south-west of Florencia and one of the areas most affected by the armed conflict, with 8756 victims out of a total of 14 692 inhabitants.16 19 No mental health statistics are available for the municipality but reports from local organisations point to mental distress associated with poverty and conflict as well unmet care needs. The project will be carried out in a small village self-named Centro Poblado Héctor Ramirez, which is one of theFormerTerritorial Spaces for Training and Reincorporation for former FARC-EP combatants (AETCR in Spanish) in La Montanita.
Design
The STARS-C project outlines a three-phase process to guide stakeholders in the development and strengthening of community led mental health systems. It is informed by co-production principles, to enable a platform for involving community members in a process of thinking through what changes are needed to improve access to, and the quality of mental health services.20 Co-production principles demand the inclusion of everyday actors, or potential service users, within processes of design and development. We will achieve this through involving everyday community members using a CPAR21 model, to think through what changes are needed to improve access to and quality of mental health services.20 As such the project combines participatory qualitative inquiry across its three phases of diagnosis, intervention and evaluation (see table 1) with quantitative assessments of mental health outcomes in a process described below.
Table 1.
Phase | Data collection | Participants | |
La Montañita | Florencia | ||
Diagnostic | Focus group 1: local understandings of mental health and mental distress—Tree of Life | n=42 | n=57 |
Focus group 2: evaluation of standardised measures of mental health | n=34 | n=49 | |
Interviews health providers | n=13 | n=17 | |
Whatsapp focus groups health providers | n=11 | n=10 | |
Motivated ethnography (1 month) | Local Hospital-Community health post | City Hospital | |
Intervention Design | Theory of change workshop | N=25 | n=25 |
Intervention implementation | PLA groups—Stage 1: reflection | 4 groups | 8 groups |
PLA groups—Stage 2: from reflection to action | |||
PLA groups—Stage 3: implementation of initiatives | |||
PLA groups—Stage 4: evaluation | |||
Evaluation | Cost–benefit analysis | TBD | TBD |
Photovoice | |||
Baseline questionnaire | |||
Endline questionnaire | |||
Endline qualitative Interviews |
PLA, participatory, learning and action; TBD, To Be Determined.
Our study builds on a pilot feasibility study of this approach in Cundinamarca-Colombia with a group of forty forcibly displaced persons.6
Phase 1: diagnostics (month 3–14)
The aim of this phase is to map out and understand community knowledge, the systems and services available at local level and everyday practices related to mental health. This is intended to identify the knowledge, practices, and resources available in the community and the experiences and beliefs held by community actors about mental health, mental illness and practices of care. Data collection initiated in April 2021 and was completed April 2022 for stages 1 and 2. Stage 3 remains ongoing. Specific aims, and procedures linked to this stage are as follows:
(1) Assess local mental health systems capacities and capabilities in collaboration with service actors. This stage involves three modes of data collection and engagement. First a review of existing mental health national interventions and their implementation and a Systematic Applied Policy Review of mental health national plans and policies currently in force. Second, involves motivated ethnographies22 of local mental health services and community needs, with semistructured interviews with service providers in each site. Third, includes focus groups with service providers, which are conducted online during the pandemic period. WhatsApp discussion groups are used as a platform to engage time-strapped institutional (psychologists, social workers) and community practitioners (including traditional healers) in both sites.23 The implementation of these steps is currently ongoing, having started in February 2021.
(2) Explore community understandings of mental health, mental distress and well-being strategies in one urban and one rural PDET territory. This involves a qualitative investigation of local understandings drawing on focus groups discussions, word association tasks, a Tree of Life exercise which focuses on experiences and community resources linked to achieving good mental health and well-being. It will also draw from the motivated ethnography in each site. Twelve focus groups discussions divided by gender and age are envisaged.
(3) Work with local communities to evaluate appropriateness of standard mental health measures, using participatory methodologies. Three standardised Mental Health measures PHQ-9 (Patient Health Questionnaire); WHO-5 (World Health Organisation- Five Well-Being Index), and Warwick-Edinburgh well-being scale were selected as potential screening tools to evaluate the impact of community designed activities. Initial team discussions with non-academic partners established the potential local appropriateness of the measures before they were discussed with community members. All measures have been standardised for use with Colombian or Spanish speaking participants.24–26 Focus groups will provide an opportunity to complete group cognitive interviews to explore meaning and perceptions of measures.27 This critical stage is informed by previous pilot work conducted in Colombia by members of our team.6 28
(4) Assess the cost of the standard mental health services basket offer of local health systems. The scarcity of data in these areas will make this stage challenging, but we are envisaging the potential collection of data from three sources: motivated ethnography, document analysis and service provider interviews (n – 30). This will allow us to understand comparative costing for community-led supports where possible.
Phase 2: intervention: PLA cycles to improve mental health community services (months 15–27)
The aim of this phase is to design and implement a community-led group intervention to (1) identify social drivers of mental health and priority conditions, (2) create shared spaces for dialogue and understanding of mental health, mental distress and well-being, identifying facilitators and barriers to collaborative processes of communication and action; and (3) establish priorities for action that improve community’s access to mental health services in PDET territories.
Intervention design
The intervention design is grounded in a participatory Theory of Change (TOC) process. Its first component is a participatory TOC workshop to involve large numbers of community members in the intervention co-design process. Participants from each community with interest in the project and their children were invited to a day long workshop in Florencia.
Drawing on preliminary analysis from the diagnostic phase, participatory activities are designed to facilitate real-time contributions to three main dimensions of the TOC process: identification of challenges, assumptions, and preconditions, short and long-term outcomes and impacts, and backward chaining. Manual development was led by RAB and refined by the academic team members. The TOC workshop manual is available in online supplemental materials, in English and Spanish. A summary of this process is provided in table 2.
Table 2.
TOC session | Stage | Connection to TOC process | Activity to be conducted | Time allowance for activity | Number of facilitators required | Resources required |
Session 1 | Challenges that hinder good mental health and mental health services | Identify challenges, assumptions and context | Building problem trees | 2 hours | 2–4 | Tape recorder Flip chart Paper Coloured marker pens Flash cards with themes from FGDs (5 full sets) |
Session 2 | Ideal world that enables good mental health and mental health services | Identify long-term outputs, other outputs and pathways to change. | Storytelling of an ideal world | 1.5 hours | 2–4 | Tape recorder Flip chart Paper Coloured marker pens Photocopy of exercise |
Session 3 | Identify interventions which could be used to improve mental health and mental health services | Identify intervention and additional contexts. | Mapping and intervention building | 1 hour | 2–4 | Tape recorder Cardboards Paper Coloured marker pens Flashcards |
bmjopen-2022-069329supp001.pdf (169KB, pdf)
The TOC workshop was run in December 2021 facilitated by senior project members community researchers. A total of 44 people attended, equally split between each study site. Fourteen of these participants also attended the FGDs in phase 1. The sessions were audio recorded and data were transcribed and analysed in Spanish. The academic members of the project team used these data alongside preliminary analyses of focus group data and the focused ethnography, to develop a working model of the TOC. This was presented to the wider project team and community researchers, for evaluation and validation.
Based on the findings of the TOC process (see online supplemental data for final TOC), we identified that a participatory, learning and action (PLA) approach to the intervention would be an ideal structure. PLA cycles have been used widely in other resource-limited settings but to the best of our knowledge, our study is the first to implement PLA cycles at scale for community mental health improvement in Colombia. For example, their use has contributed to improved health outcomes for diabetes in Bangladesh,29 and maternal and child health in India,30 and are currently being evaluated for improvement in under-5 pneumonia in Nigeria.31 Crucially, our adaptation seeks to enhance links across groups that are historically opposed and limited by unequal access to power: community service providers, ex-combatants, internally displaced people and host community members. The value of these types of linking interventions for health systems improvement is well documented elsewhere.32
bmjopen-2022-069329supp002.pdf (119.6KB, pdf)
Based on community priorities identified in the TOC process, the proposed outcomes for the PLA intervention are as follows. We organise these into primary outcomes which we feel may be achieved in the short term, as well as longer term outcomes that could occur with longer running of PLA groups:
Primary outcomes
(1) Increased access to mental health acknowledge and information by community members; (2) improved feelings of belongingness and community cohesion and (3) improved perceptions of communication and relationships between practitioners and communities.
Long term outcomes
(1) Improved recognition of the importance of good mental health to wider health and well-being, (2) reduction of stigma around mental illness and mental health, (3) young people’s increased participation and communication in family life and community activities, (4) improved mental well-being, (5) improved experience of services (Respect, listening, communication).
Intervention structure
The PLA intervention itself comprises 4 stages, running across 13 sessions (figure 1).
Stage 1— knowledge building is designed to provide community members with opportunities to develop new knowledge and understanding about mental health linked to the priority issues identified in the ToC workshop.
Stage 2—from reflection to action where participants will engage in a series of prioritisation and planning activities to identify a single challenge or focus and a plan for local action to address the issue. This stage will end with a community forum which creates a formal link between key actors in the local mental health infrastructure. Key actors were identified in the ToC and the ethnography and will be invited to engage in the community forums.
Stage 3—implementation will focus on groups’ implementation of their projects, and group led monitoring of the implementation process and the delivery of the planned activities. We will suggest the use of photography and video to help increase the accessibility of this process to community members.
Stage 4—evaluation will include a formalised participatory evaluation of each PLA group’s intervention, exploring any potential impact and efficacy in attaining the desired outcomes. Group members will be invited to participate in a photovoice project to achieve this. Phase 4 will also involve the election of community mental health champions. These individuals will become the focal points about mental health issues in their communities, combining with existing local infrastructure (such as health committees) in the long term. They will complete additional training provided by the project (ie, WHO quality rights training, Community MH gap training), as well as training on facilitating future cycles of the group for those projects who which to continue (see figure 1).
PLA group implementation
Group facilitator training
Community researchers are also facilitators for PLA groups. They completed full day of training, delivered in five short modules. The first of which included basic information about the project and the use of the manual. The next four modules correspond to each PLA phase outlining the objectives of each session and activities. To compensate for the short time period, the training programme was organised around role play activities, where facilitators completed all activities to be used within the intervention. Training also included a refresher on the processes for referrals (the same as used in phase one), and introduction to new data monitoring processes.
PLA groups development
Sessions will be delivered in a byweekly schedule, aiming to approximate two 3-hour sessions per month, running for 6 months to complete one cycle. Delivery of sessions will be supported by regular supervision by a member of the research team, as well as biweekly meetings with all community researchers, where implementation issues will be discussed. Due to time constraints created by the pandemic and funding instability created by geopolitical contexts in the UK, the pilot study will be restricted to a single cycle.
Group intervention structure will be determined by relevance to local context. In La Montañita, given the close ties between community members, it is likely that men and women will work together in groups in some cases. In Florencia, groups will likely be divided by sex and in both contexts will be divided by age, with young people meeting separately.
Phase 3: evaluation (months 20–27)
At programme level, we will explore the acceptability, appropriateness and feasibility of a PAR approach to establish platforms for community-led mental health systems strengthening. To evaluate this, we will hold monthly team meetings to discuss process and implementation challenges. We will also convene two workshops to discuss the strengths and weaknesses of the overall PAR approach and PLA intervention with team members and invited service delivery and community member representatives.
At the intervention level, we will explore standard process and outcome evaluation parameters as summarised in table 3, in line with MRC Complex intervention guidelines. For our intervention, we will evaluate potential impact at the individual and community level, combining traditional academic evaluations of outcomes using standardised measures, exit qualitative interviews with 30 participants (15 per site), and community-led evaluation methods—using photovoice methods.
Table 3.
Item | Definition | Indicators | Target group | Frequency of collection | Person responsible | Source of data | Tool required | Data type |
Acceptability | Satisfaction with the content and delivery of components | Experiences of sessions | PLA participants | Once | Research team | Midline/Endline interview | Topic guide | Qualitative |
Appropriateness | Usefulness, relevance, suitability of component | Describing the intervention as useful | PLA participants | Once | Research team | Endline interview | Topic guide and survey | Qualitative and quantitative |
Endline questionnaire | ||||||||
Feasibility | Suitability of component for routine implementation | Delivery of sessions | Community researchers | Once | Research team | Endline interview with community researchers | Topic guide and field diaries | Mixed |
Field diaries | ||||||||
Fidelity of delivery | Delivery of the component as intended | Number of sessions conducted | PLA participants | Once | Community researchers | Attendance registers | Attendance registers | Quantitative |
Content of sessions | Community researchers | Monthly | Community researchers | Field diaries | Field diaries | Mixed | ||
Participatory-ness of the sessions | Monthly | Community researchers | Field diaries | Field diaries | Qualitative | |||
Fidelity of receipt | Intervention reach | Number of attendees | PLA participants | Weekly | Community researchers | Attendance registers | Attendance registers | Quantitative |
Profile of participants | PLA participants | Once | Community researchers | Questionnaire | Questionnaire (demographic session) |
Quantitative | ||
User understandings and performance resulting from receipt of component | Community-led intervention strategies | PLA participants | Once | Research team | Field diaries and endline interviews | Topic guide and field diaries | Mixed | |
Photovoice activities | PLA participants | Once | Community researchers | Photovoice | FG discussions and images | Qualitative |
At the individual level, we will measure impact using standardised measures tested and validated by the community in phase 1. These measures are summarised in table 4. Where standardised tools were not available, we developed specific items to explore dimensions of knowledge, behaviour and practices linked to mental health. This was informed by knowledge attitudes and practices (KAP) studies in other areas33 and a similar tool used by other large scale mental health studies.34 To better understand community and systems-level impacts, we will also run simulations to assess the cost–benefit or the cost-effectiveness of the actions that are (1) implemented and (2) planned in phase 2. When it makes sense to monetise and data are available, results will be monetised using current knowledge of different uses of time by young individuals (education, work, political engagement, working for their communities) in resource-constrained countries for the cost–benefit analysis. When not possible, cost-effectiveness analysis will be developed. Costs will be estimated using the baseline quantification of cost of health services in WP1, if possible. Together, these strategies evaluate the pathways, mechanisms and resources required for promoting and improving mental health services and inform future questions to be considered in future trials and scaling up of our intervention.
Table 4.
Long term outcomes | Indicator | Measure |
Improved experiences of mental health reduced symptoms of mental ill health | Improved well-being Reduced symptoms of depression |
WHO-5 (5 items) |
PHQ-2 (2 items) | ||
Short-term outcomes | Indicator | Measure |
Improved perceptions of quality of relationships between practitioners and communities | Increased willingness to seek treatment | Perceptions on different Service providers (5 items) |
Improved feelings of belongingness and community cohesion | Increased sense of attachment to place/home | Sense of belonging and attachment to place40 (14 items) |
Increased feelings of emotional and community support Increased feelings of inclusion and acknowledgement in the community |
World Bank Social Capital measure (17 items) | |
Improved perception of individual and collective agency Positive sense of self/identity |
Possible selves questionnaire41 (6 items) |
|
Increased mental health literacy knowledge attitudes and practices questions | Increased mental health literacy | Depression symptom knowledge (5 items) |
Stress symptom knowledge (5 items) | ||
Substance misuse symptom knowledge (5 items) | ||
Greater acceptance of others seeking treatment | 3 items | |
Helping others to seek treatment | 2 items | |
More positive perceptions of mental illness | 1 item | |
Reduction of mental health stigma | More willingness to discuss/explore mental health needs in communities and families | RIBS reported behaviours subscale (4 items) |
Sampling
Across the project two sampling strategies were used. For the diagnostic phase, purposive sampling ensured selection on the basis of participants’ characteristics35 in our case, in-depth knowledge of the context and local mental health services, from both potential service users’ and providers’ perspectives. Within this framework, we adopted a maximum variation approach, selecting across a broad spectrum of characteristics which included age, gender and mental health status. This will support an in-depth understanding of the range of different groups who populate PDET communities ensuring saturation of contexts, through triangulation of data and experiences.36
Inclusion and exclusion criteria will be uniform across the programme. Inclusion criteria for community members will include (1) place of residency (Florencia/La Montañita), reported by the participant as their home; (2) age (16–25 years old and 26+years); (3) willingness to voluntarily participate (inform consent signed) and (4) self-reported emotional distress experiences. Service provider sampling will include (1), working in a health provider setting or in a decision-making scenario related to the health field will be used in addition to the criteria used for community members as an inclusion criterion. Those with untreated mental health affections, people unable to give consent, people under 16 years old, and people unrelated to health providing systems and institution in the case of health representatives will not be eligible for participation in our study.
For the intervention, purposive sampling will be used to include community members who participated in the diagnostic phase as well as availability sampling to include a wide range of other community members. We did not conduct a formal sample size calculation due to the lack of data on the expected intervention effect size linked to our outcomes. However, simple power analyses linked to the use of scales such as the PHQ-9 indicate that a sample size of approximately 30 is required to show significance changes in pre–post testing. Notwithstanding, our recruitment aims were guided by previous experience of the research team applying this method in similar populations in Colombia6 where the attrition rate was found to be around 42% among a similarly highly mobile and critical population. This is similar to other projects working with vulnerable and transient populations in PDET territories in Colombia (Idrobo et al, personal communication).
Data analysis
Qualitative data across all phases will be analysed using thematic network,37 reflexive,38 or framework analysis.39 Thematic network analysis will be used to understand community perceptions of well-being and emotional distress, and local mental health services. Other thematic analysis methods mentioned will be used for analysing data derived from the motivated ethnography, qualitative data from our evaluation, and in the policy review to identify primary topics regarding access and mental health services in Colombia, particularly in PDET municipalities. Collaborative data analysis strategies will be applied across all our project analysis, involving participants and community researchers in data analysis, verifying outputs and guaranteeing data validity.
Descriptive analysis and simple regression modelling will be performed on quantitative data from our evaluation questionnaire to evidence changes regarding mental health and well-being, and community-level outcomes (social capital and social belonging) before and after our intervention. These changes will be captured comparing baseline and endline results following the completion of the intervention.
Patient and public involvement
Because of the nature of PAR research and our overall coproduction approach, this project is committed to public involvement. Community partner organisations were involved in the framing and development of the project from the outset (including funding application stages) and are involved in major planning and decision-making. Intervention design processes involve everyday citizens, or ‘potential service users’ during all phases. The TOC approach planned for this study is rooted in participant and public involvement, diverging from other approaches that involve a handful of patient representatives, or make use of previously collected data from wider communities. Instead, the stage will include people with previous experience of mental health services, family members, friends and potential service users within the TOC process.
Ethics and dissemination
Ethical approval has been obtained from two academic institutions. One in Colombia (2021–1393) and the UK (16127/005). We will disseminate our work across academic, policy and community platforms. We will produce peer-reviewed publications and policy reports, alongside public communication activities such as workshops, short-films, infographics and photography exhibitions to highlight community projects. A detailed communication strategy will be finalised based on collaborative agreement across our entire team and policy stakeholders.
Supplementary Material
Footnotes
Twitter: @thewrittenro, @NorhaVera
Contributors: Given the participatory nature of this project, authors contributed to many credit roles. They are outlined as follows. Writing original draft: RB and MCDS are equal first authors on this manuscript. All other authors contributed to reviewing and editing of this manuscript. All authors contributed to the conceptualisation and methodology of the project. Funding acquisition was led by RB, MCDS, SJ, DM-C, MFG and DFT. Project administration is led by MG-G, MCDS, RB, SJ, LF and NVSJ. Data curation, investigation is led by LF, NVSJ, MCM, MG-G. Formal analysis: MCDS, MG-G, SJ, and LF are phase 1 analysis leads. RB, LF, MCDS are phase 2 leads. RB, DM-C and DL are phase 3 leads. All other authors supporting analysis contributors across all phases. Supervision across this project is completed by RB, SJ, MCDS, DM-C.
Funding: This work is funded by an UKRI/ESRC Newton Award, grant number ES/V013211 and a MINCIENCIAS award, grant number 856-2020.
Competing interests: None declared.
Patient and public involvement: Patients and/or the public were involved in the design, or conduct, or reporting, or dissemination plans of this research. Refer to the Methods section for further details.
Provenance and peer review: Not commissioned; peer reviewed for ethical and funding approval prior to submission.
Supplemental material: This content has been supplied by the author(s). It has not been vetted by BMJ Publishing Group Limited (BMJ) and may not have been peer-reviewed. Any opinions or recommendations discussed are solely those of the author(s) and are not endorsed by BMJ. BMJ disclaims all liability and responsibility arising from any reliance placed on the content. Where the content includes any translated material, BMJ does not warrant the accuracy and reliability of the translations (including but not limited to local regulations, clinical guidelines, terminology, drug names and drug dosages), and is not responsible for any error and/or omissions arising from translation and adaptation or otherwise.
Ethics statements
Patient consent for publication
Not applicable.
References
- 1.Semrau M, Alem A, Ayuso-Mateos JL, et al. Strengthening mental health systems in low- and middle-income countries: recommendations from the Emerald programme. BJPsych Open 2019;5:e73. 10.1192/bjo.2018.90 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 2.Burgess R. COVID-19 mental-health responses neglect social realities. Nature 2020. doi: 10.1038/d41586-020-01313-9. [Epub ahead of print: 04 May 2020]. [DOI] [PubMed] [Google Scholar]
- 3.Tamayo-Agudelo W, Bell V. Armed conflict and mental health in Colombia. BJPsych Int 2019;16:40–2. 10.1192/bji.2018.4 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 4.Cuartas Ricaurte J, Karim LL, Martínez Botero MA, et al. The invisible wounds of five decades of armed conflict: inequalities in mental health and their determinants in Colombia. Int J Public Health 2019;64:703–11. 10.1007/s00038-019-01248-7 [DOI] [PubMed] [Google Scholar]
- 5.Cepeda-Pérez A, Giraldo-Vargas AM, Gómez-Lizarazu DE, et al. Evaluación Programa de Atención Psicosocial Y Salud integral a Víctimas – PAPSIVI: Informe final. Bogotá, D.C, 2020. https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RIDE/DE/PS/informe-final-evaluacion-resultados-papsivi-ps.pdf [Google Scholar]
- 6.Burgess RA, Fonseca L. Re-thinking recovery in post-conflict settings: supporting the mental well-being of communities in Colombia. Glob Public Health 2020;15:200–19. 10.1080/17441692.2019.1663547 [DOI] [PubMed] [Google Scholar]
- 7.Montenegro CR, Cornish F. Historicising involvement: the visibility of user groups in the modernisation of the Chilean mental health system. Crit Public Health 2019;29:61–73. 10.1080/09581596.2017.1400659 [DOI] [Google Scholar]
- 8.Burgess RA, Jain S, Petersen I, et al. Social interventions: a new era for global mental health? Lancet Psychiatry 2020;7:118–9. 10.1016/S2215-0366(19)30397-9 [DOI] [PubMed] [Google Scholar]
- 9.WHO . Research for universal health coverage, 2013. WHO. Available: https://www.who.int/publications/i/item/9789240690837
- 10.Kroc Institute for International Pease Studies . Tres años después de la firma del Acuerdo final en Colombia: Hacia La transformación territorial, 2020. Available: http://peaceaccords.nd.edu/wp-content/uploads/2020/06/200630-Informe-4-resumen-final.pdf [Accessed Diciembre 2018 a Noviembre 2019].
- 11.Agencia de Renovación del Territorio . ABCÉ de Los PDET: Programas de Desarrollo Con Enfoque territorial, 2021. Available: https://portal.renovacionterritorio.gov.co/descargar.php?idFile=29067
- 12.Campbell C, Burgess R. The role of communities in advancing the goals of the movement for global mental health. Transcult Psychiatry 2012;49:379–95. 10.1177/1363461512454643 [DOI] [PubMed] [Google Scholar]
- 13.Nelson G, Prilleltensky I. Community psychology : in pursuit of liberation and well-being. Basingstoke: Palgrave Macmillan, 2010. [Google Scholar]
- 14.Lund C, Brooke-Sumner C, Baingana F, et al. Social determinants of mental disorders and the sustainable development goals: a systematic review of reviews. Lancet Psychiatry 2018;5:357–69. 10.1016/S2215-0366(18)30060-9 [DOI] [PubMed] [Google Scholar]
- 15.Rose-Clarke K, Gurung D, Brooke-Sumner C, et al. Rethinking research on the social determinants of global mental health. Lancet Psychiatry 2020;7:659–62. 10.1016/S2215-0366(20)30134-6 [DOI] [PubMed] [Google Scholar]
- 16.Departamento Administrativo Nacional de Estadística (DANE) . La información del Dane en La toma de decisiones regionales. Florencia - Caquetá; 2020. https://www.dane.gov.co/files/investigaciones/planes-departamentos-ciudades/201211-InfoDane-Florencia-Caqueta.pdf [Google Scholar]
- 17.Médicos sin Fronteras . Tres veces víctimas: Víctimas de la violencia, El silencio Y El abandono Conflicto armado Y salud mental en El departamento de Caquetá Colombia. Florencia; 2010. https://www.acnur.org/fileadmin/Documentos/Publicaciones/2010/7372.pdf [Google Scholar]
- 18.Departamento Administrativo Nacional de Estadística (DANE) . Principales indicadores del mercado laboral - Julio de 2022 Bogotá, D.C; 2022. https://www.dane.gov.co/files/investigaciones/boletines/ech/ech/bol_empleo_jul_22.pdf [Google Scholar]
- 19.Departamento Administrativo Nacional de Estadística (DANE) . Fortalecimiento a la Atención integral a Víctimas del Conflicto Armado en El Municipio de la Montañita Florencia; 2020. https://lamontanitacaqueta.micolombiadigital.gov.co/sites/lamontanitacaqueta/content/files/000342/17089_2020184100008-victimas.pdf [Google Scholar]
- 20.Burgess RA, Choudary N. Time is on our side: operationalising ‘phase zero’ in coproduction of mental health services for marginalised and underserved populations in London. Int J Public Adm 2021;44:753–66. 10.1080/01900692.2021.1913748 [DOI] [Google Scholar]
- 21.Baum F, MacDougall C, Smith D. Participatory action research. J Epidemiol Community Heal 2006;60:854–7. 10.1136/jech.2004.028662 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 22.Burgess RA. Policy, power, stigma and silence: exploring the complexities of a primary mental health care model in a rural South African setting. Transcult Psychiatry 2016;53:719–42. 10.1177/1363461516679056 [DOI] [PubMed] [Google Scholar]
- 23.Dedios Sanguineti MC, Martínes Gómez M, Guarin A. Using WhatsApp to collect data on displaced Venezuelans, internally displaced populations, and host communities in Colombia during COVID-19 lockdowns. world bank blogs DEV, 2022. World Bank Blogs Dev. Peace. Available: https://blogs.worldbank.org/dev4peace/using-whatsapp-collect-data-displaced-venezuelans-internally-displaced-populations-and
- 24.Cassiani-Miranda CA, Cuadros-Cruz AK, Torres-Pinzón H, et al. Validity of the patient health Questionnaire-9 (PHQ-9) for depression screening in adult primary care users in Bucaramanga, Colombia. Rev Colomb Psiquiatr 2021;50:11–21. 10.1016/j.rcpeng.2019.09.002 [DOI] [PubMed] [Google Scholar]
- 25.Campo-Arias A, Miranda-Tapia GA, Cogollo Z, et al. Reproducibilidad del Índice de Bienestar General (WHO-5 WBI) en estudiantes adolescentes. Salud Uninorte 2015;31:18–24 https://www.redalyc.org/articulo.oa?id=81739659003 [Google Scholar]
- 26.Serrani Azcurra D. Traducción, adaptación al español Y validación de la escala de bienestar mental de WARWICK-EDINBURGH en Una muestra de adultos mayores argentinos. Acta Colomb Psicol 2015;18:79–93. 10.14718/ACP.2015.18.1.8 [DOI] [Google Scholar]
- 27.Ouimet JA, Bunnage JC, Carini RM, et al. Using focus groups, expert advice, and cognitive interviews to establish the validity of a college student survey. Res High Educ 2004;45:233–50. 10.1023/B:RIHE.0000019588.05470.78 [DOI] [Google Scholar]
- 28.Zamora-Moncayo E, Burgess RA, Fonseca L, et al. Gender, mental health and resilience in armed conflict: listening to life stories of internally displaced women in Colombia. BMJ Glob Health 2021;6:e005770. 10.1136/bmjgh-2021-005770 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 29.Morrison J, Akter K, Jennings HM, et al. Participatory learning and action to address type 2 diabetes in rural Bangladesh: a qualitative process evaluation. BMC Endocr Disord 2019;19:118. 10.1186/s12902-019-0447-3 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 30.Seward N, Neuman M, Colbourn T, et al. Effects of women's groups practising participatory learning and action on preventive and care-seeking behaviours to reduce neonatal mortality: a meta-analysis of cluster-randomised trials. PLoS Med 2017;14:e1002467. 10.1371/journal.pmed.1002467 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 31.King C, Burgess RA, Bakare AA, et al. Integrated sustainable childhood pneumonia and infectious disease reduction in Nigeria (INSPIRING) through whole system strengthening in Jigawa, Nigeria: study protocol for a cluster randomised controlled trial. Trials 2022;23:95. 10.1186/s13063-021-05859-5 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 32.Durrance-Bagale A, Marzouk M, Tung LS, et al. Community engagement in health systems interventions and research in conflict-affected countries: a scoping review of approaches. Glob Health Action 2022;15:2074131. 10.1080/16549716.2022.2074131 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 33.Abrahams Z, Jacobs Y, Mohlamonyane M, et al. Implementation outcomes of a health systems strengthening intervention for perinatal women with common mental disorders and experiences of domestic violence in South Africa: pilot feasibility and acceptability study. BMC Health Serv Res 2022;22:641. 10.1186/s12913-022-08050-x [DOI] [PMC free article] [PubMed] [Google Scholar]
- 34.Newson JJ, Thiagarajan TC. Assessment of population well-being with the mental health quotient (MHQ): development and usability study. JMIR Ment Health 2020;7:e17935. 10.2196/17935 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 35.Etikan I, Musa S, Akassim RS. Comparison of convenience sampling and Purposive sampling. AJTAS 2016;5:1. 10.11648/j.ajtas.20160501.11 [DOI] [Google Scholar]
- 36.Guest G, Bunce A, Johnson L. How many interviews are enough? Field methods 2006;18:59–82. 10.1177/1525822X05279903 [DOI] [Google Scholar]
- 37.Attride-stirling J. Thematic networks: an analytic tool for qualitative research. In: Qualitative research. London; Thousand Oaks; New Delhi: SAGE Publications, 2001: 385–405. [Google Scholar]
- 38.Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exerc Heal 2019;11:589–97. 10.1080/2159676X.2019.1628806 [DOI] [Google Scholar]
- 39.Gale NK, Heath G, Cameron E, et al. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol 2013;13:117. 10.1186/1471-2288-13-117 [DOI] [PMC free article] [PubMed] [Google Scholar]
- 40.Jovchelovitch S, Priego-Hernández J. Underground Sociabilities: identity, culture and resistance in the favelas of Rio. Brasilia, Paris: UNESCO; 2013. [Google Scholar]
- 41.Oyserman D, Johnson E, James L. Seeing the destination but not the path: effects of socioeconomic disadvantage on school-focused possible self content and linked behavioral strategies. Self Identity 2011;10:474–92. 10.1080/15298868.2010.487651 [DOI] [PMC free article] [PubMed] [Google Scholar]
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